A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Step 1: Assess/Correct Your Nutrient Imbalances
Replies: 16
by
jimmylegs » Wed Jun 22, 2011 5:07 pm
First post
If you have an MS diagnosis, you are likely to have a constellation of nutrient imbalances that have been extensively researched.
If you are...
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related info posted a few years back:
content excerpt:
Drug-Eluting Bioabsorbable Magnesium Stent (2004)
In this article, we describe the...
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Last post by jimmylegs
Sat Feb 09, 2019 1:30 pm
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Newbies Please Visit here first
Replies: 24
by
LR1234 » Sun Jan 17, 2010 11:40 am
First post
Hi Newbies,
If you have any questions about CCSVI Please write them here and we will do our best to answer them.
Before posting please check to...
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Dear Jimmyleggies and NHE....
can we please make this a sticky or something??
cheer
done! FYI, introduction section is available from the main...
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Last post by jimmylegs
Wed Jan 27, 2010 4:44 am
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Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
by
cheerleader » Tue Dec 16, 2008 6:42 am
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« Moderator's Note : This is the original thread that began the discussion of CCSVI here at ThisIsMS. Its status was changed to sticky to make it...
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Thank you so much for posting this video. I will discuss with my doctor about whether I should be taking B12. It's so cheap, it's worth trying...
- 1011 Replies
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Last post by violin
Fri Aug 07, 2020 5:34 pm
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CCSVI RESEARCH here
Replies: 190
by
mrhodes40 » Fri Apr 17, 2009 7:01 am
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This thread is to keep track of the research related to the CCSVI -Chronic CerebroSpinal Venous Insufficiency-- in one accessible place. Most all of...
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Ccsvi Clinic in Wroclaw, Poland is actually doing research in which we are trying to check if restoring correct blood circulation make an improvent...
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Last post by ccsviclinic
Fri Jan 05, 2018 2:46 am
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CCSVI - Youtube pre and post procedure / testimonial videos
Replies: 212
by
L » Fri Jun 11, 2010 6:28 am
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Here are videos which document MS patients before and after CCSVI treatment. The list is updated with new videos every few days so click the 'watch...
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Yesterday I had CCSVI procedure. Doctor said give me information about your situation 3 months later.
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Last post by husamsdu
Fri Apr 29, 2016 1:19 am
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Who are the BIG names in CCSVI ?
Replies: 138
by
ozarkcanoer » Mon Nov 16, 2009 5:03 pm
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The CCSVI Pioneers :
Dr. Roberto Bergamaschi , Director of the MS Center of Pavia (Italy)
Steven R. Brenner, MD , Associate Professor Department...
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Clean and technological ? What do you expect for 5.000euros in Italy. ..a country whose average salary is at about 1200e a month? Did you expect to...
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Last post by zjac020
Sat Feb 13, 2016 11:39 am
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Known Risks/Complications of Angioplasty and Venous Stenting
Replies: 129
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cheerleader » Sat Nov 28, 2009 9:14 am
First post
Complications reported by Dr. Zamboni regarding The Liberation Procedure
-headache, nausea
-restenosis and need for reballooning
Complications...
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I found the abstract here.
PERCUTANEOUS TRASLUMINAL ANGIOPLASTY OF AZYGOUS VEIN IN PATIENTS WITH MULTIPLE SCLEROSIS AND CHRONIC CEREBRO SPINAL...
- 129 Replies
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Last post by MarcF
Wed Jan 13, 2016 8:39 am
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Post if CCSVI treatment did NOT work for you
Replies: 339
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pklittle » Sun Jun 20, 2010 8:24 am
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I am wondering how much of an oddity I am. I had 3 blockages treated with angioplasty this past week, and I did not benefit at all. Not even the...
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I had the CCSVI done in Albany but stents clotted 3 mos later. Tried twice to re open but no luck. CCSVI didn't help me and maybe made me worse after.
