Search found 80 matches

by HUD45
Fri Jul 20, 2018 6:21 am
Forum: Stem Cells
Topic: Domestic Stem cell therapy
Replies: 16
Views: 2792

Re: Domestic Stem cell therapy

Exactly my point. A completely dismissive statement. Yes I am looking for information here but that is what this site is really about in my opinion. I am surely not looking for negative opinions of folks that really have no personal experience. Open eyes and minds are far more likely to educate ones...
by HUD45
Thu Jul 19, 2018 7:20 am
Forum: Stem Cells
Topic: Domestic Stem cell therapy
Replies: 16
Views: 2792

Re: Domestic Stem cell therapy

Thank you Tif and glad to hear you have had some relief. All I was looking for here was information anecdotally from people with experience. Lectures on the media's and others assertion that all stem cell procedures are a last resort are really just opinions. There is no consensus worldwide. I agree...
by HUD45
Fri May 04, 2018 8:33 am
Forum: Stem Cells
Topic: Domestic Stem cell therapy
Replies: 16
Views: 2792

Domestic Stem cell therapy

Hi. I have been researching stem cell procedures and various clinics that do the therapy. I am wondering if anyone here has experiences to share. The type I am learning about now involves umbilical stem cells directly placed into the lumbar spinal canal (intrathecal ). A one time shot, outpatient ba...
by HUD45
Fri Apr 27, 2018 8:58 am
Forum: General Discussion
Topic: MS pain
Replies: 9
Views: 1107

Re: MS pain

Yea, hornets nest for sure. I have been experiencing more and more intense pain than I ever anticipated the last year. I am ppms diagnosed in 2007. It's NOT in my head or due to the fact that my diet and nutrition is lacking. It is real... I take no pain meds except med cannabis. I really never unde...
by HUD45
Tue Sep 26, 2017 5:53 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 6855

Re: Ocrevus questions

Thanks Cam,

Glad that it is definitely helping.....a great testimonial....Can you tell us what type of ms you have and are the others in the group the same?

HUD
by HUD45
Fri Sep 22, 2017 6:16 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 6855

Re: Ocrevus questions

I had my second Ocrevus infusion a couple weeks ago.....No side effects, no benefit yet either.....Time will tell

Genentech was very easy to work with. They called me and set up the assistance program over the phone.

I hope it helps and soon!

HUD
by HUD45
Wed Aug 30, 2017 6:08 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 6855

Re: Ocrevus questions

Hello again... I had my first 300 mg infusion of Ocrevus last Thursday. It went pretty well, about 5 hours or so. No obvious side effects. I have been fatigued since though, not sure if related to the infusion. Next week I will get the second 300mg infusion and then see how it goes. It took almost t...
by HUD45
Wed Jun 07, 2017 6:45 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 6855

Re: Ocrevus questions

Thanks NHE for the prescribing info....pretty much sums it up, trial and error, just like a lab rat. Just hope it works. I will be consulting with my neuro soon and making a decision.... Just have not seen many testimonials. As a PPMSer, I just don't see many other options that I already have not tr...
by HUD45
Wed Apr 26, 2017 6:28 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 6855

Ocrevus questions

Hi. I am still wondering if there are patients out there starting the Ocrevus infusion process? From insurance authorization to infusion and side effects, I am looking for testimonials....How is it going? Is it helping?

Gotta be some experiences out there, love to hear about them.....

HUD
by HUD45
Tue Apr 04, 2017 6:32 am
Forum: Ocrevus (Ocrelizumab)
Topic: FDA approves its first drug for PPMS patients
Replies: 5
Views: 2406

Re: FDA approves its first drug for PPMS patients

I am really curious to hear any testimonials of PPMS or SPMS patients getting treated with ocrevus.. From what I read, it is most effective on younger patients and also with active lesions on mri. I like the fact that it targets only the CD20 positive B cells, thus leaving the rest of the immune sys...
by HUD45
Tue Apr 04, 2017 6:06 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: How much does this treatment cost?
Replies: 4
Views: 1759

Re: How much does this treatment cost?

Compared to a CRAB drug, Coimbra protocol fits the budget.... Figure under 100$ a month for supplements......There are blood tests and doctor consultations required as well. Cost here depends on insurance coverage.

HUD
by HUD45
Tue Feb 21, 2017 8:31 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Healthy Origins 10,000 iu gelcaps
Replies: 3
Views: 996

Re: Healthy Origins 10,000 iu gelcaps

I use the Biotech vitamin D. It can be found in 50,000iu for reasonable price. It works for me because this is my daily dose based upon PTH level and other blood and urine analysis. The stuff is high quality, recommended by the Vit. D counsel.

HUD
by HUD45
Tue Feb 07, 2017 9:15 am
Forum: Low Dose Naltrexone
Topic: Help!!!
Replies: 5
Views: 2034

Re: Help!!!

Yes, it seemed like the timing of my exacerbation was the same as when I started LDN. So, I stopped it for a month and re-started LDN more gradually. I had increased spasticity and pain. I have been taking LDN for 4 months now. I started the LDN at 1.5 mg and increased to 3.5 mg over a month. You co...
by HUD45
Mon Feb 06, 2017 7:08 am
Forum: Low Dose Naltrexone
Topic: Help!!!
Replies: 5
Views: 2034

Re: Help!!!

It sounds like you are in the middle of an exacerbation in symptoms Galac. Best to stop LDN until you stabilize in my opinion. Once you have stopped exacerbation, perhaps try the LDN again by slowly titrating your dose up to a tolerable level. It took me two tries to start LDN, gradually is best. Be...
by HUD45
Fri Jan 13, 2017 8:02 am
Forum: Stem Cells
Topic: Stem Cell Therapy Roll Call - Have you had Stem Cell Therapy
Replies: 13
Views: 3251

Re: Stem Cell Therapy Roll Call - Have you had Stem Cell The

Oh, by the way. I have heard there are support groups both for prospective HSCT MSers and for those who have had failures as well on Facebook......I am not a Facebooker but I guess there is a ton of information and testimonials there for anyone researching HSCT or recovering or have had failure. Bes...