New treatment forum - Ocrevus

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New treatment forum - Ocrevus

Post by NHE » Mon Jan 02, 2017 1:50 am

We now have a new forum dedicated to the discussion of Roche's new monoclonal antibody treatment for MS, Ocrevus also known as Ocrelizumab.

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Re: New treatment forum - Ocrevus

Post by Tmcbroom » Wed Feb 21, 2018 3:43 am

I am just coming off Tysabri, I will be starting Ocrevus very soon. I am very afraid, of the side effects and will this even work. I was diagnosed 5 years ago, I have been on copaxon , Avonex and Tysabri. Tysabri was supposed to be the 1 , the 1 that will make the difference.
I really liked it, but I had 2 relapse in less than a year. This last 1 left permit damage (speech, memory the ability to form words ). Please tell me who is on it and what do you think???

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Re: New treatment forum - Ocrevus

Post by jimmylegs » Wed Feb 21, 2018 7:47 am

hi TmcB, i'm afraid i can't comment re the drug treatment side of things but am curious what you may have tried along the health promotion track?

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Re: New treatment forum - Ocrevus

Post by Kheuer » Wed Oct 31, 2018 3:43 am

Symptoms started in early 2017, loss of red saturation in 1 eye. Then the beaten all night with a stick. Formally diagnosed April 2018, Ocrevus started May 2018. Male age 46 at diagnosis.

Zero side effects except for horrible reaction to tetanus shot. After research, B cells ferry tetanus toxoid to T cells, Ocrevus killed B cells, leaving toxoid circulating. Fever for 3 days, and muscle cramps, joint pain. Roche and Genentech have been informed.

Every single set of data shows ocrevus is basically a wonder drug. Not only does it stop progression after a certain length of treatment, new data shows recovery of function in some.

I had to use my arms to lift my legs out of the car, after the first infusion of ocrevus, I can now mow my .62 acre yard with a walk behind.

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