Thanks Cece & Blossom,
Yes, hopefully someone will benefit, that is why I gave the website above, as it helps so many in our very small community with our vary rare affliction. Support does more for healing and health than the medical community usually gives credit for.
Kim P.
Search found 3 matches
- Wed Dec 28, 2011 10:58 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: ANYONE HERE EVER HEARD OF OR TESTED FOR SPINAL AVM?
- Replies: 11
- Views: 5005
- Wed Dec 28, 2011 7:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: ANYONE HERE EVER HEARD OF OR TESTED FOR SPINAL AVM?
- Replies: 11
- Views: 5005
Re: ANYONE HERE EVER HEARD OF OR TESTED FOR SPINAL AVM?
notsunkyet, so sorry to hear of your experience. but thank you very much for responding here. how did they discover this? a routine mri because of some symptoms? i'm taking it that once discovered treatment can be touchy? probably the location and severity means a lot? i wish you continued recovery...
- Wed Dec 28, 2011 10:06 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: ANYONE HERE EVER HEARD OF OR TESTED FOR SPINAL AVM?
- Replies: 11
- Views: 5005
Re: ANYONE HERE EVER HEARD OF OR TESTED FOR SPINAL AVM?
Hello, I came across your site with a Google Alert for Spinal AVM. I have one such monster within the spinal cord tissue in my cervical spine from the base of my brain down past C2. It also had an aneurysm feeding it that was coiled and embolized (glued shut) in March 2011. It seems that the aneurys...