Search found 97 matches

by batpere
Thu Feb 07, 2008 9:18 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri May Be linked to Melanoma
Replies: 16
Views: 7544

Biogen has no plans to let anybody know

I'm sure Harry will not be surprised by this and it has me concerned what else they are not passing on. Shannon Altimari, a spokesperson for Biogen Idec Inc., which in partnership with Elan Corp. markets Tysabri, ...
by batpere
Thu Oct 25, 2007 8:49 pm
Forum: Avonex
Topic: avonex + intrathecal Methotrexate
Replies: 4
Views: 4321

Batpere, My neuro does however have several of her other MS patients on it for their MS and she said they responded well to it. If your neuro is being closed-mouth about it, you should do some reading on the subject of low-dose Metho. I read in several publications (Arthritis foundation etc) that t...
by batpere
Sat Oct 06, 2007 3:28 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Increasing disease activity after treatment stops
Replies: 5
Views: 4392

Re: Increasing disease activity after treatment stops

I was thinking about going to a Biogen sponsored Tysabri talk in my area next month. I will raise the question of the rebound effect just to see what their response is . NHE Their response somewhere (don't remember where) was that it was a small number of people in the study and Biogen had no plans...
by batpere
Fri Apr 27, 2007 9:09 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Does Tysabri infusion hurt?
Replies: 3
Views: 3640

Re: Does Tysabri infusion hurt?

"A person getting an intravenous infusion will probably feel a sharp pain or some discomfort when the needle penetrates the skin and vein, but then the discomfort should subside as the infusion proceeds. There may also be discomfort when the infusion needle is removed and the site may or may not fe...
by batpere
Wed Mar 07, 2007 8:11 pm
Forum: Exercise and Physical Therapy
Topic: pilates
Replies: 0
Views: 4974


The local chapter of the MS society here has started a free weekly pilates class and it is wonderful. Everyone in the class has MS and so not everyone can do the full version of each exercise, but everyone does what they can. I enjoy it so much more than yoga, where leg spasticity poses frequent pro...
by batpere
Mon Dec 04, 2006 2:57 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Scary experience with Tysabri
Replies: 27
Views: 8468

I believe there are a couple of places offering the Tysabri antibodies test, including Athena Diagnostics. ... They also have a patient advocates program where the patient only is responsible for 20% of the cost of the test (around $115) regardless of whether or not the insurance company pays for t...
by batpere
Thu Nov 23, 2006 5:50 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri Infusion Experiences (2006)
Replies: 85
Views: 25091

Gary is now taking Cellcept to knock his immune system down. He is also taking a 10mg shot of decadron twice monthly until the cellcept kicks in. According to research, with Devic's, they must put you into remission and it can only be done, for now, with chemo type drugs. He seems to feel better, b...
by batpere
Tue Nov 21, 2006 10:39 am
Forum: Avonex
Topic: My experience with Avonex
Replies: 18
Views: 9096

I'm still amazed though, at the number of people still going on Avonex when there is clear data from multiple trials showing that Rebif and Betaseron are superior. Finally, the flu symptoms are less, notably with Rebif. I work with MS patients and people on Avonex who switch to Rebif feel so much b...
by batpere
Tue Nov 21, 2006 7:29 am
Forum: General Discussion
Topic: Currently in Tovaxin IIB Clinical Trial
Replies: 48
Views: 9125


I'm wondering whether I should ask for a more thorough exam, no one has ever suggested an EDSS level for me, I assumed I wasn't even on the scale. Are you sure, err, that there wasn't an effort to find a higher EDSS than might otherwise have been noted? (I'm assuming neuros were part of clinic sele...
by batpere
Tue Nov 14, 2006 3:56 pm
Forum: General Discussion
Topic: Feeling down
Replies: 15
Views: 4201

Re: Feeling down

Loobie wrote: Everyone I work with knows I pee all the time, but other than that, I've been able to make it through work with really no symptoms encroaching into my performance.
Don't be afraid to look at prescriptions to help with that. Uroxatral has made that symptom disappear for me.
by batpere
Tue Aug 29, 2006 5:44 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri reworked!!!
Replies: 6
Views: 2840

Tysabri reworked!!!

Wow - read this: Tysabri's been REWORKED now so that there is only a 1 in 1000 chance of getting a serious viral infection of the brain. Ho ho ho. The worthlessness of this statistic that is endlessly repeated makes it almost laughable. Only here on thi...
by batpere
Tue Aug 15, 2006 4:04 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Extremely Restless
Replies: 76
Views: 16554

The funny thing about all of this is if your are covered and DON'T take anything for your MS, your chances of eating at the insurance co. profits yearly are quite good. MS, so I have been told, is generally broken up in thirds, although the CRABs may have changed this slightly. 1/3 will go on with ...
by batpere
Tue Aug 01, 2006 5:45 am
Forum: General Discussion
Topic: seeking feedback on iv steroids
Replies: 6
Views: 2602

Re: seeking feedback on iv steroids

chus wrote:... in the last 2 years my legs have become increasingly stiff and my mobility more limited even though my MRIs have shown no new lesions.
Was the MRI of the brain or spinal cord?

Are you exercising, stretching, or doing anything like yoga to help with the spasticity?
by batpere
Fri Jul 14, 2006 2:56 pm
Forum: General Discussion
Topic: consumer-driven health plan - Lumenos
Replies: 0
Views: 1806

consumer-driven health plan - Lumenos

Anybody with MS covered by Lumenos consumer-driven health care insurance? Do the cost of the CRAB drugs eat up the up-front employer contribution? How do other consumer-driven health care plans handle things?

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