I feel as if everything is progressing at the same alarming rate. I have been told after the first infusion I should feel better but I am not.
I am PRMS.
so far, from my perspective the episode taught me only not to get overconfident followed by lazy re self care!
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
I posted a link in a response to vender’s other current post re:walking. Don’t have time to dig up that link again but it lists some micronutrients essential to Rituxan’s (cd20 mab like ocrevus) effectiveness.
Rituxan seems to have done well by me. Should be starting round two tomorrow but billing issues. Sigh.
I'm supplementing my Ocrevus (only initial dual infusions in May so far, 1 month post diagnosis), with a partial Klenner protocol.
I'm also trying to source ascorbyl-2 phosphate, it has been shown to increase oligodendtocyte differentiation and proliferation, and increase myelination by 30%. And it's a fatty acid form of vitamin c that has been fed to livestock for years.
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