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Last post by TeresaL
Fri Mar 20, 2015 4:54 pm
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Dr. Sclafani's CCSVI Case Studies
Replies: 2
by
NHE » Thu Nov 14, 2013 6:20 am
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To commemorate Dr. Sclafani’s thread, DrSclafani answers some questions , reaching 1,000,000 views, I have collected links to the CCSVI case studies...
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Thanks so much Dr. S and NHE and Cece. What a great idea. This is an amazing collection of works. Each case is so different and brings something new...
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Last post by Needled
Sat Nov 16, 2013 11:30 am
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making CCSVI charitable contributions
Replies: 29
by
ozarkcanoer » Sat Jan 16, 2010 6:19 pm
First post
written by cheer, and copied over from the FB page:
1. Buffalo Neuroimaging Center- now conducting research into diagnosing CCSVI
2. Stanford...
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The MRI Institute of Biomedical Research (Detroit, MI) is currently working a paper with a large cohort of MS-patients and healthy controls. We are...
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Last post by brocktoon
Mon Sep 09, 2013 8:19 am
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CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
by
radeck » Mon Oct 05, 2009 8:34 am
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The purpose of this thread is to get an overview of the experiences of patients getting tested for CCSVI and those receiving treatment (ballooning,...
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MS HISTORY
Birth Year: 1989
Date & type of neurological diagnosis: Diagnosed RRMS October 2011
MS treatments : Dietary Supplements
Lesion...
- 163 Replies
- 309025 Views
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Last post by artemis
Tue Mar 19, 2013 3:17 pm
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list of all trials
Replies: 11
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fogdweller » Sat May 22, 2010 10:06 am
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I want to start a topic which lists all the trials, where they are, and how you can contact them. Will those making entries please indicate what the...
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Just to make the thread complete, I add the Zamboni's Brave Dreams
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Last post by frodo
Sat Jan 12, 2013 10:54 am
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CCSVI- Glossary
Replies: 15
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cheerleader » Mon May 18, 2009 10:59 am
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Here are some common terms in the CCSVI handbook. Please PM me if there are additional terms you think we should add, or better definitions, and I'll...
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Im looking for a good definition for hyperperfusion
Increased blood flow above normal. The problem with CCSVI is hypoperfusion which would be...
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Last post by NHE
Wed May 23, 2012 9:11 pm
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CCSVI- just the facts, ma'am
Replies: 114
by
cheerleader » Wed Jun 03, 2009 4:24 pm
First post
CCSVI, Just the facts, ma’am
1. What is CCSVI?
Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from...
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I live in Florida, is there a place to explore CCSVI in my state?
Dr. Gerald A. Niedzwiecki in Clearwater of the Advanced Imaging and...
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Last post by FLJhawk
Mon May 07, 2012 8:58 am
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CCSVI Neutral or Critical Perspectives
Replies: 185
by
scorpion » Fri Aug 06, 2010 8:48 am
First post
This is an article just printed today.
URL
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again, to the tracking thread please, tracker. your info is important but this topic is not the appropriate place for it.
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Last post by jimmylegs
Mon May 07, 2012 8:06 am
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Dr. Sclafani's Thread Index (Pages 1-320)
Replies: 6
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AlmostClever » Thu Apr 29, 2010 10:15 am
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Moderator's Note: Thanks to AlmostClever for putting together this index of Dr. Sclafani's thread, DrSclafani Answers Some Questions . I have created...
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Page 251
Tests before treatment?
A Doppler Ultrasound interpretation
Thrombosis after ballooning
Page 252
Detecting thrombosis with ultrasound,...
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Last post by AlmostClever
Wed Feb 23, 2011 4:56 pm
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Francophones: suivis des traitements du CCSVI
Replies: 6
by
SickButHappy » Mon May 17, 2010 1:39 pm
First post
*for english, you can use this link:
Donc, l'idée de cette compilation est d'avoir un message/patient. Copiez le format et collez dans un nouveau...
