Hi from Jeff, re. my stent treatment at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
bestadmom
Family Elder
Posts: 722
Joined: Mon May 18, 2009 2:00 pm
Location: CT
Contact:

Post by bestadmom »

I'm hoping for the best for Jeff.
User avatar
CRHInv
Family Elder
Posts: 403
Joined: Sun Aug 30, 2009 2:00 pm
Location: Chandler, AZ
Contact:

Post by CRHInv »

Oh my Joan, I didn't know you guys were going back. Please know I am thinking of you both. Please let us know what the good doctor finds. I am glad you are there for radeck too!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

CRHInv wrote:Oh my Joan, I didn't know you guys were going back. Please know I am thinking of you both. Please let us know what the good doctor finds. I am glad you are there for radeck too!
yeah...we didn't know we'd be here today, either. Dr. Dake didn't want to let too much time go on the whoosh and headaches. It's been 3 hours, so I'm assuming Jeff may have some new hardware. Trying to stay calm...everyone has gone home. Alone in waiting room. Glad I have you guys.
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
flipflopper
Family Elder
Posts: 187
Joined: Wed Nov 09, 2005 3:00 pm
Contact:

Post by flipflopper »

I’m also hoping that everything’s going to be alright with Jeff!
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

flipflopper wrote:I’m also hoping that everything’s going to be alright with Jeff!
Nurses just came in to say goodnight...Jeff's fine, Dr. Dake is being extra careful. Just exploratory and a small ballooning. It took awhile to get to the right area. He didn't even get any meds. The nurses all have crushes on Jeff (at least the female ones) so they came out to see who his wife was...they talked me down. Now everyone has left, and the cleaning crew asked me to turn out the lights and shut the door when I leave.
I'm signing off...thanks everyone, you guys are great. The prayers are appreciated.
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
CureIous
Family Elder
Posts: 1262
Joined: Tue Jul 14, 2009 2:00 pm
Location: Riverside, CA
Contact:

Post by CureIous »

Great news Joan. Hopefully a bit of angioplasty is right up his alley...

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
SammyJo
Family Elder
Posts: 225
Joined: Wed Mar 10, 2004 3:00 pm
Contact:

Post by SammyJo »

We are all rooting for Jeff! Hang in there Joan, lots of love and light and prayers is pouring out of the TIMS crowd, direct to you guys.
ErikaSlovakia
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe
Contact:

Post by ErikaSlovakia »

Oh, Joan, I'm hoping for the best for Jeff!
Good luck for you both!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
User avatar
kinga
Family Member
Posts: 68
Joined: Tue Oct 13, 2009 2:00 pm

Post by kinga »

Oh,I hope everything will be fine! sending good energy and prayers for You both!
User avatar
whyRwehere
Family Elder
Posts: 917
Joined: Mon Oct 03, 2005 2:00 pm
Contact:

Post by whyRwehere »

Hmmmmm, I have no idea what time it is there (10:30am here). Hope you got to bed and your husband was fine...just waiting now to hear.
It's hard on you, too, Joan...I won't tell you to take care of yourself, because I can't even follow that advice. Too much stress, though, deep breaths........
LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 »

As Jeff was the first person that Dr Dake operated on there are bound to be things that need tweaking. I hope that Jeff feels better and that the whooshing stops and the headaches dissapear. We are all thinking of you Joan and Jeff xxx
User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri
Contact:

Post by ozarkcanoer »

Wishing for the very best for Jeff and Joan... And thank you for everything you have done.

ozark
User avatar
CRHInv
Family Elder
Posts: 403
Joined: Sun Aug 30, 2009 2:00 pm
Location: Chandler, AZ
Contact:

Post by CRHInv »

Hi Joan! How are you guys doing this morning?
Thinking about you!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
zap
Family Elder
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm
Contact:

Post by zap »

Are any of the other stenters experiencing tinnitus and headaches? I seem to recall some did but it was transitory?
Rokkit
Family Elder
Posts: 669
Joined: Tue May 19, 2009 2:00 pm

Post by Rokkit »

Really sorry you guys are going through more treatment, but I'm confident you are in the best of hands. Praying for the best for you...
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”