This Is MS Multiple Sclerosis Knowledge & Support Community

Exactly my point. A completely dismissive statement. Yes I am looking for information here but that is what this site is really about in my opinion. I am surely not looking for negative opinions of folks that really have no personal experience. Open eyes and minds are far more likely to educate ones...

Thank you Tif and glad to hear you have had some relief. All I was looking for here was information anecdotally from people with experience. Lectures on the media's and others assertion that all stem cell procedures are a last resort are really just opinions. There is no consensus worldwide. I agree...

Hi. I have been researching stem cell procedures and various clinics that do the therapy. I am wondering if anyone here has experiences to share. The type I am learning about now involves umbilical stem cells directly placed into the lumbar spinal canal (intrathecal ). A one time shot, outpatient ba...

Yea, hornets nest for sure. I have been experiencing more and more intense pain than I ever anticipated the last year. I am ppms diagnosed in 2007. It's NOT in my head or due to the fact that my diet and nutrition is lacking. It is real... I take no pain meds except med cannabis. I really never unde...

Thanks Cam,

Glad that it is definitely helping.....a great testimonial....Can you tell us what type of ms you have and are the others in the group the same?

HUD

I had my second Ocrevus infusion a couple weeks ago.....No side effects, no benefit yet either.....Time will tell

Genentech was very easy to work with. They called me and set up the assistance program over the phone.

I hope it helps and soon!

HUD

Hello again... I had my first 300 mg infusion of Ocrevus last Thursday. It went pretty well, about 5 hours or so. No obvious side effects. I have been fatigued since though, not sure if related to the infusion. Next week I will get the second 300mg infusion and then see how it goes. It took almost t...

Thanks NHE for the prescribing info....pretty much sums it up, trial and error, just like a lab rat. Just hope it works. I will be consulting with my neuro soon and making a decision.... Just have not seen many testimonials. As a PPMSer, I just don't see many other options that I already have not tr...

Hi. I am still wondering if there are patients out there starting the Ocrevus infusion process? From insurance authorization to infusion and side effects, I am looking for testimonials....How is it going? Is it helping?

Gotta be some experiences out there, love to hear about them.....

HUD

I am really curious to hear any testimonials of PPMS or SPMS patients getting treated with ocrevus.. From what I read, it is most effective on younger patients and also with active lesions on mri. I like the fact that it targets only the CD20 positive B cells, thus leaving the rest of the immune sys...

Compared to a CRAB drug, Coimbra protocol fits the budget.... Figure under 100$ a month for supplements......There are blood tests and doctor consultations required as well. Cost here depends on insurance coverage.

HUD

I use the Biotech vitamin D. It can be found in 50,000iu for reasonable price. It works for me because this is my daily dose based upon PTH level and other blood and urine analysis. The stuff is high quality, recommended by the Vit. D counsel.

HUD

Yes, it seemed like the timing of my exacerbation was the same as when I started LDN. So, I stopped it for a month and re-started LDN more gradually. I had increased spasticity and pain. I have been taking LDN for 4 months now. I started the LDN at 1.5 mg and increased to 3.5 mg over a month. You co...

It sounds like you are in the middle of an exacerbation in symptoms Galac. Best to stop LDN until you stabilize in my opinion. Once you have stopped exacerbation, perhaps try the LDN again by slowly titrating your dose up to a tolerable level. It took me two tries to start LDN, gradually is best. Be...

Oh, by the way. I have heard there are support groups both for prospective HSCT MSers and for those who have had failures as well on Facebook......I am not a Facebooker but I guess there is a ton of information and testimonials there for anyone researching HSCT or recovering or have had failure. Bes...