Search found 6 matches

by Bella98
Thu Apr 05, 2012 7:56 pm
Forum: General Discussion
Topic: what does Optic neuritis feel like?
Replies: 5
Views: 5363

what does Optic neuritis feel like?

I have been getting IVIG for presumed "inflammatory polyneuropathy/atypical cidp".. I have had double vision - mild in left eye for a while (since this whole mess first attacked my body) - it occurred suddenly, i went and saw an opthamologist (suburban one) he said things looked fine- it w...
by Bella98
Sun Mar 18, 2012 6:19 pm
Forum: General Discussion
Topic: whirlwind of a year- getting IVIG, ? diagnosis
Replies: 8
Views: 2599

Re: whirlwind of a year- getting IVIG, ? diagnosis

Thanks so much!!! Yes, kids are truely a miracle.. Our dr- fertility specialist told me (since we had SOOO many issues - every month we discovered a new "hurdle")that he just wasn't sure.. that I was a very complicated case... after years of treatments- injections IUI's, losses etc etc etc...
by Bella98
Sat Mar 17, 2012 5:54 pm
Forum: General Discussion
Topic: whirlwind of a year- getting IVIG, ? diagnosis
Replies: 8
Views: 2599

Re: whirlwind of a year- getting IVIG, ? diagnosis

lyndacarol - thank you so very much!!! Your words about the kiddos brought me to tears - the good kind! Having them has just changed everything (for the better of course), however it also has made me think twice about risky things like horseback riding (jumping) and all the things i used to do- sinc...
by Bella98
Sat Mar 17, 2012 11:43 am
Forum: General Discussion
Topic: whirlwind of a year- getting IVIG, ? diagnosis
Replies: 8
Views: 2599

Re: whirlwind of a year- getting IVIG, ? diagnosis

THank yall both so very much for taking the time to respond and your kindness! I really appreciate it, especially during this undiagnostic certainty time, which is just so scarey!!!! NHE- Funny you mentinon B6.. I was told after many miscarriages that I had MTHFR and to take 5MG of folic acid a baby...
by Bella98
Fri Mar 16, 2012 7:57 pm
Forum: General Discussion
Topic: whirlwind of a year- getting IVIG, ? diagnosis
Replies: 8
Views: 2599

Re: whirlwind of a year- getting IVIG, ? diagnosis

I meant to say (sorry I blabbed too long)!! My very first symptom was loss of proprioception of my limbs.. I was holding my son and didn't know where my arm was (he was on it and I didn't even know, couldn't feel it).. I have this sensation the majority of the time- I just don't know where my limbs ...
by Bella98
Fri Mar 16, 2012 6:57 pm
Forum: General Discussion
Topic: whirlwind of a year- getting IVIG, ? diagnosis
Replies: 8
Views: 2599

whirlwind of a year- getting IVIG, ? diagnosis

Hello.. I would greatly appreciate any opinions/advice etc. It has been a crazy few years for me, and I'm currently undergoing IVIG treatment for "inflammatory polyneuropathy", also a diagnosis of atypical CIDP.. Anyhow.. Since my symptoms are atypical for CIDP, and I'm at the "right&...

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