Dr Simka (Poland)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Edser
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Posts: 152
Joined: Mon Oct 26, 2009 3:00 pm
Location: Co.Cork.Ireland.

CCSVI

Post by Edser »

Good Morning TiMS,
CCSVI Victory Club Worldwide
http://ccsvivictory.club.officelive.com/default.aspx
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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irishmum
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Joined: Mon Nov 30, 2009 3:00 pm

Post by irishmum »

Hi Edser,

You mentioned sometime ago about seeing you neuro and reporting your improvements. Have you seen him/her yet be interesting to hear their thoughts opinions

M
Edser
Family Elder
Posts: 152
Joined: Mon Oct 26, 2009 3:00 pm
Location: Co.Cork.Ireland.

CCSVI

Post by Edser »

Good afternoon TiMS & Irishmum (Gaillimh)???
I didn't go & see my NEURO.The day i was suppose to go & visit him 02/02/2010,i e-mailed him asking was i going to meet him this time or someother Dr as per usual.He or his secretary has not responded to me.So i'm totally pi**ed off with him(NEURO) & the IRISH medical system.I'm making an appointment,true my own GP to go & visit an eye doctor & a vascular suergon... 1 ...Eye Dr because the sight appears to be coming back very slowly in my BLIND eye... 2 ... Vascular Suergon,to see if he has heard of CCSVI & too see if he might be interested in helping me out with my 3 mounth check-up.This would save me time & money by not returning to Katowice(Poland)
I don't have an update as i'm staying away from my laptop,as myself & Anna are getting out more for walk's,drives in the car.In general i'm getting my life back & it's not getting away from me,Life is for living... so ... i'm going to live it to the best of my abbility.

Slainte Mo Chara
Edser & Anna

...LiveTo Ride...Ride to Live...
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edser
Family Elder
Posts: 152
Joined: Mon Oct 26, 2009 3:00 pm
Location: Co.Cork.Ireland.

CCSVI

Post by Edser »

Good Morning TiMS,
Interventional Radiologist Dr Paul Crowe is now offering a MR protocol privately for CCSVI.Interventional Radiologist Dr Paul Crowe Spire Parkway Hospital,1 Damson Parkway,Solihull,West Midlands,B91 2PPTel. 0121 - 424 0287 (secretary, direct line at Birmingham Heartlands Hospital)E-mail paul.crowe@drpaulcrowe.com
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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ClaireParry
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Joined: Tue Oct 20, 2009 2:00 pm
Location: Worcestershire, U.K

Post by ClaireParry »

Wow Edser.

Thats great news, and he is only up the road from me!!
Edser
Family Elder
Posts: 152
Joined: Mon Oct 26, 2009 3:00 pm
Location: Co.Cork.Ireland.

CCSVI

Post by Edser »

Good Evening TiMS,
:lol: :lol: I'm in Aaaawwww here as i write this.I'm just after coming back from my 3rd walk today.Each walk was aprx 1000mtrs & my leg's are actually starting to function as legs.My Knees are bending now when i am walking & my heel touches the ground 1st...then the front of my foot,like GOD intended.I feel normal.
Slainte Mo Chara
Edser & Anna
Last edited by Edser on Tue Feb 16, 2010 10:09 pm, edited 1 time in total.
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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happy_canuck
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Joined: Sat Nov 28, 2009 3:00 pm
Location: Victoria, BC Canada
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Re: CCSVI

Post by happy_canuck »

Edser wrote:Good Evening TiMS,
:lol: :lol: I'm in Aaaawwww here as i write this.I'm just after coming back from my 3rd walk today.Each walk was aprx 1000mtrs & my leg's are actually starting to function as legs.My Knees are bending now when i am walking & my heel touches the ground 1st then the front of my foot,like GOD intended.I feel normal.
Slainte Mo Chara
Edser & Anna
That's fantastic news! I haven't hit the ground with my heel-toe correctly for years. With me, it's more like "shuffle, shuffle..."

Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
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fiddler
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Location: Fredericton, Canada
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Tracking project

Post by fiddler »

Edser, you old trout, I love to follow your progress - I've been following your story since before you went to Poland - but I can't find your posting in the CCSVI thread. Now why would that be?
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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berriesarenice
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Location: USA
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Post by berriesarenice »

Edser,
I'm thrilled for you! Please keep posting updates.

and Fiddler, I quite hope we'll be in Poland in the same part of April...this goes for anyone who uses a phrase like "you old trout..."
Reytan
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Post by Reytan »

Edser you are simply the best :!:
I love all yours and Anna’s updates, every inch of them :!:

Do it again “you old trout” :D
Last edited by Reytan on Tue Feb 16, 2010 9:23 pm, edited 1 time in total.
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Maestro
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Location: BC, Canada
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Post by Maestro »

Hi Edser,
...I feel normal...
That's wonderful :)

Thank you, it is also a great hope for the MS people.

love your updates.

V.
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ClaireParry
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Joined: Tue Oct 20, 2009 2:00 pm
Location: Worcestershire, U.K

Post by ClaireParry »

Hi Edser,

I'm praying that after my op at the end of March my recovery mirrors yours!!

Great stuff Edser

Claire
Edser
Family Elder
Posts: 152
Joined: Mon Oct 26, 2009 3:00 pm
Location: Co.Cork.Ireland.

CCSVI

Post by Edser »

Good Morning TiMS,
To-Day is OFICALLY my 1st anniversary with MS 17/02/2009-17/02/2010.PPMS??? That is the QUESTION??? As my NEURO has never confermed this.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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crocky
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Joined: Wed Nov 25, 2009 3:00 pm

Post by crocky »

All your progress reports are just fantastic - keep them coming, you are a real inspiration to many people on this site.
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AllyCanada
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Joined: Mon Nov 30, 2009 3:00 pm

Post by AllyCanada »

WOW fantastic Edser...I also love reading your posts...

Fiddler and berriesarenice do you both have your dates yet for Poland in April...I am there April 9-19th ..testing is on April 13th and procedure April 14th. I love the saying "you old Trout" as I live in Northern Manitoba and Trout is plentiful :)

stay well,
Ally
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