CCSVI and Slovakia, Europe
Simple translation of BNAC Newsletter from Dr. Zivadinov in Slovak language. Please share to others...
http://www.upnito.sk/subor/0548eb5e77fa ... d032e.html
or
http://www.megaupload.com/?d=SF098VGU
http://www.upnito.sk/subor/0548eb5e77fa ... d032e.html
or
http://www.megaupload.com/?d=SF098VGU
Last edited by BBE on Fri Feb 05, 2010 1:08 pm, edited 1 time in total.
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- Family Elder
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- Location: Slovakia, Europe
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Thank you, the second works with me. I need it for members on Slovak and on Czech MS Forum. I sent them only the English version yesterday.BBE wrote:Posted new links. I hope it will work now...
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
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procedure in Slovakia
The first "liberation" procedure was done in Slovakia in Bratislava
on March 29, 2010!
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/
Erika
The article is in Slovak language.
on March 29, 2010!
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/
Erika
The article is in Slovak language.
Last edited by ErikaSlovakia on Thu May 06, 2010 4:53 am, edited 1 time in total.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
...Erika probably wanted to post these links:
Slovak forum
http://szsm.szm.sk/forum/viewtopic.php? ... &start=580
and page of "Slovak radiology society"
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/
Anyway it is great news. Thanks.
EDIT: You can read some info in English about The National Institute of Cardiovascular Diseases here http://www.nusch.sk/en/
It is not just a private clinic anymore.
Slovak forum
http://szsm.szm.sk/forum/viewtopic.php? ... &start=580
and page of "Slovak radiology society"
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/
Anyway it is great news. Thanks.

EDIT: You can read some info in English about The National Institute of Cardiovascular Diseases here http://www.nusch.sk/en/
It is not just a private clinic anymore.
- thisisalex
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Thank you, Alex!thisisalex wrote:Great success dear neighbours!
congrats
I hope you will have it soon in Hungary!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
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I am almost sure. These people are young - the hospital is hight quality, I would say most of people speak English there.frodo wrote:Can they be contacted in English?
I remember reading them my Doppler results from Dr. Simka last September in English. All of CCSVI information are in English so they simply must speak English.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- thisisalex
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- Joined: Wed Dec 02, 2009 3:00 pm
- Location: Hungary
- Contact:
We are working on it.... but facing some problems, especially with neurologists trying to stop it. For the surgery they signature is needed. Do you think our medical team could get in contact with the slovakian doctors to get some good advices? it would be really nice...ErikaSlovakia wrote:Thank you, Alex!thisisalex wrote:Great success dear neighbours!
congrats
I hope you will have it soon in Hungary!
Erika
Erika, do you have an exact name to get in contact with?
thank you very much!
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I will PM you.thisisalex wrote:We are working on it.... but facing some problems, especially with neurologists trying to stop it. For the surgery they signature is needed. Do you think our medical team could get in contact with the slovakian doctors to get some good advices? it would be really nice...ErikaSlovakia wrote:Thank you, Alex!thisisalex wrote:Great success dear neighbours!
congrats
I hope you will have it soon in Hungary!
Erika
Erika, do you have an exact name to get in contact with?
thank you very much!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
There were 7 procedures done in Slovakia.
Patients get stents and some of them also ballooning.
Some of the patients report pain after the procedure. They say it is much better after 7 days - these patients got 2 or 4 stents. This reminds me Dr. Dake.
The first procedure was done on March 29, 2010.
An angiologist and an IR are involved. I heard nothing about electritians.
So, plumbers are working on it.
Erika
Patients get stents and some of them also ballooning.
Some of the patients report pain after the procedure. They say it is much better after 7 days - these patients got 2 or 4 stents. This reminds me Dr. Dake.
The first procedure was done on March 29, 2010.
An angiologist and an IR are involved. I heard nothing about electritians.
So, plumbers are working on it.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
-
- Family Elder
- Posts: 1125
- Joined: Wed Jul 29, 2009 2:00 pm
- Location: Slovakia, Europe
- Contact:
So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika
Both countries continue.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- thisisalex
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- Posts: 218
- Joined: Wed Dec 02, 2009 3:00 pm
- Location: Hungary
- Contact:
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- Family Elder
- Posts: 1125
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- Location: Slovakia, Europe
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I am in contact with some czech patients as well.thisisalex wrote:wowErikaSlovakia wrote:So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika
Erika, do you have more information bout the Czech trial? i only did know about the slovakian one
thanks
alex
I just know they do it here: http://rdg.angio.cz/Intervencni-neurolo ... e/Personal
I do not have any official information.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse