Search found 8 matches

by katyb76
Wed May 04, 2011 5:20 pm
Forum: Introductions
Topic: Hello!
Replies: 15
Views: 2923

Thank you so much for being here, you have been more helpful than you could imagine!
by katyb76
Tue May 03, 2011 8:47 am
Forum: General Discussion
Topic: Sinus congestion, ear plugged, pressure in cheek
Replies: 13
Views: 7022

it's always there, I am on betaseron, was on avonex for 6 years, also on a ton of oral meds, it seems to get very irritating during allergy season, it just doesn't make sense that it can't be related because it messes with my right eye's vision as well.
by katyb76
Mon May 02, 2011 5:05 pm
Forum: General Discussion
Topic: Sinus congestion, ear plugged, pressure in cheek
Replies: 13
Views: 7022

Sinus congestion, ear plugged, pressure in cheek

Does anybody else have these symptoms? My right ear has been plugged for almost 3 years, and my right cheek feels full, almost similiar to a sinus infection. If MS clogs jugulars, this would make a lot of sense, but why hasn't anyone tested me for CCSVI? My optic neuritis also coincidentally occured...
by katyb76
Mon May 02, 2011 2:39 pm
Forum: Introductions
Topic: Hello!
Replies: 15
Views: 2923

Nice to meet you! I was happy to stumble across this as well. I am 34 years old, divorced and now unable to work outside my home. My kids have seen me at my worst (wheelchair bound after rt rotator cuff surgery, so only able to use my left hand) and they have been great. You are right that your kids...
by katyb76
Sun May 01, 2011 4:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7281

Just curious for lymenurse, have they totally ruled out MS? I am asking because I know 3 people that were initially diagnosed with lyme's then MS after no improvement and MRI verification.
by katyb76
Sun May 01, 2011 4:26 pm
Forum: Introductions
Topic: Let's try it
Replies: 3
Views: 1157

thank you so much! I'm very new to all this, well not the MS part, that I have know about for over a decade.
by katyb76
Sun May 01, 2011 3:39 pm
Forum: Introductions
Topic: Let's try it
Replies: 3
Views: 1157

has anyone on here actually had ccsvi? successful or not please share your story.
by katyb76
Sun May 01, 2011 9:59 am
Forum: Introductions
Topic: Let's try it
Replies: 3
Views: 1157

Let's try it

Hi! I am new to this site and web forums all together. I am a 34 yr old disabled RN and mom of 2 great kids. MS has robbed me of my ability to work outside my home for the past 3 years. I recently had a baclofen pump placed, then removed 18 months later. I am so curious about CCSVI and if it really ...

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