Search found 81 matches

by Notdoneyet
Tue Apr 08, 2014 12:53 pm
Forum: Statins
Topic: now they may be beneficial
Replies: 7
Views: 6806

Re: now they may be beneficial

How about this study? Results from a Phase II clinical trial observing possible treatment for progressive MS MS Update March 26, 2014 Background: Currently available therapies for multiple sclerosis are designed to target inflammation. This feature enables them to reduce the frequency relapses, whic...
by Notdoneyet
Fri Nov 02, 2012 7:47 pm
Forum: General Discussion
Topic: Exercise and MS
Replies: 14
Views: 1900

Re: Exercise and MS

My opinion only, as a 30 year veteran of MS, is exercise as much as you can for as long as you can.
by Notdoneyet
Sat Jul 31, 2010 4:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another con-CCSVI
Replies: 23
Views: 4870

Auto-immunity is an unproven theory and why didn't people get the the same placebo effect from CRAB drugs or Tysabri?
by Notdoneyet
Sun Jul 11, 2010 7:42 pm
Forum: Antibiotics
Topic: 14 days on Doxy
Replies: 1
Views: 2286

I'm surprised no one has replied to your message. Often when people are starting an antibiotic protocol, they experience a worsening of symptoms such as yours. I think it is usually recommended to keep backing off until symptoms disappear, then building slowly back up to 200mg/day, as it becomes pos...
by Notdoneyet
Thu Jun 17, 2010 10:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Egypt-wheelchair-Won't treat?
Replies: 16
Views: 4583

In defence of Dr Tareq Sinan's team, treating people in Egypt, I would like to say that things are not as easy for a disabled person in Egypt, as here. The clinic where we were tested, especially was not that conducive to a wheelchair, let alone a bed. I don't know for sure, but perhaps in Kuwait he...
by Notdoneyet
Mon Jun 14, 2010 9:49 am
Forum: Antibiotics
Topic: CCVI / CPn
Replies: 33
Views: 12107

Hi Sarah, I'm not really taller, as the centipede crawls, but I am not so bent over, anymore. I stand much more erect, now. My exuberance is waning a little, but I am still very happy to have received angioplasties. It has moved the clock back several yeas on my MS, even before I started taking anti...
by Notdoneyet
Tue Jun 08, 2010 7:00 pm
Forum: Antibiotics
Topic: CCVI / CPn
Replies: 33
Views: 12107

Hi, Deb, I read your story a couple of times. It sounds like the neuro that you saw was probably Dr Luanne Metz, or one of her colleagues who is with the Uof C MS clinic, I think. I am not a medical professional by any means, but I posted my ideas here because these are the people who I learned abou...
by Notdoneyet
Sun Jun 06, 2010 11:05 pm
Forum: General Discussion
Topic: My Aha! moment
Replies: 1
Views: 1249

My Aha! moment

I have just returned from Egypt, where I was tested and received three balloon angioplasties to open blocked jugular and azygos veins that the doctor said were the worst he'd seen, so far. I am seven days, post-op and starting to recover from jet lag, sleep deprivation, two thirty hour journeys over...
by Notdoneyet
Sun Jun 06, 2010 10:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Antibiotics, Zamboni and the Aha! moment
Replies: 18
Views: 4513

still resting

I'm really happy that this discussion didn't die. For some reason, I haven't been receiving mail updates. I've edited my original post at the top of this thread to place more emphasis on overall venal health. I still feel that Cpn, or something the antibiotics were working on, affected MY disease pr...
by Notdoneyet
Sat Jun 05, 2010 1:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Antibiotics, Zamboni and the Aha! moment
Replies: 18
Views: 4513

Hey Cheer, I like your thinking, and it is a little rigourous a protocol for me, as usual. Sometimes you kind of get to me with your truths. LOL So, chlamydia pneumoniae or some other bacteria was probably a big player in the health of my veins, among many other factors, including my lifestyle. Than...
by Notdoneyet
Sat Jun 05, 2010 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Antibiotics, Zamboni and the Aha! moment
Replies: 18
Views: 4513

Antibiotics, Zamboni and the Aha! moment

I have just returned from Egypt, where I was tested and received three balloon angioplasties to open blocked jugular and azygos veins that the doctor said were the worst he'd seen, so far. I am seven days, post-op and starting to recover from jet lag, sleep deprivation, two thirty hour journeys over...
by Notdoneyet
Sat Jun 05, 2010 1:52 am
Forum: Antibiotics
Topic: CCVI / CPn
Replies: 33
Views: 12107

Clarity at last! The Aha Moment!

This post has been edited following a little review over at the CCSVI forum: I have just returned from Egypt, where I was tested and received three balloon angioplasties to open blocked jugular and azygos veins that the doctor said were the worst he'd seen, so far. I am seven days, post-op and start...
by Notdoneyet
Wed May 19, 2010 9:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Info on UBC trials in Canada - Dr Tony Traboulsee interview
Replies: 8
Views: 2448

Nelson Before Nine

You'll have to listen to the interview and draw your own conclusions, Salvatore. I decided to seek treatment abroad. It's a one hour show and it's all kind of interesting. The whole show is an hour long, but the Traboulsee interview is 15 minutes. He's really pretty vague about the study, when it st...
by Notdoneyet
Wed May 19, 2010 8:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Info on UBC trials in Canada - Dr Tony Traboulsee interview
Replies: 8
Views: 2448

Info on UBC trials in Canada - Dr Tony Traboulsee interview

Below is a link to download the podcast of Nelson Before Nine's broadcast of May 4, 2010 on Kootenay Co-op Radio, in Nelson, BC, Canada. http://cjlypodcast.net/nelsonbeforenine/nbn_may04_2010.mp3 Of particular interest is an interview with Dr. Tony Traboulsee. He is the neurologist who is heading th...
by Notdoneyet
Wed May 19, 2010 3:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian MS Society lobbies govt' for CCSVI $$
Replies: 32
Views: 7124

Dr Tony Traboulsee interview

Below is a link to download the podcast of Nelson Before Nine's broadcast of May 4, 2010 on Kootenay Co-op Radio, in Nelson, BC, Canada. http://cjlypodcast.net/nelsonbeforenine/nbn_may04_2010.mp3 Of particular interest is an interview with Dr. Tony Traboulsee. He is the neurologist who is heading th...

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