What happened to this forum???

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Post by girlgeek33 » Sat Aug 07, 2010 10:19 am

I have found my CCSVI/MonSter family to Be the most supportive, caring group of people I have ever known. Very few times have I seen any of them initiate negativity, with maybe the exception of 1 or 2 people, out of thousands! Tims has been an amazing source of information for me for the last 6 years, even though I'm new to the forums. We are up against some serious critics with CCSVI, sad but true. We all try to stay above the fray but when our character is called into question, it can be tough. We are all human, best to remember we make human mistakes sometimes...

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Post by IHateMS » Sat Aug 07, 2010 10:30 am

i do not read as much here.... perhaps i am only interested in the research and staying local

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Post by selkie » Sat Aug 07, 2010 10:59 am

This forum is very helpful - I especially appreciate Dr. Sclafani's thread, and also the kind people who have sent me PMs with advice. Sometimes I think I'm sure about a certain aspect of MS, only to find someone here present new evidence for me to consider.

I hope I've never been rude to anyone, because I've been to several MS forums, and this one has been the most helpful of all.

We're all in this together so to speak. And it's been so helpful to have a doctor here who is willing to share his knowledge, to have syposium videos posted for us to see, and the sharing of experiences.

We need each other because a lot of us don't have this kind of support from our personal medical team, friends, and/or family.

thanks to all


Post by concerned » Tue Aug 10, 2010 7:51 pm

AlmostClever wrote:I think the fact that you can't hide behind an anonymous identity on FaceBook would explain the better behavior there.


No more hiding!!! come on! let's party!!!!

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