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mrhodes40 wrote:--but cure, a thrombosis?? Did the doc think it had anything to do with not getting your feet UP in the night so that the blood stagnated down there and was able to clot? so my logic was no harm in ignoring this....
When it originally occured, it would occur over night when I would be laying flat, so that by morning the pain was unbearable to stand on it, UNTIL I had been upright for a few minutes, then it would go away.
I thought the IBT would partially simulate being upright, and since I only got it while horizontal, I was a little suprised to get it recently while using IBT.
Cure, DVT on several people, including my wife's mother and several people with spinal cord injury completely resolved using incline Therapy.
Your observation is unusual but very interesting and I would like to learn more about any events leading up to it, for example changes in daily routine, long car journey, sitting for too long in one position, flight etc.
To determine differences if indeed there are any differences in your condition it would be useful if you could revert back to sleeping flat in order to determine if there are any.
I can also see that this thread is under threat of being commandeered on the grounds that it is purely related to discussion on Chronic venous insufficiency, even when "many posts" on this thread are indeed totally off topic, unlike my own posts which are primarily focused on changes in chronic venous insufficiency in the legs of people with varicose veins and how this relates to The Dr Franz Schelling and Professor Zamboni papers.
I have provided both before and after photographs to support these observable and repeatable changes in varicose veins using Inclined Therapy.
My problem is, “and it is a valid one” is that the venous system does not have a start and stop point, so any changes in venous pressure in varicose veins will not be possible unless the whole vascular system has also been changed, by that I mean changed in pressure and distribution of fluids. Much the same as we cannot have a disconnected central and peripheral nervous system as shown in the literature, we have one complete nervous system with separations in text books for tuition only. They are not individual systems anymore than a vein in the leg is somehow disconnected and irrelevant to a swollen vein next to the spine or in the brain.
If you think the pictures were fabricated and that Alun did not take the photographs and that Alun probably does not exist? Then there is little point talking to you
Marie it was you who raised objections and I addressed each and every one of those objections which you conveniently posted in the other thread, I addressed each and every one of your objections calmly and hopefully in a clear thought provoking way.
Postural changes, whether you like it or not have a profound impact on our physiology, poor posture over prolonged periods is well documented so why would you expect having modified our posture over many hours of our lives should have little to no effect?
We must understand why these veins are twisting in order to address the cause rather than patching up the damage with surgery, much the same as varicose veins in the legs frequently require further surgery, there is a distinct possibility that internal cerebrospinal vein surgery will inevitably provide only a temporary relief.
Schelling is in all probability correct about the pressure causing the damage, how else could these veins distort and twist? Much the same as a twisted gut will starve the blood and lead to sudden death, caused by excessive gas altering the pressure inside the gut, we have to address what is causing the pressure changes in the vascular network in order to find a preventative method.
The twisted varicose veins in the legs of people affected by this condition show how fluids can alter both the diameter of the vessels and cause the veins to become abnormal and constricted in places.
Several people now have reported veins becoming more swollen during bouts of high humidity. Perhaps this is why people with ms have relapses in the shower or a hot bath, a wrap around hair dryer or during unusually higher than normal atmospheric humidity?
Back to CCSVI!
Let's not confuse the issue. My hubby with born with insufficient jugular drainage. His jugulars did not bulge...they were crimped and collateral veins attempted to bring the blood from his brain to spine. He slept on an incline for five months...and his jugulars were closed up 95% on the left, 80% on the right.
Popping in from Florida to send a gentle reminder
cheer
Following a report from a lady with a collapsed vein in the foot who joined the pilot study and found that her circulation in the foot deteriorated due to the incline rather than improving as many had done. It was quickly realised that in the case of a collapsed vein rather than a swollen vein that decreasing the venous pressure as is the case with varicose veins and oedema, the restriction would be further closed.
Your post proves this point and for which I am grateful and would like to learn more if possible. I don't think under these particular circumstances Inclined therapy will be of much use to anyone with a collapsed vein without corrective surgery to open up the veins.
This was written a long time ago and reference can be found on the net.
A collapsed vein rare but should be carefully monitored and anyone who has this condition should not join this study as this study is aiming to cause the veins to be drawn in and in the case of a collapsed vein circulation will already be severely restricted so further reductions in the size of the vessel will restrict circulation rather than improve it in this case.
But let's not forget what we have learned here. 1. Inclined Therapy does increase the tension in the venous return and 2. A reduction in venous pressure has been identified using I.T.
Thanks Cheer.
cheerleader wrote:Back to CCSVI!
Let's not confuse the issue. My hubby with born with insufficient jugular drainage. His jugulars did not bulge...they were crimped and collateral veins attempted to bring the blood from his brain to spine. He slept on an incline for five months...and his jugulars were closed up 95% on the left, 80% on the right.
Popping in from Florida to send a gentle reminder
cheer
For those new to the forum, and trying to learn about CCSVI-
please read the research done by actual doctors- we have posted that in a "sticky" at the head of the forum on CCSVI. The first post on this thread is made by me in December, and is in regards to Dr. Zamboni's groundbreaking research in Italy. It has nothing to do with raising the head of a bed...but is based on tests performed on MS patients and subsequent interventions.
I hope this clears up any confusion that these anecdotal posts may have created. My husband's congenital defect was recently corrected with surgery. His surgeon commented that the only help for him was a stent surgery. He is doing quite well now, nine weeks post op.
We are discussing actual science on this thread, and I would ask the administrators of TIMS to help us keep our discussion on CCSVI to this topic.
I am trying so hard in what spare time I have to learn everything I can about CCSVI. This tread just gets longer and longer with what seems to be completely unrelated off topic discussion.
Can we please get back to the original topic at hand and discuss other therapies elsewhere.
If these other therapies are showing so much promise maybe they should be addressed on a completely separate Forum Index Topic. The site administrator can be very helpful with that.
Thanks,
Cat
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
Yes I agree with both CF and Cheer. This is not the place for IBT
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread http://www.ccsvibook.com Read my book published by McFarland Health topics
of Lisinopril (a generic blood pressure medication) being highly effective for reversing MS-type disease in rodents. Besides the induced shift toward regulatory T-cells, I wonder whether the blood-pressure lowering effect would be beneficial as well, by reducing blockage. I don't know much about the mechanism by which Lisinopril lowers blood pressure, but maybe others have thoughts on this?
I know this couldn't be a replacement for fixing venous blockage, but could be a supportive measure.
Last edited by radeck on Mon Feb 08, 2010 5:17 pm, edited 1 time in total.
My own previous post made me wonder whether there might be a correlation between high blood pressure and CCSVI/MS. Shouldn't individuals with high blood pressure tendency be more likely to develop stenoses?
On the other side, if a correlation between hypertension and MS existed, I'm sure we'd all know about it. What, hence, is wrong in my thinking?
