Anyhow, fast forward to a few weeks ago, my double vision has gotten worse, now in the right eye as well- and I have right eye pain when I move it.. Kind of like when you have the flu but a little worse. The eye/sclera is a little more red than normal I think..
So, I went and saw a neuro opthamologist for the first time yesterday. He said my left eye (the first one effected months ago) looks like it has lost some nerve fibers- showed past optic neuritis .. My right eye (now symptomatic/painful one) looked normal on his exam.. so then he did a test similar to VEPs (had those in the hospital months back - at the time they had to re -run the left side, but ended up stamping a normal on it).. i had the electrodes on my face/forehead and then some underneath my lower eyelid (anyone know what that test is called?) apparently it is similar to VEP's and shows brain/eye "connection".. my right eye was "inconsistent".. So then he decided to repeat my MRI- including orbital studies this time (i have had 2 MRI's in the last year- first one no lesions, 2nd one- one lesion in brain, and possible one in c spine).
So, I was curious if this sounds like an acute ON going on my right eye? this soreness upon movement? also when I look at colors and look away, its like the colors lag or blur for a second... and at times when I look away from colors they change- example- the red looks mometarily blue/greenish? I did pass all of those color tests at the dr yesterday..I am now on IVIG and plaquenil, but if this is by chance MS the treatment is a bit different, so I just want to be on the right tx.
Thanks for any advice!!
I had a dull pain that was very sensetive to touch when I washed my face.
I also lost almost all color vision in my right eye and lost about 20% of my field of vision. A large blind spot in upper right area of my vision.
This made driving a car very tricky. I could not see the traffic lights on poles on the right side when I got close to them.
A dull headache down my left side of my head and face.
increasingly blurred vision in my left eye and after about 5 days vision gone in lower 70% of field of vision
colour wash out - red
Some pain behind eye
Acute attack resolved quickly with IV steroids
Since then about 95% return of function. Left eye isnt quite as good as right. On going issue with dry eye and sinus trouble on that side.
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But I noticed you said you have lesions on your spine also. There is a disease that effects the spine and optic nerve which is called Neuromyelitis-Optica or NMO (or Devics disease). There has been an antigen identified with this disease, and there is a blood test you can have done to look for this antigen which is called NMO IgG. You might want to ask your doctor about this test.
Best of luck to you.
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