Tysabri only i try what next ?
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Tysabri only i try what next ?
hi all
i like to know what after Tysabri
i am new this game my guess i be live with m.s for over 25 years
is too late 44 now and male i found out last year
what the cards for me
thank you
i like to know what after Tysabri
i am new this game my guess i be live with m.s for over 25 years
is too late 44 now and male i found out last year
what the cards for me
thank you
Re: Tysabri only i try what next ?
Hi,
If you have had undiagnosed MS for over 25 years and now you are 44, then you haven't changed as much as your diagnosis has. Drugs are only one way to deal with MS.
What symptoms do you have now?
What country are in? How were you diagnosed?
Regards,
If you have had undiagnosed MS for over 25 years and now you are 44, then you haven't changed as much as your diagnosis has. Drugs are only one way to deal with MS.
What symptoms do you have now?
What country are in? How were you diagnosed?
Regards,
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- Family Member
- Posts: 37
- Joined: Wed Dec 09, 2020 9:37 pm
Re: Tysabri only i try what next ?
hi all i find hard in heat walk
all in 1 year
new and talk not right and small places and numb 24 hours both hands and feet
some times leg and legs get a move by them self
its the frist hit i really can feel or others can see yes dr's too
this the only drug i try to fight it with all i know
mri shown no change
i sould not got this i find ez walk with cane
from aus is too late ? for me i bike all my life
i own rareys bikes in aus i want less stress not good for us
they is a fix in pipeline 7 years time
i clean of all drug before
i need a clear head space thank you
all in 1 year
new and talk not right and small places and numb 24 hours both hands and feet
some times leg and legs get a move by them self
its the frist hit i really can feel or others can see yes dr's too
this the only drug i try to fight it with all i know
mri shown no change
i sould not got this i find ez walk with cane
from aus is too late ? for me i bike all my life
i own rareys bikes in aus i want less stress not good for us
they is a fix in pipeline 7 years time
i clean of all drug before
i need a clear head space thank you
Last edited by Weneedhope on Sat Dec 19, 2020 10:33 pm, edited 4 times in total.
Re: Tysabri only i try what next ?
Thank you for the update.
I'm not sure what you mean by aus.
Apart from the Tysabri, does your doctor prescribe anything else?
Regards,
I'm not sure what you mean by aus.
Apart from the Tysabri, does your doctor prescribe anything else?
Regards,
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- Family Member
- Posts: 37
- Joined: Wed Dec 09, 2020 9:37 pm
Re: Tysabri only i try what next ?
i from Australia
when mean 6 to 10 hours a day on bike all my life
when from elite to rock in 1 year i had cat scan or blood work in the time , i given all clear
thank you
when mean 6 to 10 hours a day on bike all my life
when from elite to rock in 1 year i had cat scan or blood work in the time , i given all clear
thank you
Re: Tysabri only i try what next ?
Hi,
I thought you meant Australia but I wasn't sure. So am I.
When you say rock, I guess you mean you are stiff. Is that right? Can you walk? Do you bend forward when you go upstairs?
Are you fatigued?
Regards,
I thought you meant Australia but I wasn't sure. So am I.
When you say rock, I guess you mean you are stiff. Is that right? Can you walk? Do you bend forward when you go upstairs?
Are you fatigued?
Regards,
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- Family Member
- Posts: 37
- Joined: Wed Dec 09, 2020 9:37 pm
Re: Tysabri only i try what next ?
only good part give 1 year i could be bettter i need sell all my gear
i hope i have time i can move i sill in shell shock i give not help from idsn or MS Multiple Sclerosis Support group
i help before others with m.s lack of hope in dr's
i deal 500 year old problem
the drugs are free for us
thank you
i hope i have time i can move i sill in shell shock i give not help from idsn or MS Multiple Sclerosis Support group
i help before others with m.s lack of hope in dr's
i deal 500 year old problem
the drugs are free for us
thank you
Re: Tysabri only i try what next ?
Hi,
If you are still moving ok, I suggest you take up an exercise that helps with stretching and strengthening, such as pilates.
Some people do find that a diagnosis really shocks them. Keep trying to do the things you usually do and see what happens.
There are good non-drug books like "The Wahls protocol", a lot of different diets that stay away from added sugar and many different ideas on this site.
The first thing you have to do is get used to the diagnosis. Don't chase after a cure, learn to think about how MS affects you and how you can adapt. Many people live normal lives. Don't become too focused on the negative stories. Things can go wrong but there is usually a number of things to try first.
Regards,
If you are still moving ok, I suggest you take up an exercise that helps with stretching and strengthening, such as pilates.
Some people do find that a diagnosis really shocks them. Keep trying to do the things you usually do and see what happens.
There are good non-drug books like "The Wahls protocol", a lot of different diets that stay away from added sugar and many different ideas on this site.
The first thing you have to do is get used to the diagnosis. Don't chase after a cure, learn to think about how MS affects you and how you can adapt. Many people live normal lives. Don't become too focused on the negative stories. Things can go wrong but there is usually a number of things to try first.
Regards,
-
- Family Member
- Posts: 37
- Joined: Wed Dec 09, 2020 9:37 pm
Re: Tysabri only i try what next ?
i had a other m..r.i it's not show a changes
i find hard to talk now
and not a reply what next drug
thank you
i find hard to talk now
and not a reply what next drug
thank you
Re: Tysabri only i try what next ?
Hi,
What has your neurologist suggested to you?
Regards,
What has your neurologist suggested to you?
Regards,