My experience with high doses vitamin D
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My experience with high doses vitamin D
I just wanna share my experience with d3.
I live in Europe but I discovered this treatment on internet actually..one day I saw this video , I begun to talk with pacients who are doing this protocol, on facebook or mail, I discovered the treatment, I made an appointment with the doctor. His name is Cicero Galii Coimbra, he is neurologist and lives in Brasil, Sao Paulo.
I am taking a really high dose d3 (60 000 ui d3 daily..the dose is calculated for me, in base of my situation, my disease history, my simptoms, my weight, my pth level, my tests result).To avoid hypercalciuria, I must drink daily 2.5 lts water (these higher quantity of liquids assures a urine volume around 2500 ml which allows calcium dilution eliminated in the urine and avoids excessive concentration of urinary calcium - as when calcium is diluted it does NOT get deposed in the kidney, preserving renal function), I must not eat dairy products, not take calcium supplements and not take nephrotoxic drugs. And I must avoid stress and infections.
U must understand that vitamina d is not toxic, the problem is the calcium, who must be controlled. I make more tests, but the most important is the calcium in the urine in 24 hours. If someone tells me that he took d3 and had no effect, I will tell him that he did not took the right dose, not mainteined a certain d3 level.
In 2012 I had new lesions, new simptoms, I could barely walk, I had big equilibrium problems, I felt so tired,my edds was 4.5.
I am following this treatment by more than 16 months, and I had so many improvements. Actually in july this year I was able to go alone in Brasil to my appointement, I don t have equilibrium problems anymore, I don t wake up tired anymore, I can walk without help where I want..who sees me, does not think that I have MS or any disease...I have a normal life again...
This december, on 11 december, I did my MRI. Result: no new lesions, no active lesions, so no relapses. It's my first MRI with such a short answer. Every day I just feel better. This is my first December, since I discoverd MS, when I am not in the hospital doing 3 or 5 grams of cortisone. In general in the past I had every year 3 or 4 relapses.. This is the first time when from more than 16 months I had no relapses..I just did not knew in all this years how is not to have relapses, I just got used to those..
I DON'T suggest anyone to take such a big dose without a doctor's supervision, but I suggest to do more research on vitamin d. I also did a facebook page with good studies and articles https://www.facebook.com/pages/Vitamin- ... 70?fref=ts
please do the test 25 oh d3 to see the d3 level, because u would be surprised how many of u are deficient. and pls do more research on PubMed or Scirus.com
this is my experience and I ask u to respect it..
http://mscure.aussieblogs.com.au/the-bl ... eatment-3/ this is a blog in english of a pacient of Coimbra who lives in Australia..
wish u all all the best and a happy new year!!!:)
Re: My experience with high doses vitamin D
I have issue with vitamin D supplementation, I have correct level of d25OH but high calcium, I will have follow your suggestions and to try drink more water because I usually drink no more than 1 liter per day (I avoid drinking much because of frequent urination/continious UTI).
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Re: My experience with high doses vitamin D
http://ajcn.nutrition.org/content/86/3/645.long u can take without problems 10.000 ui D3 daily "Within 15 min of full-body exposure at midday during the summer, white adults can produce vitamin D equivalent to an intake of 250 μg (10 000 IU) (30). In summary, we have shown that serum concentrations of 25(OH)D in the range of 400 nmol/L (160 ng/ml) can be attained without causing hypercalcemia or hypercalcuria, and they do not cause adverse clinical or paraclinical effects. These findings are encouraging for larger-scale clinical trials in MS and in other medical conditions that may respond to vitamin D. The present study provides an objective confirmation that the recent proposal by Hathcock et al is appropriate—ie, a UL of 250 μg/d (10 000 IU/d) for vitamin D intake can be justified".
Re: My experience with high doses vitamin D
I came across some other interesting articles, not about really really high vitamin D doses, but still high. The first one is called "Effect of High-Dose Vitamin D3 Intake on Ambulation, Muscular Pain and Bone Mineral Density in a Woman with Multiple Sclerosis: A 10-Year Longitudinal Case Report" and can be found here:http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3497336/. It's about a woman in the Netherlands who was diagnosed with MS in 1990 (but had symptoms long before that) who started vitamin D therapy in early 2000. After a few years she started taking 6000IU/day. Over the course of approximately 10 years she regained much of walking ability she had lost in the 90's.
The second one I wanted to share is called "If I had clinically isolated syndrome with magnetic resonance imaging diagnostic of multiple sclerosis, I would take vitamin D 10,000 IU daily: Yes" and can be found here: http://msj.sagepub.com/content/19/2/137.long. An interesting read by Dr Correale, the same person who wrote a few very nice articles about the effect of hosting helminths on people with MS.
Re: My experience with high doses vitamin D
A client emailed that he heard a doctor on a talk show recommending 5,000 IU of Vitamin D instead of the RDA of 400 IU. He asked me what I thought.
