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by bebe
Thu Jul 31, 2008 5:30 pm
Forum: Rebif
Topic: Medicaid and Rebif
Replies: 4
Views: 3460

MS Lifelines has many patient assistance programs for anyone having payment difficulties due to copays or lack of insurance. Just call them!! For new people starting on Rebif, you are gauranteed a copay of no more than $50 a month and if you have no insurance- its free for a year. No applications or...
by bebe
Thu Jul 31, 2008 5:26 pm
Forum: Rebif
Topic: I am just asking......
Replies: 12
Views: 4454

Hello all- In the studies, it takes 2 months for Rebif to show a dramatic effect on MRI lesions. Thats really the only thing that can be measured objectively. In terms of clinical measures, like relapses, that is going to vary by each individual. Remember though, the DMD's dont help "regain" anythin...
by bebe
Thu Jul 31, 2008 5:10 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: new brain infections
Replies: 11
Views: 4382

Glad they are having a conference call for analysts and investors tomorrow- what about the patients??? LOS ANGELES/NEW YORK, July 31 (Reuters) - Biogen Idec Inc (BIIB.O: Quote, Profile, Research, Stock Buzz) and Elan Corp Plc (ELN.I: Quote, Profile, Research, Stock Buzz) have notified regulators of ...
by bebe
Wed Mar 05, 2008 7:01 pm
Forum: Copaxone
Topic: Copaxone long-term study
Replies: 5
Views: 4530

Actually I wouldn't be so cynical. I think that this is a fairly significant data point showing copaxone really does slow the disease down even over the long haul. The reduction in relapses to 0.1 (1 per 10 years) has a VERY impressive level of significance (p < 0.0001). Copaxone really struggled w...
by bebe
Wed Mar 05, 2008 6:51 pm
Forum: Rebif
Topic: Good News
Replies: 3
Views: 3416

:mrgreen:

Awesome!! Rebif has very strong MRI data. The High Dose High Frequency interferons (R and B) have MRI data similair to Tysabri.
by bebe
Wed Mar 05, 2008 6:49 pm
Forum: Rebif
Topic: New formulation of Rebif
Replies: 40
Views: 18193

Punchy, the last 3 batches I've received have had faulty syringes too. I couldn't completely push the plunger down. I called the helpline and all they said was-if you can't push it anymore than don't. Great advice huh? Are you in the US? If so, call MS Lifelines...they will absolutely replace fault...
by bebe
Wed Mar 05, 2008 6:43 pm
Forum: Rebif
Topic: I have never felt this bad in my life. Is this the Rebif?
Replies: 24
Views: 15445

Re: Thanks for the Response

Hi Grump, It turned out that my new MRI showed no new leisons... not sure where all these new symptoms came from (Rebif, perchance?). I am supposed to start Copaxone this week. I am looking forward to it based on the low side-effects reports. I am so tired of side effects! Did you ever have any iss...
by bebe
Wed Sep 19, 2007 1:49 am
Forum: Rebif
Topic: New formulation of Rebif
Replies: 40
Views: 18193

The new formulation of Rebif is not available in the US yet. It was recently approved by the European Commission and will available soon in other countries....the FDA is taking their own sweet time.
by bebe
Wed Sep 19, 2007 1:48 am
Forum: Rebif
Topic: Just switched from Avonex - site reactions
Replies: 11
Views: 5178

Interesting tip on the tea bags- never heard of that. There was a poster of a study presented at a major MS Conference this year looking at managing injection site reactions. This seems to be a common problem with all sub-q injections, not really with Avonex though- remember you are injecting down i...
by bebe
Mon Nov 20, 2006 7:33 pm
Forum: Rebif
Topic: swollen lymph nodes
Replies: 5
Views: 6244

Never heard of this...is this still happening? Just wondering if you were getting an infection at the time and maybe it was coincidental? We are always quick to blame our MS or Medication for anything going on....sometimes its unrelated. Keep me posted.
by bebe
Mon Nov 20, 2006 7:27 pm
Forum: Avonex
Topic: My experience with Avonex
Replies: 18
Views: 9268

Just a quick point- just because one person didnt derive benefit, doesnt mean that the next person will not. MS is so different for everyone and many people see significant benefit in reduction of relapeses and disability progression. Im still amazed though, at the number of people still going on Av...
by bebe
Mon Nov 20, 2006 7:17 pm
Forum: Copaxone
Topic: New to injections and bit freaked out!
Replies: 22
Views: 8769

Pay attention to those "lumpy bump"....that can be the start of lipoatrophy which is becoming more and more common with Copaxone injections. Some publications are saying up to 50% of people will get varying degrees (mild, moderate, severe). Unfortunatley, it is irreversible and can be dis-figuring. ...
by bebe
Sun Aug 20, 2006 5:20 pm
Forum: Rebif
Topic: New to Rebif - Worried about Site Reactions
Replies: 8
Views: 4502

I spoke to someone at a program on Saturday who said that applying heat helped alot. So, instead of icing the site prior to the injection, apply a warm wash cloth. Then after your injection, do the same while you are massaging. Another tip that will help take away the redness is to use witch hazel i...
by bebe
Sat Jun 24, 2006 6:24 pm
Forum: Copaxone
Topic: Better than Avonex
Replies: 3
Views: 3197

Its interesting to me that when GA is studied in a trial with a proper design- randomized, prospective, placebo controlled, multi-center...it doesnt reach statistical significance on end points. However, when it is studied in an open label, single center manner (a Copaxone die hard, ie. Zwibel, Khan...
by bebe
Sat Jun 24, 2006 6:13 pm
Forum: Avonex
Topic: 20% Smaller Needle
Replies: 5
Views: 6781

Its great to change the needle size but keep in mind that the studies were done with IM injections, so be sure if you are changing the needle that you are still getting the med IM and that you are not injecting subQ. Avonex is already a sub-optimal dose....if you inject 30mcg subQ, then you are gett...

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