Search found 96 matches

by Azaeleaprawn
Wed Sep 16, 2015 1:22 pm
Forum: Regimens
Topic: Anyone taking 4-aminopyridine?
Replies: 11
Views: 5311

Re: Anyone taking 4-aminopyridine?

I was prescribed 10mg caps of 4-AP and took those 10 mg caps twice for one day. I ended up with horrible shaking each time I took them that day and was totally freaked out. So I forgot about it for the summer where it was was too hot to contemplate anything like this but once the weather cools I'm g...
by Azaeleaprawn
Wed Jan 28, 2015 12:15 pm
Forum: General Discussion
Topic: My colonoscopy cancelled in BC because I have MS
Replies: 13
Views: 1688

Re: My colonoscopy cancelled in BC because I have MS

Well, I guess if you rattle enough cages and make enough noise, you can get listened to...suffice it to say I'm one squeaky wheel and the "squeaks" caught somebody's attention. I am scheduled for a colonoscopy with an info call this Thursday, an information meeting to attend in the next days and app...
by Azaeleaprawn
Mon Jan 26, 2015 11:13 am
Forum: General Discussion
Topic: My colonoscopy cancelled in BC because I have MS
Replies: 13
Views: 1688

Re: My colonoscopy cancelled in BC because I have MS

I have contacted the local MLA who wants to wait for the outcome to the health authority complaint board before she gets involved and as well I've talked to my neuro who is incensed and looking into why this ever happened in the 1st place. Also am calling MS & Bowel Societies. Thanks for the input &...
by Azaeleaprawn
Fri Jan 23, 2015 1:14 pm
Forum: General Discussion
Topic: My colonoscopy cancelled in BC because I have MS
Replies: 13
Views: 1688

Re: My colonoscopy cancelled in BC because I have MS

Have looked in to the virtual colonoscopy and the problem is if there are polyps I'd have to back for a regular one (which at this point I'm not eleigible for) -catch 22 and as well the virtual isn't a accurate. As it is the reason `i''ve been given for not being eligible for one here is that `i hav...
by Azaeleaprawn
Thu Jan 22, 2015 8:57 pm
Forum: General Discussion
Topic: My colonoscopy cancelled in BC because I have MS
Replies: 13
Views: 1688

Re: My colonoscopy cancelled in BC because I have MS

Nope - our hospitals are the only choice here in Canada. Other than the odd private clinic of which there was one in this city but no more. I've got to fight my way through this by going through public health care channels, talking to some politicians and possibly even the media. If this the usual w...
by Azaeleaprawn
Thu Jan 22, 2015 4:54 pm
Forum: General Discussion
Topic: My colonoscopy cancelled in BC because I have MS
Replies: 13
Views: 1688

My colonoscopy cancelled in BC because I have MS

Here's my situation for which I'm pursuing a solution - tell me what you think. In the middle of December 2014 I was turned down by VIHA (our local health authority in Victoria BC)  for a colonoscopy because I have MS with bladder, mobility and spasticity issues which I was told cannot be  dealt wit...
by Azaeleaprawn
Sun Oct 26, 2014 5:58 pm
Forum: Low Dose Naltrexone
Topic: Side Effects while on LDN...
Replies: 54
Views: 75110

Re: Side Effects while on LDN...

I am 63 I am female I have SPMS for ? years (diagnosed 2010) I have tried LDN for 1 month I took 1.5mg per 1st and then 3mg per night I obtained my LDN from PS in BC The filler is Avicel I have no known allergies I take Vasotec and Hydrochlorothiazide I've noticed an increase in spasticity when I ge...
by Azaeleaprawn
Sun Oct 26, 2014 5:53 pm
Forum: Low Dose Naltrexone
Topic: Experiences with Low Dose Naltrexone
Replies: 70
Views: 59694

Re: Experiences with Low Dose Naltrexone

I started at 1.5 mg about 3 weeks ago and have just increased to 3 mg. Bladder urgency has gotten way better to the point that it isn't even an issue anymore and I've had an increase in energy, and somewhat better balance. I have noticed a small increase in leg spasticity in the mornings but stretch...
by Azaeleaprawn
Sun Oct 26, 2014 5:45 pm
Forum: Low Dose Naltrexone
Topic: LDN and bladder issues
Replies: 4
Views: 5113

Re: LDN and bladder issues

I've been on LDN for about 3 weeks and and the bladder urgency went away almost immediately. I started at 1.5mg and have just increased to 3mg
by Azaeleaprawn
Thu Oct 02, 2014 10:46 am
Forum: Low Dose Naltrexone
Topic: what convinced your doc to prescribe you LDN?
Replies: 9
Views: 7839

Re: what convinced your doc to prescribe you LDN?

So, I took my 1st dose (1.5 mg) of LDN last night and slept like a log. Stiffness in my legs is much the same but now I'll be keeping track of it . I'll post any major changes - if and when then happen, Here's hoping there'll be some good changes!
by Azaeleaprawn
Wed Oct 01, 2014 11:28 am
Forum: Low Dose Naltrexone
Topic: what convinced your doc to prescribe you LDN?
Replies: 9
Views: 7839

Re: what convinced your doc to prescribe you LDN?

I didn't really have to do much other than ask him. He spoke to me of side effects at higher dosages in order to allow me to give an informed consent. I also told him that with my SPMS that there is really no other treatment option and him being very compassionate gave me a prescription. I'm startin...
by Azaeleaprawn
Sat Feb 01, 2014 9:26 pm
Forum: General Discussion
Topic: Could hypertension drug stimulate repair in MS?
Replies: 9
Views: 3592

Re: Could hypertension drug stimulate repair in MS?

A while ago I read somewhere that the hypertension drug Captopril helped - wonder if it's the one.
by Azaeleaprawn
Thu Aug 22, 2013 1:01 pm
Forum: Medical Marijuana
Topic: Using Medical Marijuana
Replies: 28
Views: 11907

Re: Using Medical Marijuana

This stuff really works for me Marihuana Infused Oil Recipe (from http://mmchelp.ca/recipe_list.html) Makes about 1 litre of infused oil. During the cooking and straining process you can loose approximately 1/4 to 1/2 cup of oil. What you need to make marihuana infused oil Heavy duty pot with lid or...
by Azaeleaprawn
Mon Apr 15, 2013 4:18 pm
Forum: General Discussion
Topic: Accupuncture?
Replies: 46
Views: 10641

Re: Accupuncture?

Colleen - I had acupuncture for lower back pain that extended into my leg (sciatica like) that has essentially eradicated the pain. this treatment was done by a physio/acupuncture practitioner at the local MS Society who has been working specifically with MS patients for a number of years and is ver...
by Azaeleaprawn
Wed Apr 03, 2013 11:22 am
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 9138

Re: MS Hug information - updated 4/2/13

HappyPoet wrote: Seems too many doctors don't listen--actually listen--to their patients.
Yes, isn't that the truth! "Listening skills" something that aren't taught properly in medical school, whereas, I think they should be a course all of their own.