I said that everyone thinks there’s a Vitamin D deficiency epidemic but I’m not convinced. The big question is, why all of a sudden are we so deficient. What could Vitamin D be responding to and what do the low levels indicate?
Here’s one possible answer. Vitamin D is really a hormone with a feedback loop to calcium. When the body has enough calcium less Vitamin D is required and the levels drop.
We are a calcified country, so the effect of high calcium may be lower levels of Vitamin D. And without understanding the complex chemistry involved, most people think we just need to take more.
But MORE Vitamin D pulls in more calcium and bumps out magnesium, making people more magnesium deficient.
Taking high dose Vitamin D (anything above 2,000 IU) will also use up your magnesium because this mineral is required to change the supplemental/storage form of Vitamin D into active Vitamin D.
Not everyone is going to suffer from too much Vitamin D and enough people seem to benefit from it (at least in the short term) that it’s not going to ring any alarm bells for many years. After all, it took about 3 decades for us to realize that high dose calcium supplementation was causing heart disease and soft tissue calcification when not properly balanced with magnesium.
Do your research before taking high dose Vitamin D. Google the benefits AND the dangers before you make a decision. If you do a Vitamin D blood test, remember a mid range level is better than a high level.
http://drcarolyndean.com/2013/03/too-much-vitamin-d/
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Re: My experience with high doses vitamin D
I am convinced that my kidney stone "adventure" came as the result of taking 8000 IU of vitamin D3 daily for a year and a half. For me, high doses are a bad idea.
Re: My experience with high doses vitamin D
we know that reports of hypercalcemia with high dose vit d3 also tend to have a calcium supplement in the picture.
i strongly suspect re the recent reports about higher heart disease mortality in those who take supplements that any increased risk findings would be related to consistent messaging re calcium and the prevalent availability and use of candy-like calcium chews etc.
take control of your own health.
pursue optimal self care, with or without a diagnosis.
Re: My experience with high doses vitamin D
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Re: My experience with high doses vitamin D
I would hope a new thread is started in Treatments.
PN
Hayes inspired Calcitriol+D3 2013-2014
Coimbra Protocol 2014-16
DrG B12 Transdermal Spray 2014-16
Progesterone 2015-16
Low-Dose Immunotherapy 2015-16
My Current Regimen http://www.thisisms.com/forum/regimens-f22/topic25634.html
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Re: My experience with high doses vitamin D
Re: My experience with high doses vitamin D

take control of your own health.
pursue optimal self care, with or without a diagnosis.
-
- Family Elder
- Posts: 683
- Joined: Mon Sep 04, 2006 2:00 pm
- Location: LeftCoast Canada
- Contact:
Re: My experience with high doses vitamin D
PN
Hayes inspired Calcitriol+D3 2013-2014
Coimbra Protocol 2014-16
DrG B12 Transdermal Spray 2014-16
Progesterone 2015-16
Low-Dose Immunotherapy 2015-16
My Current Regimen http://www.thisisms.com/forum/regimens-f22/topic25634.html
Re: My experience with high doses vitamin D
Re: My experience with high doses vitamin D
I started on 1.000 IUs and worked up to 30.000 IUs daily. Then cut down to 15.000. Highest level of D3 ng was 180 a few months back. I have also notice (Jimmylegs you may remember this), that when Zinc and Mag were optimized, D3 levels increased to (clearly they are all working together).
I have always drank approx 1.5-2lts of water, and eliminated dairy and gluten from my diet upon being diagnosed.
I have discussed comencing the vitamin D3 protocol with the a clinic in Portugal that works with the Protocol. Based on my age, weight and PTH level I will start with 60.000 IUs. Clearly there is a risk and the protocol has to be carefully followed to avoid renal issues. It's hard to take such drastic actions to be honest, especially as I have made so many lifestyle changes after my diagnosis that I know have helped maintain me stable.
However, I think we forget that the odds are NOT in our favour. We cannot have it all. As with cancer, there will never be a unique miracle cure for this disease, I am convinced of that. Some "cured" their MS by treating heavy metals, others by treating candida, others by eliminating gluten, others with CCSVI, others with Vitamin D, others by treating Lyme...what that tells me is that the underlying cause in each case is different, I do not need clinical trials to see that. It is scary to work with such high doses of a hormone, but then I just need to read that Tecfidera has now been found to also cause PML, or see the statistics on how many people with RRMS go on to a progressive form of the disease, to realise that the risk is worth taking. We cannot have it all.
I do not think my 9 brain lesions will be resolved by high doses, as they are "old" and the neuros have no way of knowing when they appeared. However the only lesion that was ever active and that was found when I had the relapse was on the cervical spine, im curious to see what happens with that lesion.
If anyone wants more information, just PM me. And lets all remember that there is no holy grail to this disease. Unfortunately.
Re: My experience with high doses vitamin D

take control of your own health.
pursue optimal self care, with or without a diagnosis.
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