This Is MS Multiple Sclerosis Knowledge & Support Community

We aren't talking about prozac or paxil Harry. We are talking about Tysabri. The AER database, the one maintained by law by the FDA, has the consumer-filed report and that is not up for debate: remicade was called out as the culprit. No company filed that report, the consumer did. Not the doctor, bu...

You are a really laugh a minute! You know as well as the rest of us here that you are merely trying to spread fear, uncertainty and dread around Tysabri. It isn't working. You also know, or should know (Lauren posted the AER above,) that the consumer (in the case of the Belgian patient) cited Remica...

No, I am not coming to Ontario to see your "email." You have some sort of vendetta vs. Biogen and, I think, few want to see you spill your bile toward the company. Tysabri is now being dosed in over 22,000 patients since being reintroduced in 2006 and there has not been a single case of PML. Meanwhi...

So let me get this sraight... you are best friends now with the Belgian patient's family even though you live in Canada? After all this time it is a huge coincidence that you suddenly are close to the family, who themselves assessed Remicade as the primary suspect in their 60 year old relative's dea...

Saw your post up above where you said your neuro thought that Rebif was the best of the ABCRs and that Tysabri showed only slightly better efficacy in trials, and want to respond: 1. Rebif and Avonex are exactly the same drug - the same protein from start to finish. The only significant difference b...

Despite the overwhelming evidence from clinical trials and anecdotes from MS sufferers, you continue to use innuendo to attempt to cast a shadow over Tysabri. You are relentless and one must wonder why...

There are also stories of people with brutal rheumatoid arthritis who now do not suffer from that either after taking Tysabri for their MS. That is a nice side effect!

Amelia, welcome and try not to let other's emotions affect you here.

MeadowStream

ptwo, that extremely low incidence of side effects is very interesting and clearly a differentiator (along with twice the efficacy of alternative treatments and once-per-month dosing) from alternatives. Thanks for pointing out another thing to look forward to.

The disability data I am looking for is the EDSS scores which I am told is the real measurement for these drugs. From what I have been told by people in MS medicine,that did not improve in the trials. Biogen has still not published that data yet. Biogen-Idec and Elan just told you that disability p...

You are deliberately trying to sell a rumour and play it off as though others are driving the bus. It is my hope that the legitimacy of this forum does not also legitimize your rumour-mongering.

You are getting accurate information from the FDA and the companies who make and marke Tysabri. What you are getting here is a couple of people yelling "Fire" in a crowded theater and excusing themselves because they contend that someone whispered it (not sure who or can't say) nearby. Tysabri has b...

This discussion is one of the most irresponsible I have seen on the web. There are no publicly disclosed deaths, very low side effects and tremendous benefits associated with Tysabri. This has not stopped a couple of posters from creating a thread that looks like a competitor to Biogen wrote it post...

Tysabri was not of any benefit to any kind of progressive MS but for mild RRMS. Harry, Harry, Harry... unbelievable statement. You know as well as anyone, because you spend a lot of time reading about MS and treatments, that Tysabri is the far and away best treatment for MS patients at any stage. T...

Harry, Now you are being hysterical about Tysabri. This may be news to you, but clinical trials are run on every drug that is approved by the FDA. Claritin and Ibuprofen have been approved by the FDA. So, according to your reasoning, perhaps Tysabri has the same dangers as antihistamines?The FDA ove...

Harry, Which is it - do you want to be right? or do you want to voice concerns? This is the fundamental problem I have with your posts: they are not reasonable words of caution, IMO, they are wild comparisons with Vioxx and desperate searches for something, anything, that would indicate Tysabri will...