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Nom : Petebou
Ville/Province: banlieue de Montréal, QC
Homme/Femme: H
Age: 47
Nombre d'années avec la SP: 19
Forme de SP : poussée-rémission...
- 6 Replies
- 13707 Views
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Last post by petebou
Thu Aug 19, 2010 6:03 am
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SCHEDA CCSVI
Replies: 2
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radeck » Sat Oct 24, 2009 11:15 am
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L’obiettivo della presente schedatura è di ottenere una visione d’insieme delle esperienze di pazienti colpiti da CCSVI che hanno subito o subiranno...
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Dear
Is it possible to do the same for people who are speaking French. I can help you to do it.
Friendly
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- 15853 Views
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Last post by INONU
Thu Feb 04, 2010 12:28 am
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Last post by Cece
Wed Jan 05, 2022 8:46 am
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Central Vein Sign: Now officially a biomarker
Replies: 2
by
frodo » Wed Nov 24, 2021 3:18 pm
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Remember that Central Vein Sign was born thanks to Zamboni, during his research about veins involvement and iron rims around the lesions. Now it is...
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not my wheelhouse, but i did immediately think 'periventricular' and found this
Multiple sclerosis: High prevalence of the 'central vein' sign in...
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- 335 Views
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Last post by jimmylegs
Sat Dec 04, 2021 6:30 am
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- 552 Views
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Last post by frodo
Fri Sep 17, 2021 3:01 am
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- 426 Views
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Last post by frodo
Wed Sep 15, 2021 11:02 am
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Beijing Institute--neurosurgeons treating jugular veins
Replies: 4
by
cheerleader » Thu Jan 10, 2019 3:45 pm
First post
Hi all,
Wanted to check in and share some ongoing research.
The Beijing Institute for Brain Disorders has been using stents to repair slowed jugular...
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Thanks. I still read about this topic as often as I can.
- 4 Replies
- 2190 Views
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Last post by frodo
Wed Sep 15, 2021 11:00 am
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JUGULAR VENOUS OUTFLOW DISTURBANCE
by
vesta » Sat Sep 11, 2021 10:27 am
JUGULAR VENOUS OUTFLOW DISTURBANCE (CEREBRAL VENOUS CONGESTION)
Sound familiar ?
As of 2018 we have a new « condition » which apparently is at the...
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- 465 Views
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Last post by vesta
Sat Sep 11, 2021 10:27 am
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Recently discovered hormone Irisin
Replies: 5
by
pairOdime » Thu Jan 19, 2012 3:21 pm
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Here is some very interesting information on a newly discovered hormone named Irisin. Some are suggesting possible implications for neurodegenerative...
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2021 Aug 24
Department of Neurology, Tianjin Neurological Institute, Tianjin Medical University General Hospital, Tianjin, China
Irisin levels in...
- 5 Replies
- 2190 Views
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Last post by Petr75
Wed Aug 25, 2021 10:58 am
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- 0 Replies
- 414 Views
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Last post by frodo
Mon Aug 23, 2021 8:08 am
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- 453 Views
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Last post by CureIous
Sat Jul 24, 2021 4:09 pm
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Overview of Venous Abnormalities
Replies: 2
by
Petr75 » Fri May 14, 2021 5:42 am
First post
2021 Apr 26
Department of Radiology, Wayne State University, Detroit, MI, United States
An Overview of Venous Abnormalities Related to the...
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Very good video. Albeit the presenter won't get an Oscar for a riveting performance.
The content is worth taking in.
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- 779 Views
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Last post by Scott1
Fri Jun 11, 2021 9:06 pm
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Is Dr. Sclafani still around?
Replies: 40
by
CCSVIhusband » Thu Aug 03, 2017 9:40 am
First post
Have been trying to get ahold of him. Former patient question.
Last post I saw from him was a few months ago, but saw someone say they had the...
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Obviously I am late to the CCSVI board. I only linked up with this after reading about it in LD.
I emailed Dr Sclafani recently using the email he...
