And you DOUBTED us! You're doing swell.robbie wrote:no cats here, it's been two years or more since i've been able to use a walker even for just a couple steps.
5 days of doxy
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MacKintosh
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Loobie
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I have no words Robbie. You and I have had many exchanges over the years and I feel really close to you; kindred spirit type of thing. It just made me cry and I had to get my wife and show her this as she keeps up with this site by proxy and she started crying too. Damn I hope you keep improving. You look real good dude. I am sooooooooo happy for you Rob, beyond words.
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lyndacarol
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Rob, I am so happy for you; your ability to use the walker after two years of inability is outstanding!
Disregarding the change you have made (DMD's, antibiotics, hormones, supplements, diet or insulin reduction, etc.) that you think is responsible for your improvement, the fact is you HAVE improved. For this reason (and all the other "miracle" stories), I doubt all the talk about "permanent" damage; I begin to think the lingering inabilities stem more from muscle tone than nerves.
In my own case, I think my lack of muscle tone (hypotonia) is a great contributing factor. I encourage you to exercise as much as possible. All the best to you!
(By the way, I think the intention tremor that I and many others experience is the direct result of a muscle problem -- dystonia. In my opinion, muscles play a major role in MS.)
Disregarding the change you have made (DMD's, antibiotics, hormones, supplements, diet or insulin reduction, etc.) that you think is responsible for your improvement, the fact is you HAVE improved. For this reason (and all the other "miracle" stories), I doubt all the talk about "permanent" damage; I begin to think the lingering inabilities stem more from muscle tone than nerves.
In my own case, I think my lack of muscle tone (hypotonia) is a great contributing factor. I encourage you to exercise as much as possible. All the best to you!
(By the way, I think the intention tremor that I and many others experience is the direct result of a muscle problem -- dystonia. In my opinion, muscles play a major role in MS.)
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Katman
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Robbie
It was only on the second reading that I realized this was a video and not a photogragh.
Five years ago, I was very nearly in that position - I had gone from a cane to a walker and was trying in my befuddled mind to figure out how I was going to get from here to there, whereever those places were - hopefully not too far. Now, not only is the wheelchair gone from the horizon, but the everyday walker and, before that, the cane are gone. We, with you, can do this! You have the groundwork laid for a really good start. How is your Vit D level? You have a large cheering section. I am so, so happy for you!
Rica
It was only on the second reading that I realized this was a video and not a photogragh.
Five years ago, I was very nearly in that position - I had gone from a cane to a walker and was trying in my befuddled mind to figure out how I was going to get from here to there, whereever those places were - hopefully not too far. Now, not only is the wheelchair gone from the horizon, but the everyday walker and, before that, the cane are gone. We, with you, can do this! You have the groundwork laid for a really good start. How is your Vit D level? You have a large cheering section. I am so, so happy for you!
Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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SarahLonglands
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Robbie, when I first started this I just so didn't believe that it would work that David had to really make sure that I took all the doses.
Do try to do a little every day and you will gradually build up your strength. I have been there too and I do remember standing at one end of a room, wondering how I was going to get across: not wanting to use a walker I would slowly drag myself around the room, grabbing hold of anything immobile.
I am so happy that so many people have come to support you!
Sarah
Do try to do a little every day and you will gradually build up your strength. I have been there too and I do remember standing at one end of a room, wondering how I was going to get across: not wanting to use a walker I would slowly drag myself around the room, grabbing hold of anything immobile.
I am so happy that so many people have come to support you!
Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
Robbie,
I share the same feelings everyone else has, I had no audio on my computer and still got choked up watching that. It seems like triumph to me. I am very happy for you. I hope you only continue to improve. I am glad that ABX appear to be working for you after all even if it wasn't minocycline that did the trick.
Best Regards,
Brock
I share the same feelings everyone else has, I had no audio on my computer and still got choked up watching that. It seems like triumph to me. I am very happy for you. I hope you only continue to improve. I am glad that ABX appear to be working for you after all even if it wasn't minocycline that did the trick.
Best Regards,
Brock
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bibliotekaren
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CureOrBust
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