This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Ken, I'm still on the complete Wheldon protocol and without an exacerbation since I started Mino over five years ago. Early in the treatment, I pronounced that I would consider myself cured if I went five years, since I had previosly had exacerbations at least every three years. I feel I might ha...

Hi Robbie, How are ya' doing? I shot a 94 today. Re: anti-inflammatory issue Dr. Luanne Metz, at the University of Calgary, who is also the director of the MS Clinic at the Foothills Hospital, has been working on this issue for quite some time. It was her study over five years ago that led me to try...

Hi Sarah, Congratulations on finishing the antibiotic regime. I haven't been on the site too much lately, so some of these developments are passing me by, but you continue to be an inspiration to me. I've been back to the full regime after stopping and starting again last summer. I must have a huge ...

Hi Alex, Sorry to hear that you are having some problems. I had tried two week stints of metronidazole for almost a year and at the time it prevented the swings that I had been experiencing between pulses. Never tried as much as you, though. Over time I have developed more of a distaste for it. It w...

Hi All, As I hinted in an earlier post on Anecdote's thread, I, stopped my CAP on July 26, 2007. Over the next six weeks the tingling in my hands and feet grew stronger, my feet became much number and my balance and and overall coordination became noticeably worse. It was like MS returning. I had st...

Sarah, The problems with finding and keeping recruits, as you spoke of, were what she wanted to avoid. Misdirected or not, minocycline as a first response to MS is an excellent start. It's something the MS Society could buy into. And since no pharmceutical company is going to fund any research, it's...

Hi Sarah and all, It has been recently announced in Canada that the MS Society of Canada is funding another study by Dr. Luanne Metz of the University of Calgary and the Foothills Hospital MS Clinic. Dr. Metz did a small test of oral Minocycline in MS patients, which showed MRI improvements and then...

I've found the best description of the mechanisms of Chlamydia Pneumoniae on Cpn Help at this address: http://www.CPn Help.org/?q=recentobservations I haven't been posting much lately because I am busy getting on with my life. My business has been improving over the last couple of years, as is my go...

Congrats Sarah, Good to hear that you're still showing improvement. Although I'm still taking antibiotics, for almost three years now, my changes have also moved on to become more subtle. The first nine months to a year were the most dramatic and things hsve slowed since. A wonderful side effect is ...

Hi Frank, I'm surprised no one has answered your questions here. Maybe if we move it back up to the top it will be noticed. I think you made a good decision to start abx. NAC is short for N Acetyl Cysteine. I don't know anything about AAC. Tinidazole is not available in Canada, either, so I've been ...

FANTASTIC!!! Congratulations.

Gibbledygook, I apologize for getting on your thread and spouting off without even saying hello. Hello, glad to hear you are doing well and I'm always eager to read of your next great adventure. Sarah, the antibiotics may stop the MS from progressing and maybe clear up a few recent symptoms, but the...

I'm another long timer on antibiotics, (over two years), and would like to add to this conversation. The process of getting to where I was took decades. I developed symptoms as a result of irreversible (at this point) nerve damage caused by lesions. Antibiotics seem to have stopped the progress of t...

Hi Wiggy, Keep it up. You are doing great! Hope you don't mind a few words from someone who's been there. You're getting into the period where improvements show in a big way, and that was the most exciting time for me. There will be lots of times when you don't feel the best, but they will become le...

Hi Sarah, It seems to be the headache time of year. We have been inundated with snow and some cold temperatures. Alcohol also seems to exacerbate the headaches. Just last night, I experienced one after consuming just one glass of beer. Fortunately, I was able to cool off by stepping outside, in -8ºC...