- 40 Replies
- 17027 Views
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Last post by Jaded
Sun Apr 18, 2021 5:04 am
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Going for my 8th venoplasty
Replies: 7
by
anamishguy » Fri Mar 26, 2021 4:55 pm
First post
I have not been on this forum for a long time. My question is why would my jugulars keep restenosing? I have an appointment this next Thursday April...
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I'm interested in who is performing the procedure too. Thanks!
- 7 Replies
- 903 Views
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Last post by IronTinaMS
Thu Apr 15, 2021 9:21 pm
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Dural sinuses
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Petr75 » Wed Feb 03, 2021 12:42 pm
2021 Jan 18
Center for Brain Immunology and Glia (BIG), Washington University in St. Louis, USA
Functional characterization of the dural sinuses as...
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- 515 Views
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Last post by Petr75
Wed Feb 03, 2021 12:42 pm
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- 0 Replies
- 679 Views
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Last post by frodo
Tue Jan 12, 2021 9:27 am
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CCSVI doctors in Colorado
Replies: 13
by
shawnvirgo » Wed Feb 02, 2011 7:05 pm
First post
I am desperately wanting to find a doctor in Colorado, preferably in the Boulder, Denver area, who can help with my getting tested for CCSVI and...
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Does anyone know of a doctor in Colorado who does CCSVI?
- 13 Replies
- 3736 Views
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Last post by Chris1066
Fri Jan 08, 2021 10:17 am
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vascular abnormalities in MS lesions
Replies: 2
by
frodo » Tue Dec 22, 2020 12:35 pm
First post
Revealing vascular abnormalities and measuring small vessel density in multiple sclerosis lesions using USPIO
Conclusions
By inducing a...
Last post
Great images!! thanks.
- 2 Replies
- 711 Views
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Last post by frodo
Tue Jan 05, 2021 2:57 pm
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venous diameter changes in MS
by
frodo » Tue Dec 22, 2020 12:37 pm
Venous Diameter Changes in Chronic Active Multiple Sclerosis Lesions
CONCLUSION
Our findings demonstrate venous narrowing in chronic active and...
- 0 Replies
- 538 Views
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Last post by frodo
Tue Dec 22, 2020 12:37 pm
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vascular problems in MS retina
by
frodo » Tue Dec 22, 2020 12:34 pm
Angiography with optical coherence tomography as a biomarker in multiple sclerosis
Conclusions
MS produces a decrease in retinal vascularization...
- 0 Replies
- 506 Views
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Last post by frodo
Tue Dec 22, 2020 12:34 pm
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Dayton Interventional Radiology
Replies: 9
by
81Charger » Tue May 07, 2019 7:56 am
First post
Hi all,
I'm just wondering if anyone has heard anything from anyone that has had the procedure done at this place in Ohio. I didn't realize that...
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No unfortunately I never did get to go. I was booked for late March of this year, but then Covid hit and everything started shutting down. I'm from...
- 9 Replies
- 3705 Views
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Last post by 81Charger
Thu Dec 17, 2020 2:05 pm
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Article on CCSVI in Veins and Lymphatics 2020; Volume 9:9053
Replies: 1
by
ThisIsMA » Fri Jun 19, 2020 12:13 pm
First post
Here is a link to a new article in Veins and Lymphatics 2020; Volume 9:9053. If someone else has already posted this, my apologies. I couldn't find...
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Glad to see these studies. It was said at the time Brave Dreams reported that there was no control for venoplasty that failed to re-stablish flow....
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- 1102 Views
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Last post by AMcG
Mon Nov 09, 2020 10:19 am
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- 0 Replies
- 628 Views
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Last post by frodo
Sun Oct 25, 2020 11:49 am
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endothelin1 and ms
by
frodo » Thu Oct 22, 2020 11:18 pm
Conclusions
These results strongly suggest that the level of endothelin-1 plays an important role in the pathogenesis of immune-mediated CNS...
