This Is MS Multiple Sclerosis Knowledge & Support Community

My daughter and I went to Las Vegas last week and each had a Doppler ultrasound, MRV, and x-ray at Centennial Medical Imaging. The information will be read by a radiologist and later by Dr. Haacke, himself. So soon we will know whether we have ccsvi. In my previous posts I have noted that we have a ...

CeCe, has there been any change since your procedures with respect to sinus infections and/or sinusitus? I am wondering whether you think opening the major veins might resolve these issues.

Good point about the valves. Maybe this is why some ms patients don't respond well. It has occurred to me that it could be a body wide problem. But I think read some where that the liberation procedure can't be performed on the lower body. The valves need to be there to keep the blood from moving do...

This is pretty much what my lyme doc told me. The suspicion is infection of the endothelial cells as a cause for ccsvi. CeCe made a good point that possibly my daughter and I both are worse because ccsvi is congenital. But there is also some reason to believe lyme and coinfections can be passed sexu...

One of the docs at the alternative clinic I go to is going to write an article on lyme and ccsvi. It will be interesting to see what he has to say about it.

Very good points are raised. It does seem to be a chicken and egg issue. Which came first? It is hard to say. I have been chasing the lyme issue for 3 1/2 years. Before that it was cfs for 10 years. Before that is was 7 years of docs really having no idea. The lyme docs have been saying for years th...

Greetings all, I am new to the forum. I do not have ms. I am a 49 year old man with diagnosed lyme. I have a wife and two daughters with lyme. My oldest daughter and wife do pretty well. My youngest (age15) and I are pretty bad. My youngest and I are going to be evaluated for ccsvi in Las Vegas next...