Help needed
Help needed
] I'm new here and in limbo. I am on oxybutynin (bladder), meclizine (dizziness), b12 shot, vitamin d supplement, I have nonspecific white matter something or other on my brain which requires a repeat mri in a few months, itchiness, twitching muscles, facial numbness, I stumble over one foot and drop things all the time, and my right eye freezes up daily. My neurologist keeps bumping my appointments out months at a time and just prescribes medications for the symptoms via his nurse practitioner over the phone. He told me I might have ms before my Mri, but he hasn't spoken directly to me since. Does this sound like ms and what should I do about the doctor?
Re: Help needed
First of all your neuro sounds like an asshole. Pardon my language but I don't have any patience for doctors who treat their patients so badly. You should try to dump him and get a different Neurologist as soon as possible. Does your medical insurance require a referral from a general practitioner? If so then tell your GP you want someone else. If not then start calling other neuros and see how soon you can get an appointment.
Re: Help needed
Hi,
Not my choice of words but I completely agree. This looks like the blind leading the blind.
One of the common side effects of Oxybutynin is dizziness. It interrupts a neurotransmitter called acetylcholine by blocking the receptors that bind to it. This can help with frequency but it's not a standard MS treatment. The side effect of both your medications is a dry mouth. Did you get put on Meclizine after you went on Oxybutynin. If if you did then your doctor is chasing his own tail. None of what you receive right now sounds like anything more than a band aid approach to your situation. Go somewhere else. I think you are dealing with people who are out of their depth. You need intensive investigation not half baked ideas based on superficial observations.
MRI's do not cure anything. I'd say someone is suspicious that you might have MS and wants to keep checking until you definitely do. That is an appalling way to manage a set of symptoms. It also implies they don't have a clue at this point so they add nothing useful. If you did have MS then I presume they will follow a text book type approach (and that is not very helpful). If you don't then they will sit on their bums till you get sick enough. You don't need more half formed ideas turning into treatments. Just go somewhere else.
Regards,
Regards,
Not my choice of words but I completely agree. This looks like the blind leading the blind.
One of the common side effects of Oxybutynin is dizziness. It interrupts a neurotransmitter called acetylcholine by blocking the receptors that bind to it. This can help with frequency but it's not a standard MS treatment. The side effect of both your medications is a dry mouth. Did you get put on Meclizine after you went on Oxybutynin. If if you did then your doctor is chasing his own tail. None of what you receive right now sounds like anything more than a band aid approach to your situation. Go somewhere else. I think you are dealing with people who are out of their depth. You need intensive investigation not half baked ideas based on superficial observations.
MRI's do not cure anything. I'd say someone is suspicious that you might have MS and wants to keep checking until you definitely do. That is an appalling way to manage a set of symptoms. It also implies they don't have a clue at this point so they add nothing useful. If you did have MS then I presume they will follow a text book type approach (and that is not very helpful). If you don't then they will sit on their bums till you get sick enough. You don't need more half formed ideas turning into treatments. Just go somewhere else.
Regards,
Regards,
-
lyndacarol
- Family Elder
- Posts: 3394
- Joined: Thu Dec 22, 2005 3:00 pm
- Contact:
Re: Help needed
Welcome to ThisIsMS, js3557.js3557 wrote:] I'm new here and in limbo. I am on oxybutynin (bladder), meclizine (dizziness), b12 shot, vitamin d supplement, I have nonspecific white matter something or other on my brain which requires a repeat mri in a few months, itchiness, twitching muscles, facial numbness, I stumble over one foot and drop things all the time, and my right eye freezes up daily. My neurologist keeps bumping my appointments out months at a time and just prescribes medications for the symptoms via his nurse practitioner over the phone. He told me I might have ms before my Mri, but he hasn't spoken directly to me since. Does this sound like ms and what should I do about the doctor?
Since you are receiving vitamin B12 shots, I assume you had B12 testing which found your level to be low. Initial testing usually includes these 4 tests: #1 a serum B12 test, #2 RBC folate test, #3 serum homocysteine test, and #4 methylmalonic acid test. B12 deficiency is one of many conditions that can manifest with neurological symptoms, such as yours. Will you share the actual B12 test number results with us?
Please be aware that the B12 shots given in doctors' offices in the US are cyanocobalamin, which is the cheapest form and which is not readily bioavailable (must be decyanated in the body first before it can be used). Methylcobalamin or hydroxocobalamin are more bioavailable and preferred by many experts.
Likewise for vitamin D, I assume your doctor ordered the 25-hydroxy D test. I am curious to know the actual test result numbers of this test that, hopefully, you had. Is your vitamin D supplement D2 or D3? How many IU (international units) do you take daily?
A doctor should not be "talking MS" (for which there is NO definitive test) until the other likely possible causes for the symptoms have been tested and ruled out first.