- 0 Replies
- 500 Views
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Last post by frodo
Thu Oct 22, 2020 11:18 pm
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Iron in MS cortical lesions
by
frodo » Fri Oct 02, 2020 8:42 am
Ex vivo MR microscopy of a human brain with multiple sclerosis: Visualizing individual cells in tissue using intrinsic iron
Conclusion...
- 0 Replies
- 723 Views
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Last post by frodo
Fri Oct 02, 2020 8:42 am
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angiogenesis disturbed in MS
by
frodo » Mon Sep 21, 2020 12:26 am
Serum Anjiogenesis Factors of Neuropilin-1 andNeuropilin-2 Levels in CIS and RRMS
Discussion
In the present study, we showed Neuropilin-1 and...
- 0 Replies
- 663 Views
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Last post by frodo
Mon Sep 21, 2020 12:26 am
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secret OTC drug could help remyelination
Replies: 8
by
Cece » Wed Oct 16, 2013 7:14 am
First post
This researcher -- who I won't name because it could lead MS patients to hound him for immediate details -- said he had developed a high-throughput...
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To revive an old topic (in light about the recent reports regarding Anavex2-73 )...
Dextromethorphan attenuates trimethyltin-induced neurotoxicity...
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- 2869 Views
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Last post by NHE
Thu Sep 10, 2020 2:15 am
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- 557 Views
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Last post by frodo
Thu Aug 20, 2020 3:51 am
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- 562 Views
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Last post by frodo
Thu Aug 20, 2020 3:03 am
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Cortical Grey Matter Hypoxia in MS
Replies: 3
by
frodo » Tue Jun 30, 2020 12:05 am
First post
Investigating the Relationship Between Cortical Grey Matter Hypoxia and Disability in Multiple Sclerosis
Abstract
Multiple sclerosis (MS) is a...
Last post
Multiple sclerosis disease progression: Contributions from a hypoxia–inflammation cycle
Runze Yang, Jeff F Dunn
First Published July 27, 2018...
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- 1025 Views
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Last post by ThisIsMA
Mon Aug 17, 2020 11:05 am
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- 655 Views
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Last post by ThisIsMA
Sun Aug 02, 2020 7:22 pm
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- 596 Views
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Last post by frodo
Mon Jul 20, 2020 9:47 am
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Finding A CCSVI Trained IR Closest To You/Me
Replies: 3
by
Patient105 » Wed Dec 12, 2012 3:49 pm
First post
Hello to all on the TIMS forums. This is my first post and I'm sure that it has been discussed before either in a related topic or with a topic...
Last post
Hey there. I'm running into your post 8 years after you posted it but I'm hoping to connect with you. Our stories have many similarities and I'm...
- 3 Replies
- 1696 Views
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Last post by darlabrown12
Wed Jun 24, 2020 4:48 am
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- 0 Replies
- 569 Views
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Last post by frodo
Tue Jun 23, 2020 8:57 am
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Angiopoietin-2
Replies: 2
by
Petr75 » Thu Mar 12, 2020 10:58 am
First post
2020 Mar 9
Wihuri Research Institute and Translational Cancer Medicine Program, Faculty of Medicine, University of Helsinki, Helsinki, Finland...
Last post
yes
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Angiopoietin-2 Blockade Ameliorates Autoimmune Neuroinflammation by Inhibiting Leukocyte Recruitment...
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- 3326 Views
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Last post by Petr75
Fri Jun 19, 2020 9:49 am
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Endothelin-1 activates microglia
Replies: 2
by
frodo » Tue May 05, 2020 2:29 am
First post
Could this be the relationship between CCSVI and MS?
Endothelin‐1 Stimulates Microglia Cells: Role in Multiple Sclerosis
Multiple Sclerosis (MS)...
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Hi Frodo, This seems like an excellent study that Joan should know about if she hasn't already seen it. I don't see a link to the study though. Can...
- 2 Replies
- 796 Views
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Last post by frodo
Fri Jun 19, 2020 1:34 am
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