I am cold
I sure do connie!! It's like I can't move or move in slow motion. I have started working out a couple three times a week and this has helped. my hands are the worse. They refuse to bend. This makes snow shoveling not just a job, but an adventure. I spend more time picking up the shovel than actually moving any snow. 
Peace, V
Peace, V
-
REDHAIRANDTEMPER
- Family Elder
- Posts: 285
- Joined: Mon Nov 07, 2005 3:00 pm
- Location: wisconsin
- Contact:
i have the same problem with my muscles here also...my legs seem to be the worse right now..it was for awhile my arms and hands but has since gotten better in those when i started to excerise some ...but with my legs have been exersicing but hasnt helped them nearly as much as it did with my arms....but in the morning and sometimes after being outside for awhile i really notice the stiffness.......good to know i am not alone with that stuff....
chris
chris
waiting for answers
cold and stiff
yep i think it's the shit nerve conductivity. anybody gets it, but we get it worse i think.
-
REDHAIRANDTEMPER
- Family Elder
- Posts: 285
- Joined: Mon Nov 07, 2005 3:00 pm
- Location: wisconsin
- Contact:
well for me i thought first it was in my fingers and it was the start of arthis but did a couple of tests on me cuase ya know they just cant look at something and say anything..just got to run tests..anyways said that wasnt it..so they are associating it with my problems....good to know they are all linked but would be even nicer if they would figure out what to give me and stuff like that..i have been taking vit d with a multi vit..also take co q 10 which helps me a little....other then that they cant seem to make up thier mind what they want to give me to help with the problems i have....now they want to hold off giving me anything until they do the 48 hour eeg....sure i said what is three more weeks to me...i just wish i could get out of bed a little faster then i do now..in the moring it seems real bad with the stiffness..not sure if anyone else has it like that or all the time..i mean i have it all the time but just seems worse in the morning and if outside for a long period of time in the cold....
chris
chris
waiting for answers
I am somewhat stiff all the time. It is indeed worse in the morning. I get up two hours before I have to go to work so I can spend the first hour getting limber enough to curl my hair. Sad that something so simple can cause so much disturbance in my daily ritual.
I use to whine about it, even if only to myself. I gave that up because it doesn't help to dwell on the gloom and doom of MS. I decided that if I could whine, I could DO something about it. I bother not going to the Dr because everthing I have went to the Dr for since I fould out I had MS is "MS related" and they always have a pill they want me to take. Big whoop. I don't take pills. Having MS is bad enough I don't want my hair to fall out, to gain weight, kidneys to fail, liver to rot, or worse yet (and yes I actually read this as a side effect of some medicine in several places) develop cancer!!!! I'm like I'll just get up eariler.
Being tired is my worse enenmy. When I get tired, I tend to slide into "poor poor pitiful me" mode. It takes twice as much energy to be me these days. Sometimes opening a bottle of soda is a five minute affair. Sucks. BUT I can do it. I try to rest as much as I can, and like I said before, I actually exercise. Weather it helps or not, I don't know but I feel better that I'm doing it so it works for me.
I take niacin, b12, and folic acid. I do the Avonex shots once a week (I hate those but it was the lesser of 4 evils).
Chris, I tell people I have arthritis. They buy it. Only a couple of people in my life even know I have MS. I would not be able to tolerate the gossip and talk behind my back if "everyone knew" so I chose to let it be. I know they talk and think less of people. I hear them do it every day. I usually just walk away and thank God it's not me they think so little about. I do believe it's my biggest fear that someday it will be me they talk about like that. It would quite likely kill me.
Peace, V
I use to whine about it, even if only to myself. I gave that up because it doesn't help to dwell on the gloom and doom of MS. I decided that if I could whine, I could DO something about it. I bother not going to the Dr because everthing I have went to the Dr for since I fould out I had MS is "MS related" and they always have a pill they want me to take. Big whoop. I don't take pills. Having MS is bad enough I don't want my hair to fall out, to gain weight, kidneys to fail, liver to rot, or worse yet (and yes I actually read this as a side effect of some medicine in several places) develop cancer!!!! I'm like I'll just get up eariler.
Being tired is my worse enenmy. When I get tired, I tend to slide into "poor poor pitiful me" mode. It takes twice as much energy to be me these days. Sometimes opening a bottle of soda is a five minute affair. Sucks. BUT I can do it. I try to rest as much as I can, and like I said before, I actually exercise. Weather it helps or not, I don't know but I feel better that I'm doing it so it works for me.
I take niacin, b12, and folic acid. I do the Avonex shots once a week (I hate those but it was the lesser of 4 evils).
Chris, I tell people I have arthritis. They buy it. Only a couple of people in my life even know I have MS. I would not be able to tolerate the gossip and talk behind my back if "everyone knew" so I chose to let it be. I know they talk and think less of people. I hear them do it every day. I usually just walk away and thank God it's not me they think so little about. I do believe it's my biggest fear that someday it will be me they talk about like that. It would quite likely kill me.
Peace, V