Search found 11 matches

by tuftyone
Sat Feb 09, 2013 2:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular Vein Obstruction caused by turning of the head--
Replies: 38
Views: 12410

Re: Jugular Vein Obstruction caused by turning of the head--

i came across this thread this morning. very interesting! i have a refluxing right jugular so should i tryto sleep with my head turned to the right or left?
by tuftyone
Fri Jan 13, 2012 5:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AtlasBalance (jaw misalignment) Dr M Amir - Putney London UK
Replies: 255
Views: 85219

Re: AtlasBalance (jaw misalignment) Dr M Amir - Putney Londo

Another plus is that I'm actually starting to develop something ressembling a chin :) From memory, EJC's wife and now yourself are having treatment, and are posting on this site. The issue I have with these two cases and how it applies to myself, is that both involve "obvious" jaw issues ...
by tuftyone
Fri Jan 13, 2012 2:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AtlasBalance (jaw misalignment) Dr M Amir - Putney London UK
Replies: 255
Views: 85219

Re: AtlasBalance (jaw misalignment) Dr M Amir - Putney Londo

Hello Amanda and Welcome. What treatment are you undertaking with your dentist? (If you don't mind me asking). I had orthodontics when I was a child in the 1980s. I had 4 premolars extracted and fixed braces. My current dental treatment is expand my narrow upper arch with orthodontics, and to enabl...
by tuftyone
Wed Jan 11, 2012 2:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI, cause or symptom?
Replies: 128
Views: 30392

Re: CCSVI, cause or symptom?

The articles above seem to back up your hypothosis Amir. For the benefit of new readers of this thread (and me!) It may be good to summarise the points made so far in simple terms. Cranial and skeletal asymmetry (however caused) could affect the neck vertebrae (and other things) and restrict cerebro...
by tuftyone
Thu Jan 05, 2012 2:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI, cause or symptom?
Replies: 128
Views: 30392

Re: CCSVI, cause or symptom?

How much more rubbish can the honerable members of this forum continue to tolerate? Members of the CCSVI community did not spare George Goss (who underwent HSCT, a clinically proven MS procedure with curative results) nor criticism nor insult for claiming to be cured. I wonder whether Dr. Amir's bo...
by tuftyone
Mon Dec 05, 2011 1:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in the UK... treatment in Egypt
Replies: 18
Views: 4239

Re: CCSVI in the UK... treatment in Egypt

thanks to you all for your input. You're right in that emotion needs to be put aside when considering this treatment; which is difficult as we all want to feel better right? The real trouble is that I agree with everyone! The theory all makes sense to me, but any treatment like this surely involves ...
by tuftyone
Thu Dec 01, 2011 4:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in the UK... treatment in Egypt
Replies: 18
Views: 4239

Re: CCSVI in the UK... treatment in Egypt

LR1234 wrote:Sent you Pm. I am in the UK and got treated abroad
Thank you but the pm didn't come through
by tuftyone
Thu Dec 01, 2011 3:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in the UK... treatment in Egypt
Replies: 18
Views: 4239

Re: CCSVI in the UK... treatment in Egypt

Hi there mark, thanks for your input on this... very valuable. I read your article only yesterday :)

I'd love to discuss this and your experience one-to-one... would there be an opportunity to do this?
by tuftyone
Thu Dec 01, 2011 1:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in the UK... treatment in Egypt
Replies: 18
Views: 4239

Re: CCSVI in the UK... treatment in Egypt

Thanks everyone, I think Dr Sclafani's approach is very similar to Dr Tariq's and you're right that choosing the right experienced IR is absolutely paramount. A big concern for me is what happens when I return to the UK, so I need to be prepared for any complications, or check-ups and monitoring of ...
by tuftyone
Wed Nov 30, 2011 5:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in the UK... treatment in Egypt
Replies: 18
Views: 4239

Re: CCSVI in the UK... treatment in Egypt

Thanks for reading my post and replying with your story and opinion

I think I'd like to write to Dr Sclafani indepentley from this forum.

Does anyone have his conytact details?

Thanks
by tuftyone
Wed Nov 30, 2011 3:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in the UK... treatment in Egypt
Replies: 18
Views: 4239

CCSVI in the UK... treatment in Egypt

Hi everyone, I'm 42, from the UK and was diagnosed with RR in 2000. I'm still pretty good and drug free, and haven't seen a neuro in five years or so. I now have an opportunity to have the liberation treatment conducted in Egypt by CCSVI specialist Dr Tariq. He seems to be a bit of a pioneer in this...

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