High Hopes on Pacific Coast

CureOrBust · Post by **CureOrBust** » Tue Sep 15, 2009 3:37 pm

questor wrote:Looks like my MRV results fit the usual pattern seen at Stanford so far. Left and right IJVs both essentially fade away to nothing at about mid-ear.

YAaaaawn.. its all becoming so blasé..

Good luck for the op.

mormiles · Post by **mormiles** » Wed Sep 16, 2009 8:29 am

God bless you Tracy. I've just prayed for you and for Lew.

Loobie · Post by **Loobie** » Thu Sep 17, 2009 11:18 am

Here's to a better day today dude. Last night seeing you was great. All I can tell you is that level of pain subsides fairly quickly and then it's just more "achey". It was great actually shaking your hand.

catfreak · Post by **catfreak** » Thu Sep 17, 2009 12:41 pm

It get's better!

Take care of yourself and let us know how it's going.

Cat

mrhodes40 · Post by **mrhodes40** » Thu Sep 17, 2009 1:39 pm

It does get better....soon you'll be feeling more like yourself. EVERYONE has that first few days of feeling "OMG what have I done --OUCH!" LOL it is ok.........take your dilaudid or whatever and do not try to tough it out
marie

Loobie · Post by **Loobie** » Thu Sep 17, 2009 3:20 pm

Now I know how to spell dilaudid

. I hope you get to feeling better soon. Those high stents hurt like hell for a couple of days.

Quest56 · Post by **Quest56** » Fri Sep 18, 2009 9:48 am

I've now got a new set of stents, one each on the left and right IJVs. During the procedure, the left stent was inserted first (I think it's 7mm). When they inserted the right stent, I heard a "Wow" from the docs as my collateral veins immediately disappeared. Dr. Dake told me before I left that my right side veins were large enough to take a 9mm stent. They run from the bottom lobe of each ear to the start of my molars.

Recovery has been a little painful, but I'm now able to hold food down. It's definitely a little better each day.

I've added a little MJ to the percoset for treating pain and spasms, it has also helped with the nausea.

Got back yesterday, what an experience!

Lew stopped by my room at the hospital to wish me well the evening of the surgery, he made a stop in between running laps as part of his recovery.

I'll add more to the patient log later, off now to rest with a hotpack.

(BTW, someone in an earlier post had made a suggestion to request a Foley catheter before surgery, and to ask them to leave it in during the night in the hospital, I did, and this really helped to make that first night easier.)

Thanks for the good wishes, everyone.

--Tracy

mrhodes40 · Post by **mrhodes40** » Fri Sep 18, 2009 10:00 am

Tracy, good to hear things are settling a little, it sounds about right!! the hot packs help a lot, I put them only low down on the neck/upper back far from the actual stent area, at that time they were saying no hot pack directly over the stent area as they did not want bleeding issues. Has that changed then? Did Dr D specifically recommend hot packs? I want to make sure we are not generating new ideas for people that are not specifically recommended.

FYI I am a lady and my right jug has a 12mm stent

I still have some neck issues, but Dr D learned that smaller ones are fine; his original thought was bigger is better... You'll be feeling better every day!

catfreak · Post by **catfreak** » Fri Sep 18, 2009 10:17 am

Sooo glad to hear you are doing OK.

You have been on my mind for days and we are a persistant bunch here. We will bug the crap you of you till you let us know how you are!!

Cat

Loobie · Post by **Loobie** » Fri Sep 18, 2009 10:27 am

I'm so glad you are well enough to post Tracy. I could tell you just wanted to 'fetal position' it when I dropped in. Those high stents, oh how they hurt! Here's wishing you nothing but healing and high hope; you deserve it.

Needled · Post by **Needled** » Fri Sep 18, 2009 11:38 am

Glad everything went OK. Better days ahead!!

Quest56 · Post by **Quest56** » Sat Sep 26, 2009 10:37 am

mrhodes40 wrote:...the hot packs help a lot, I put them only low down on the neck/upper back far from the actual stent area, at that time they were saying no hot pack directly over the stent area as they did not want bleeding issues. Has that changed then?

FYI I am a lady and my right jug has a 12mm stent I still have some neck issues, but Dr D learned that smaller ones are fine; his original thought was bigger is better... You'll be feeling better every day!

Wow, 12mm stents? That's pretty amazing, especially now that I have something to compare it to (30% larger than my set).

I don't remember Dr. D explicitly recommending heat, so I don't think he's changed his approach. When I was using it on the neck, I kept it away from the stents, especially after I read your post. Now I'm using heat mainly on the back and shoulder, but only a few times a day.

Thanks for the advice, and you're right, every day is a little better.

--Tracy

CureIous · Post by **CureIous** » Sat Sep 26, 2009 10:57 am

questor wrote:
mrhodes40 wrote:...the hot packs help a lot, I put them only low down on the neck/upper back far from the actual stent area, at that time they were saying no hot pack directly over the stent area as they did not want bleeding issues. Has that changed then?

FYI I am a lady and my right jug has a 12mm stent I still have some neck issues, but Dr D learned that smaller ones are fine; his original thought was bigger is better... You'll be feeling better every day!
Wow, 12mm stents? That's pretty amazing, especially now that I have something to compare it to (30% larger than my set).

I don't remember Dr. D explicitly recommending heat, so I don't think he's changed his approach. When I was using it on the neck, I kept it away from the stents, especially after I read your post. Now I'm using heat mainly on the back and shoulder, but only a few times a day.

Thanks for the advice, and you're right, every day is a little better.

--Tracy

The "Oh crap what did I get myself into" feeling goes away after a bit. Glad to see you got through it well. I would have happily gone to fetal position my first night iff'n was able! Nurse! More Morphine! Nighty Night!

It gets better every day. A month from now you'll be wondering what all the fuss was about. How are you feeling?

Mark.

Quest56 · Post by **Quest56** » Sat Sep 26, 2009 11:23 am

CureIous wrote:It gets better every day. A month from now you'll be wondering what all the fuss was about. How are you feeling?

When the pain/spasms aren't acting up, I feel pretty good, actually!

With the medications I'm now taking, I have to contend with some side-effects (added dizziness, additional urine retention, nausea, etc), but these feel different from the usual MS symptoms.

Things I've noticed so far:

1 - No restless leg syndrome since the night before the surgery. Before surgery, I experienced it nightly (for the past several years now).
2 - Reduced numbness and tingling in both legs below the knees.
3 - Heat sensitivity is much reduced compared to before the procedure.
4 - Bladder is better in certain ways, but too soon to elaborate.
5 - Actively dreaming at night.

I've also had some awesome moments of visual clarity/acuity (intermittent).

I look forward to recovering to the point that I can start to exercise again, to feel for improvements in physical fatigue/stamina. This may need to wait until I'm finally off the coumadin and back on LDN.

--Tracy

CRHInv · Post by **CRHInv** » Sat Sep 26, 2009 11:42 am

Tracy, this sounds really good, just ten days out. Hang in there!

I look forward to recovering to the point that I can start to exercise again, to feel for improvements in physical fatigue/stamina.

What a great attitude!

Take care.