Search found 13 matches

by Tore
Sat Dec 22, 2012 2:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 914556

Re: CCSVI and CCVBP

Thx Dr. Flanagan,
I occasionally get headaches now (2-3 times per year, for 2-3 days each time) but
not as often as I used to get.
by Tore
Sat Dec 22, 2012 11:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 914556

Re: CCSVI and CCVBP

Thank you very much for your answer Dr. Flanagan. You had asked about the locations of my lesions. As a result of the performed MRI on Friday they told me there were two flourid lesions, one of them rather big, both would need to be treated (I have set an appointment with my neurologist). They didnt...
by Tore
Thu Dec 20, 2012 2:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 914556

Re: CCSVI and CCVBP

just wanted to share with you the results of my upright-mri this week in Hannover/Germany at Dr. Schulze's Office. The whole examination took more than one hour, I had to sit still inside the machine (Fonar machine), which was a little exhausting. The operator asked me during the examination if I ha...
by Tore
Sat Dec 15, 2012 2:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 914556

Re: CCSVI and CCVBP

Dear Dr. Flanagan, once again I'm asking you for advice. This week I had an appointment with Dr. Bodo Kuklinski in Rostock/Germany. Dr. Kuklinski has published numerous articles and 3 books on instable neck joint and its role in the genesis of other/subsequent diseases, he is also an expert in the f...
by Tore
Wed Jul 25, 2012 12:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 914556

Re: CCSVI and CCVBP

Thx very much for your reply Dr. Flanagan. I felt down badly several times when I was a child. My cousin was a rings gymnast, we had a pair of rings hanging from the ceiling in our house. For reasons of fun or whatever he used to hung me up on the rings and I had to do excersises, I felt down severa...
by Tore
Mon Jul 23, 2012 9:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 914556

Re: CCSVI and CCVBP

Dear Dr Flanagan Im wondering if you could give me a bit of orientation. I was diagnosed with relapsing remitting MS sommer last year, I’m taking no drugs. February this year I was tested negative for CCSVI (MRV images see below). Here is a short history of my hard luck so far: age - text / symptom ...
by Tore
Sun Feb 12, 2012 1:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who has been tested?
Replies: 10
Views: 2826

Re: Who has been tested?

Last monday I was tested for CCSVI. This is my report which I posted in the german CCSVI-forum (http://das-ccsvi.net/) first. My english is not good + I'm not familiar with the medical language so I had a hard time translating. Plz forgive me for misspelling and not-readable sentences and feel free ...
by Tore
Wed Feb 08, 2012 4:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 16528

Re: Inclined Bed Therapy (IBT) Feedback Request

with improvements in fine motor skills right hand I meant less numbness and quicker reaction, and less stiffness in the right leg. However those improvements where rather fluctuating. As advised by Andrew I lowered the head end by 8cm resulting in an elevation of now 17cm at the head end of my bed (...
by Tore
Sun Jan 29, 2012 10:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 16528

Re: Inclined Bed Therapy (IBT) Feedback Request

I elevated the head-end of my bed frame (slatted frame) by ca. 25 cm (ca. 7° ramp, bed length 200cm) some 7 days ago. ever since I cannot sleep through the night and wake up 2 to 3 times per night. I also kind of slide down the bed during the night. I find it has helped me somewhat with my symptoms ...
by Tore
Sun Jan 08, 2012 4:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can I answer your eye questions at ISNVD?
Replies: 26
Views: 4613

Re: Can I answer your eye questions at ISNVD?

Hi Dr. Diana I have kind of ligaments, on both sides. They are transparent & tangled and actually not very disturbing. 2009 I had temporarily poor eyesight on the left eye and got glasses for that. End of last year I was diagnosed with MS and was sent to see an eye doctor, she said every thing w...
by Tore
Tue Jan 03, 2012 8:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AtlasBalance (jaw misalignment) Dr M Amir - Putney London UK
Replies: 255
Views: 82997

Re: AtlasBalance (jaw misalignment) Dr M Amir - Putney Londo

Hi Dr. Amir, here is my hard luck-story: age - text / symptom -- born in Central Asia, grew up there 16 - moved to Central Europe (Germany) at age 16 around 16 to 25 - long episodes (2-4 days) of headache (in the back of the head and on the sides) -- fatigue since early youth 22 - developed heat int...
by Tore
Wed Nov 30, 2011 6:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AtlasBalance (jaw misalignment) Dr M Amir - Putney London UK
Replies: 255
Views: 82997

Re: AtlasBalance Dr M Amir - Putney London UK

I did a google search and came across this: How a dental brace could cure MS, migraines and paralysis I myself am having problems with my spine and I guess my atlas is involved too, so I'm looking for treatment. Also here in Germany there are some providers ( atlasprofilax , atlasreflex , atlantotec...

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