Dr Simka (Poland)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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fiddler
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Dr. Kostecki clarification

Post by fiddler »

For the sake of some friends who are waiting to get on Dr. Simka's list, could someone please tell me if Dr. Kostecki is only doing CCSVI assessments, or is he doing liberation treatments as well. Secondly, I have seen his name (and e-mail) spelled as kostecki and kosteckj in this forum... could someone please let me know which is correct? Thank you.
...Ted
Last edited by fiddler on Sun Jan 17, 2010 11:52 am, edited 1 time in total.
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Asia
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Post by Asia »

The name is Kostecki but the email is kosteckj@op.pl with j for Jacek.
MS (progressive type, not sure which) since 1991
Current EDSS 8 (self-assessed)
Not taking any MS meds since 1998
Epilepsy (had 4 attacks to date) since 2004
ErikaSlovakia
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Re: Dr. Kostecki clarification

Post by ErikaSlovakia »

fiddler wrote:For the sake of some friends who are waiting to get on Dr. Simka's list, could someone please tell me if Dr. Kostecki is only doing CCSVI assessments, or is he doing liberation treatments as well. Secondly, I have seen his name (and e-mail) spelled as kostecki and kosteckj in this form... could someone please let me know which is correct? Thank you.
...Ted
His correct name is Dr. Jacek Kostecki.
His correct e-mail is: kosteckj@op.pl
Yes, it is without "i". "J" is for his first name.
Maybe you should ask him what he does. I do not think there are many Polish patients here.
Good luck!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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fiddler
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Thanks

Post by fiddler »

Thank you for clearing that up, Asia.

But does anyone know what Dr. Kostecki is (or will be) doing?

...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
ErikaSlovakia
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Re: Thanks

Post by ErikaSlovakia »

fiddler wrote:Thank you for clearing that up, Asia.

But does anyone know what Dr. Kostecki is (or will be) doing?

...Ted
I only know for sure he knows how to do Doppler because he was doing my first Doppler in August last year. Dr. Simka was sitting next to him.
It was in hospital in town Tychy, not far from Katowice.
Maybe somebody else knows more?
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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cervin
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dr Kostecki

Post by cervin »

hi Fiddler,
here is what i received from Dr. Kostecki last week. i have not heard back from him since.

Dear Ceci
We can do test for CCSVI ( Colour Doppler Ultrasound and MRI) and endovascular procedure if necessary.
I wll give you more information soon,
Sinceraly
Jacek Kostecki

so i say he is doing it all.
What i am trying to figure out is how many times? I am on Simka's waiting list for May, but if Kostecki could do it sooner- i might just go for it.

cheers
-ceci

I will post again right when i hear from him again :D
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irishmum
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Post by irishmum »

hi Edser,

I posted some time ago but had problems logging in since. I am on the list for April 2010 for the liberation treatment. I am convinced of this as my brother suffers from sticky blood and has had blood clots in veins in his legs.

I only joined the site around the end of November and e-mailed Dr Simka around that time so I havent got a firm date or time yet.

glad you are doing well

Maureen
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fiddler
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Thank you

Post by fiddler »

Thanks for that confirmation, ceci, I'm adding that information to my blog.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
Edser
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CCSVI

Post by Edser »

irishmum wrote:hi Edser,

I posted some time ago but had problems logging in since. I am on the list for April 2010 for the liberation treatment. I am convinced of this as my brother suffers from sticky blood and has had blood clots in veins in his legs.

I only joined the site around the end of November and e-mailed Dr Simka around that time so I havent got a firm date or time yet.

glad you are doing well

Maureen
Good Morning TiMS & "irishmum"
Ok so i now know of 2 Irish going for the procedure.Are there any more?DON'T BE SHY :oops: REPLY :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edser
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CCSVI

Post by Edser »

Good evening TiMS
1 Mounth 17 Days
I'm going to appoligise for my language now.F**KING weird thing's are happening to me in the last 2hrs.My 2 feet feel like they are solid on the ground :D I've been walking up & down my sitting room faster & more solid on my feet.This is the 1st time in a year,that i feel like a human.I walked up the stairs with 2 plates of food :D My physco has been trying to get me to do BABY STEPS (heel-toe-heel-toe) since i was diagnoised but i couldn't manage this as my balance was totally gone,but this evening I COULD :D SUPER ME :D I've been up since 7am & it's now 11.15pm & i've not slept or really sat down all day.
Slainte Mo Chara
Edser & Anna
Last edited by Edser on Tue Jan 19, 2010 3:36 pm, edited 1 time in total.
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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ozarkcanoer
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Post by ozarkcanoer »

Great Edser.... That's so good to hear !!!

ozarkcanoer
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Dovechick
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baby steps

Post by Dovechick »

Edser, that is fantastic. I'm so so pleased to hear how well you are doing. This is very encouraging....

Are you going to post this great news on www.ms-ccsvi-uk.org page. If you don't want to do it have you got any objections to me telling people there?
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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pgm1
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Post by pgm1 »

Hi Edser,

That is so exciting!,that gives me more to look forward to :D So happy for you both :D

Pam :)
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whyRwehere
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Post by whyRwehere »

Good for you Edser. My husband has started physio again, and she says the same to him: heel to toe. He's quite frustrated by that, as the action is beyond him.
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Mutley
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Post by Mutley »

That's wonderful news Edser, I am really happy for you. So exciting!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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