Search found 136 matches

by shaight
3 years ago
Forum: Copaxone
Topic: Copaxone patent invalidated again
Replies: 2
Views: 3625

Re: Copaxone patent invalidated again

Good. Maybe those who cannot afford it will be able to now.
by shaight
5 years ago
Forum: Stem Cells
Topic: Stem Cell Treatment Testimonials
Replies: 34
Views: 6664

Re: Stem Cell Treatment Testimonials

slov - you should delete your post about Dr Burt. A women did develop an infection and unfortunately passed away due to septicaemia in India under the care of Dr Amit. RIP Several people have gone thru HSCT with Dr Amit and are doing fine today. Every type of treatment or operation has their risks w...
by shaight
5 years ago
Forum: Stem Cells
Topic: Stem Cell Treatment Testimonials
Replies: 34
Views: 6664

Re: Stem Cell Treatment Testimonials

Good luck really really. But in my opinion chemotherapy treatments are for cancer. These HSCT treatments have been going on in different parts of the world for years. My neuro told my the disease can still come back and some patients have died due to this treatment. Don't listen to your neuro when ...
by shaight
5 years ago
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 46556

Re: My CtrlAltDel - Status

Asher, glad to hear you are feeling 'reasonably good'. Best moving forward
by shaight
5 years ago
Forum: Copaxone
Topic: Cpoaxone and swollen lymph nodes
Replies: 1
Views: 2165

Re: Cpoaxone and swollen lymph nodes

I have switched to every other day...or so. I usually inject 5 days a week and that has helped me personally. It also makes a big difference if I have any 'trauma' during the injection. Sometimes it will hurt a little or I'll have some blood and if that happens I will usually feel some swelling in m...
by shaight
5 years ago
Forum: Copaxone
Topic: every other day
Replies: 7
Views: 1674

Re: every other day

Sophie - how do you feel clinically? I stopped getting mri's as my last one was depressing yet I did not feel any worse clinically. I think lesions will come an go and as long as you feel ok then that's all that matters. At the point I begin to slide clinically is when I will pursue HSCT. There has ...
by shaight
5 years ago
Forum: Copaxone
Topic: every other day
Replies: 7
Views: 1674

every other day

I've been on the eod plan for ten months now with no relapses. I went this route due to swollen lymph nodes. The past few months I've increased to both weekend days and eod mid-week. Sometimes this disease just makes me wonder that when the time is right it will just rear its ugly head just as it hi...
by shaight
6 years ago
Forum: Copaxone
Topic: Swollen painful glands anyone?
Replies: 9
Views: 10795

Re: Swollen painful glands anyone?

Lymphadenopathy is a side effect of Copaxone. Personally, I'd rather not take minocycline as I don't believe this to be an infection, but more an effect from introducing Copaxone to your system. I am now off Copaxone.

http://jnnp.bmj.com/content/70/3/415.full
by shaight
6 years ago
Forum: Copaxone
Topic: Swollen painful glands anyone?
Replies: 9
Views: 10795

Re: Swollen painful glands anyone?

trying to find the bottom line on this issue but I have yet to read a definitive report as to exactly what the long term prognosis is if one continues on with the lymph nodes being swollen.
by shaight
6 years ago
Forum: Copaxone
Topic: Copaxone and Cancer?
Replies: 7
Views: 6883

Re: Copaxone and Cancer?

I just discovered that I have Lymphadenopathy now that I've been taking Copaxone since June. I trying to make sense of exactly what is going on, but I'm still quite lost reading the studies. I cannot imagine it is a good thing.

http://www.jimmunol.org/content/170/9/4483.long
by shaight
6 years ago
Forum: Copaxone
Topic: Why not butt area for injection?
Replies: 6
Views: 4915

Re: Why not butt area for injection?

it seems like most people do inject in their butt area. if you look closely at the chart it shows the butt area...at least that is how i look at it. it's kind of vague imo...below the waist is the verbiage states and that is a little different for everyone. most of the upper area of that zone would ...
by shaight
6 years ago
Forum: Copaxone
Topic: 2 months on Copaxone
Replies: 8
Views: 3155

Re: 2 months on Copaxone

seems like you could develop and allergy to copaxone over time, right? i have no idea, but my wife became allergic to shellfish in her twenties...she had eaten it her entire life up until that point. LDN is Low Dose Naltrexone. the whole thing is overwhelming when you are first diagnosed. it's overw...
by shaight
6 years ago
Forum: Medical Marijuana
Topic: Cannabis
Replies: 13
Views: 8197

Re: Cannabis

I was wondering..does anyone think smoking cannabis can actually make your MS worse? I don't think it will make your 'MS' worse, but maybe it will make you feel worse. If it provides some relief then i would do it. If it doesn't, then i wouldn't. I personally don't worry about it. I smoke an incred...
by shaight
6 years ago
Forum: General Discussion
Topic: ON recovery, how long did it take you?
Replies: 5
Views: 814

Re: ON recovery, how long did it take you?

mine became better over the course of 4-6weeks. i had it in one eye and they termed it double vision, although i never saw two of anything. if i closed the one eye it was fine. it has only occurred once for me. don't beat yourself up about the avonex. it may not be connected at all and i'm assuming ...
by shaight
6 years ago
Forum: Copaxone
Topic: Coverage for Copaxone
Replies: 17
Views: 6454

Re: Coverage for Copaxone

NHE- thanks for the info. honestly though, i cannot read those as my stress level doesn't need to get any higher due to my MS! it's good to see that their patent is expiring, hopefully this will be available to those who want it. we always have whole foods, supplements, exercise, and a positive atti...