Hi
I'm ready to sign a uk petition, once all have decided upon the correct wording
Dr Simka (Poland)
Good idea to run it past first. I agree with Ted, re: the wording. I did not sign the other one because I saw more than one error, and factually incorrect statement. I think that it is a good idea to have all the ducks in a row, so that it is not dismissed.Regarding the petition, we could start one for the UK but maybe we should run it past the people who post here before we circulate it.
Further, a hand-written letter goes a lot further than a mass electronic petition. Most politicians will respond to an actual letter, whereas electronic petitions can be dubious, and are often dismissed as "chatter".
My name is not really Johnson. MSed up since 1993
Hi Mutley
Just posting to wish you all the very best on Tuesday - its all just so exciting and Ill be glued to this board to learn more about your visit to Dr Simka.
I do not have firm dates yet, but he has outlined April for me to go and visit - can hardly wait!!
Claire too - I am waiting to hear all about your experiences with baited breath, though I realise you have longer to wait than Mutley.(less time than me though!)
Edser - I am also following your progress, and am very excited for you.
I just wish all on these boards, especially those who are waiting for liberation, all the very best - Love Suzanne
Just posting to wish you all the very best on Tuesday - its all just so exciting and Ill be glued to this board to learn more about your visit to Dr Simka.
I do not have firm dates yet, but he has outlined April for me to go and visit - can hardly wait!!
Claire too - I am waiting to hear all about your experiences with baited breath, though I realise you have longer to wait than Mutley.(less time than me though!)
Edser - I am also following your progress, and am very excited for you.
I just wish all on these boards, especially those who are waiting for liberation, all the very best - Love Suzanne
writing letters
Johnson (whose name is not really Johnson) I agree with you. I have already written a letter to the Director of the UK MS society, but I think any legitimate and well worded missive should be used. Sometimes these petitions can be multipurpose and can cover a lot of ground whereas letters have to be written to individuals and often tailored to the person or organisation...
I have also emailed copies of the Zamboni papers to a couple of Neurological research centres in the UK and am interested in doing anything that will raise the profile of the Liberation procedure in the UK.
I have also emailed copies of the Zamboni papers to a couple of Neurological research centres in the UK and am interested in doing anything that will raise the profile of the Liberation procedure in the UK.
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
Thanks Suzanne, I look forward to telling you all about it when I get back!crocky wrote:Hi Mutley
Just posting to wish you all the very best on Tuesday - its all just so exciting and Ill be glued to this board to learn more about your visit to Dr Simka.
April isn't that far away so you'll be there before you know it!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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ClaireParry
- Family Elder
- Posts: 218
- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
Hi Suzanne,
I've been sent roughly March for tests, but realised that it was an automated reply but live in hope!! Looking forward to hearing Mutleys experience.
A No10 petition is a great idea, but I think people are right. The wording needs to be just so. I don't know enough I suppose to get it right!
I've been sent roughly March for tests, but realised that it was an automated reply but live in hope!! Looking forward to hearing Mutleys experience.
A No10 petition is a great idea, but I think people are right. The wording needs to be just so. I don't know enough I suppose to get it right!
CCSVI
Good Morning TiMS,
DAY 12
The bruising in my groin is gone.
I've got propper movement in my neck after the 1 STENT in my right Juglar.
My finger's are warm BUT there is a numbness on the tops of them.(I don't know is this a Positive 0r Negative thing)
Is there any IRISH people going for the procedure in Poland?
Slainte Mo Chara
Edser & Anna
DAY 12
The bruising in my groin is gone.
I've got propper movement in my neck after the 1 STENT in my right Juglar.
My finger's are warm BUT there is a numbness on the tops of them.(I don't know is this a Positive 0r Negative thing)
Is there any IRISH people going for the procedure in Poland?
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
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ClaireParry
- Family Elder
- Posts: 218
- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
impatient for Poland!
Hi Claire, I do not have a firm date yet - just said April on the reply and would contact regarding a firm date in the next couple of weeks - I know, waiting is agony, but seems as if Dr Simka is one busy man now!
CCSVI
Good afternoon TiMS,
Thank's to everyone who comment on my update "Day 12" after CCSVI Procedure.(NO ONE)
Any way that's beside the point.I'm doing my best to spread the word,with regard's to CCSVI.The following link is for anyone who may be interested in CCSVI.
<shortened url>
Slainte Mo Chara
Edser & Anna
Thank's to everyone who comment on my update "Day 12" after CCSVI Procedure.(NO ONE)
Any way that's beside the point.I'm doing my best to spread the word,with regard's to CCSVI.The following link is for anyone who may be interested in CCSVI.<shortened url>
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4