This Is MS Multiple Sclerosis Knowledge & Support Community

Sorry to hear that it would not be a good fit for you Elliot. We do have a Facebook group which we started a year ago. Numerous success stories but, also, some where the sleeve was returned...patient experiences, questions and comments. The Facebook group is "Neural Sleeve Information and Journ...

Yes, Elliot it has helped me. I was not a fast responder like some people -- it has taken time to adapt but I now can walk a mile with my neuro sleeve. I do use trekking poles when I am out and about in unfamiliar spaces or terrain. The sleeve really helps with the muscle fatigue...it is not unusual...

It has been a few years since I last posted on ThisisMS. I see some familiar names still on the site -- Hello again! I noticed that no one has posted anything about the new technology developed by Cionic for its neural sleeve. The history of the company is fascinating, and I would encourage you to r...

NZer1

I am stunned that there haven't been responses like yours to a paper that is giving a false impression

There have been commentaries written but have been rejected by JAMA....

Hope you are well,
Sharon

Thank you Dr Sclafani for your time today to discuss the results of the UBC trial results. The audio is posted on CCSVI Alliance Facebook

https://www.facebook.com/12589242742911 ... 590161655/

Sharon

I might suggest those with spinal issues look at the Regennex website ... Dr Chris Centano MD and CEO of Regennex treats issues non-surgically. He consults with Dr Scott Rosa.

Hello Vesta,
I have been in contact with Dr Flanagan's wife as I wanted to post a notice on the Alliance FB page. Respecting her privacy and that of the family, I will not be making a post until she decides to go public.
We will all miss him!
Sharon

Robert -

I would like to post something on the Alliance FB page but I cannot find any confirming obits in the State of New York. I am sure you would like to keep your source confidential, but would you mind PM'ng me?

Thanks so much
Sharon

The news of Dr Flanagan's passing is a shock. I am indeed saddened ... he was supportive of so many of us as we searched for answers following CCSVI treatment. I was fortunate to meet with him on multiple occasions... he introduced CCSVI Alliance to the work of Scott Rosa.
RIP,
Sharon Richardson

On March 1, 2016 CCSVI Alliance will launch a "matching donation campaign" to support the ISNVD 2016 Conference https://www.facebook.com/125892427429118/photos/a.160167304001630.36652.125892427429118/1122336221118062/?type=3 We invite you to join us: https://www.facebook.com/12589242742911...

Thanks Mark for keeping the "Stanford groupies" updated on your journey.
Take care
Sharon

Mark - aside from your roaming stent ... I hope you are going to get someone to pay attention to your whiplash trauma. In my opinion, the mis-alignment in the upper cervical needs to be treated.
Sharon

WOW! So sorry to hear about the relocation of your stent. Glad you are okay Mark and the doctors are on top of your situation. I am just amazed that the stent had not been encapsulated in the tissue of the jugular. Maybe it was your sky diving event ( just kidding). Keep us updated --- it will be in...

https://www.facebook.com/permalink.php?story_fbid=1085129551505396&id=125892427429118 The Missed Immune Connection in the Brain" listed as #27 in Discovery Magazine's top 100 Stories of 2015. http://discovermagazine.com/2016/janfeb/27-missed-immune-connection According to the research -- th...

ISNVD 2016 Conference CCSVI ALLIANCE·TUESDAY, DECEMBER 15, 201529 Reads Dear Colleagues, At this time, we are pleased to announce that Registration and Hotel Booking links are now open for the 2016 ISNVD Annual Meeting in New York City. Additionally, abstract submissions are currently being accepted...