Search found 7 matches

by Loony03
Thu Jan 10, 2013 9:19 am
Forum: Ampyra
Topic: Vision Improvements with Ampyra?
Replies: 2
Views: 4175

Re: Vision Improvements with Ampyra?

Thanks for your input. I'm going to ask about a prescription in hopes that my insurance will cover it. The possible side effects (mainly seizures) do worry me a bit though.
by Loony03
Tue Jan 08, 2013 6:25 pm
Forum: Ampyra
Topic: Vision Improvements with Ampyra?
Replies: 2
Views: 4175

Vision Improvements with Ampyra?

Is there anyone here with optic neuritis who has noticed any vision improvements after taking Ampyra? I was dx with MS about 5 years ago after going in for vision problems (which ended up being optic neuritis.) My vision has never fully recovered. I think my good eye is at about 20/30 or 40 and the ...
by Loony03
Fri Sep 07, 2012 9:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CT Scan for May-Thurner
Replies: 6
Views: 1415

Re: CT Scan for May-Thurner

Thanks for that additional info.
Just a side note, I realized the vein closure for the leg is actually the VNUS procedure, not Venus. :)
by Loony03
Wed Sep 05, 2012 12:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CT Scan for May-Thurner
Replies: 6
Views: 1415

Re: CT Scan for May-Thurner

Well, I had the CT scan a couple of weeks ago. As a side note, I figured it would be about the same as an MRI, which I've had no problems with, including the dye injection. The CT looked like a breeze. They said I might feel a "warm sensation" spreading through my body after the contrast went in. WO...
by Loony03
Wed Aug 22, 2012 7:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CT Scan for May-Thurner
Replies: 6
Views: 1415

Re: CT Scan for May-Thurner

Thank you for the reply - lots of good information. I really had no plans to be checked for CCSVI, and this is all happening in a sort of roundabout way. Once the results come in from the scan for May-Thurner, I will likely discuss it with the doctor.
by Loony03
Tue Aug 21, 2012 7:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CT Scan for May-Thurner
Replies: 6
Views: 1415

CT Scan for May-Thurner

Hello - New to this board so please go lightly on me. :) I am 36 now and I was diagnosed with MS in 2008, although at the time the neuro (for whatever reason) seemed to think my case was "not typical." While he thought it to be PPMS, RRMS was suspected and I am now on Copaxone. Symptoms started with...
by Loony03
Sat Jul 09, 2011 6:16 pm
Forum: Stem Cells
Topic: Optic Nerve Damage
Replies: 3
Views: 2817

Optic Nerve Damage

Hello - this is my first post on this forum. I was dx with PPMS back in 2008. I had an issue with what seemed to be a growing spot in my eye that was affecting my vision. I went to see an ophthalmologist, then neuro, and then the dx. I'm in my mid 30's and at this point I could live with my other MS...