Search found 25 matches

by Manu
Mon Oct 26, 2015 1:32 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

I am so excited to tell that I was on the arm of ocrelizumab starting from day 1.

The results of this new drug were exposed at Barcelona on EXTRIMS and are spectacular.

Please check out the video https://www.youtube.com/watch?v=dIHJBxksjOQ
by Manu
Sat May 23, 2015 4:15 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Sorry for the long delay. I finished the study meanwhile and started the open study with 100% sure Ocrelizumab. I am doing well so far. I already had 2 ocrelizumab infuses. Next tuesday will be my number 3. My doctor told me we will know the results soon but they are waiting for some results from Uk...
by Manu
Mon Jan 06, 2014 9:12 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

I finished the study and tomorrow I will be getting 100% sure the OCRELIZUMAB. I will keep you all posted.

Best Regards

Manu
by Manu
Wed Sep 25, 2013 11:35 pm
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Hi,

Don't have a lot of time to write, but will do so within 2 weeks.

Just to inform I finished the study of Ocrelizumab and will be starting with the
Open Label study in january where I will get the Ocrelizumab for 100% sure.

I'll inform you but know that I am feeling good.

Manu
by Manu
Tue Apr 16, 2013 12:25 pm
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Pesho,

If we are honest with ourselves, we don't know weither we get the ocre or the rebif.... So keep hanging in there and believe in the trial !!

Good luck

Manu
by Manu
Wed Apr 03, 2013 7:22 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Hi,

Glad to read so many participants are here to share their info.

I am on to week 60. Had to do some tests this week.

And I am experiencing better feelings in my hands and my legs. Weird but extremely good I think.

Talk to all later

Bye

Manu
by Manu
Wed Jan 09, 2013 12:47 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Just to inform that I had my 3d infusion of Ocrelizumab/Placebo yesterdag. I got the info that the results of this study will be there on the end of 2014, beginning 2015. I did well yesterday and hope that the attacks will stay out for the next 6 months (as they did in the last 6 months) Regards, Manu
by Manu
Tue Nov 06, 2012 2:46 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

How are you doing Keisha ?

I am having the longest period without attacks at this time being....

Regards

Manu
by Manu
Thu Sep 20, 2012 4:58 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Glad to read you are all participating in this trial. I am now in month 9 of the trial and I'm still feeling stable. he only thing that is annoying is my left eye that is slower than the other one. We have to keep believing that participating in this trial will do good for us (since we are sitting i...
by Manu
Sun Aug 12, 2012 4:09 am
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

2 weeks after the dose ocrelizumab/placebo I completely feel the difference with the days before the dose. I am very much stronger now then before. Being tired is almost completely history. and I feel like wanting do to things instead of feeling to climb an enourmous mountain every day. Keeping you ...
by Manu
Mon Jul 30, 2012 4:25 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrelizumab
Replies: 10
Views: 9549

Re: Ocrelizumab

Got my second infusion today. Was feeling a bit hot at moments, also my blood pressure went from 110/70 to 120/80 at the end of the infusion, but still normal for a man my size. After that went for a four hour walk shopping stuff. Felt my legs a bit stiff after 3+ hours on bed, but things got bette...
by Manu
Mon Jul 30, 2012 4:20 pm
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Update Week 24. Got the new 600mg ocrelizumab/placebo this tuesday. No side effects. Nor do i have side effects from the rebif/placebo. The only thing that i remarked was that the days before the new dose, i was so tired and niw i fel strong again. Other participants got any news ? Best regards manu
by Manu
Thu Apr 19, 2012 1:54 pm
Forum: Introductions
Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
Replies: 79
Views: 27316

Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi

Got in the screening for the trial today. Got warned not to have kids, to use double protection and so on. This was unexpected, no risk for now as my girlfriend left me after the diagnosis(women, what can you expect). Not sure what drug will I take if I get approved, double blinded study, could be ...

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