Search found 1282 matches

by Sharon
Mon Jan 15, 2018 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615815

Re: DrSclafani answers some questions

NZer1
I am stunned that there haven't been responses like yours to a paper that is giving a false impression
There have been commentaries written but have been rejected by JAMA....

Hope you are well,
Sharon
by Sharon
Wed Mar 08, 2017 5:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615815

Re: DrSclafani answers some questions

Thank you Dr Sclafani for your time today to discuss the results of the UBC trial results. The audio is posted on CCSVI Alliance Facebook

https://www.facebook.com/12589242742911 ... 590161655/

Sharon
by Sharon
Sun Jun 12, 2016 10:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 535375

Re: CCSVI and CCVBP

I might suggest those with spinal issues look at the Regennex website ... Dr Chris Centano MD and CEO of Regennex treats issues non-surgically. He consults with Dr Scott Rosa.
by Sharon
Fri Jun 10, 2016 1:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 535375

Re: CCSVI and CCVBP

Hello Vesta,
I have been in contact with Dr Flanagan's wife as I wanted to post a notice on the Alliance FB page. Respecting her privacy and that of the family, I will not be making a post until she decides to go public.
We will all miss him!
Sharon
by Sharon
Sat Jun 04, 2016 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 535375

Re: CCSVI and CCVBP

Robert -

I would like to post something on the Alliance FB page but I cannot find any confirming obits in the State of New York. I am sure you would like to keep your source confidential, but would you mind PM'ng me?

Thanks so much
Sharon
by Sharon
Sat Jun 04, 2016 3:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 535375

Re: CCSVI and CCVBP

The news of Dr Flanagan's passing is a shock. I am indeed saddened ... he was supportive of so many of us as we searched for answers following CCSVI treatment. I was fortunate to meet with him on multiple occasions... he introduced CCSVI Alliance to the work of Scott Rosa.
RIP,
Sharon Richardson
by Sharon
Wed Feb 24, 2016 4:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Alliance supports the ISNVD with educational grant
Replies: 0
Views: 1122

CCSVI Alliance supports the ISNVD with educational grant

On March 1, 2016 CCSVI Alliance will launch a "matching donation campaign" to support the ISNVD 2016 Conference https://www.facebook.com/125892427429118/photos/a.160167304001630.36652.125892427429118/1122336221118062/?type=3 We invite you to join us: https://www.facebook.com/125892427429118/photos/a...
by Sharon
Sun Jan 17, 2016 10:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67002

Re: Notes from CureIous' at Stanford

Thanks Mark for keeping the "Stanford groupies" updated on your journey.
Take care
Sharon
by Sharon
Fri Jan 15, 2016 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67002

Re: Notes from CureIous' at Stanford

Mark - aside from your roaming stent ... I hope you are going to get someone to pay attention to your whiplash trauma. In my opinion, the mis-alignment in the upper cervical needs to be treated.
Sharon
by Sharon
Fri Jan 15, 2016 3:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67002

Re: Notes from CureIous' at Stanford

WOW! So sorry to hear about the relocation of your stent. Glad you are okay Mark and the doctors are on top of your situation. I am just amazed that the stent had not been encapsulated in the tissue of the jugular. Maybe it was your sky diving event ( just kidding). Keep us updated --- it will be in...
by Sharon
Sat Dec 19, 2015 10:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Missed Immune Connection in the Brain
Replies: 1
Views: 1348

The Missed Immune Connection in the Brain

https://www.facebook.com/permalink.php?story_fbid=1085129551505396&id=125892427429118 The Missed Immune Connection in the Brain" listed as #27 in Discovery Magazine's top 100 Stories of 2015. http://discovermagazine.com/2016/janfeb/27-missed-immune-connection According to the research -- the jugular...
by Sharon
Tue Dec 15, 2015 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD Conference 2016
Replies: 0
Views: 1190

ISNVD Conference 2016

ISNVD 2016 Conference CCSVI ALLIANCE·TUESDAY, DECEMBER 15, 201529 Reads Dear Colleagues, At this time, we are pleased to announce that Registration and Hotel Booking links are now open for the 2016 ISNVD Annual Meeting in New York City. Additionally, abstract submissions are currently being accepted...
by Sharon
Sun Nov 01, 2015 6:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's
Replies: 66
Views: 16732

Re: HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's

Nice to hear from you Rogan! It has been awhile ... Thanks so much for listening to the Rosa interview and for your kind comments. Rosa is an incredible, passionate gentleman. He will be a "player" in the future of therapies for neurological disease. Hope all is well in your world. Kindest regards, ...
by Sharon
Sun Nov 01, 2015 2:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's
Replies: 66
Views: 16732

Re: HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's

Daniel - On a personal note -- my treatment strategy has been to do what I could to minimize the chronic damage to my central nervous system. This included being treated for CCSVI at Stanford in June 1, 2009 where I was one of Dr Dake's early patients and was in his pilot study; then I went to Dr Ro...
by Sharon
Sun Nov 01, 2015 2:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's
Replies: 66
Views: 16732

Re: HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's

Daniel - Awesome news! So glad that you have had improvement in your MS symptoms. Remember this cannot be considered a cure for MS; but, I am sure that you were totally surprised to find out how and what your mis-aligned Atlas was affecting. Did you get to see your pre and post images? Did you see C...