This Is MS Multiple Sclerosis Knowledge & Support Community

http://www.thebarrow.org/Education_And_ ... rly/204853

Has the above paper from 1998 been discussed before? Sounds like this could be part of some MS cases.

Dr. Sclafani, have you noticed any correlation between the degree of occlusion at the IJV valve level and the severity of the stenoses? Also, have you observed the double stenosis pattern in the IJVs that Dr. Trevor Tucker attributes to low pressure nodes in accordance with fluid dynamics? Thanks do...

Dr. Sclafani, I'm 25 with suspected, undiagnosed primary progressive MS for 3 years but there were signs and symptoms before then. My disease is aggressive, already causing atrophy of my forearms (being a computer programmer, I will have to go on long-term disability soon because of the difficulty t...

Inflammation drives MS? This paper is worthless.

Dr. Sclafani, I have a few questions for you but first I would like to thank you for this epic thread. If only more doctors went the extra mile, perhaps we could get to the bottom of this quicker. So thank you, this is very much appreciated. Have you observed the patterns of CCSVI that Zamboni et al...

THE only major trauma is this damn MS. No injuries to speak of. I swear I am progressing so fast. Fatigue is so bad i can barely keep my eys open and all day.... It's hard to imagine that ONLY congenital factors are at play in your case. Have you asked your parents about any falls from a crib or wh...

You basically asked people with higher EDSS scores only to answer 2 questions, one of which doesnt relate to EDSS, and those who could answer specifically to the issue of heat intolerance, to not answer unless they had a high enough score, regardless of their improvements, even though the score and...

This isn't really surprising. CCSVI does NOT cause MS...at least not on its own. CSF flow problems will probably be found to be the root cause of MS in conjunction with congenital CCSVI abnormalities, mostly bad valves or missing/underdeveloped veins. Stenoses probably develop later.

It was the red spots on Jeff's legs that started my search. I learned they were called petechiae, and that Dr. Roy Swank first noted these blood spots in pwMS in the 1950s. He believed they were caused by "capillary fragility." I later read research linking them to endothelial dysfunction...

There was discussion about the small study that came out of FONAR not too long ago: http://www.thisisms.com/forum/chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18097.html I think there is way too much emphasis on the veins and not enough emphasis on CSF. In my case, it is almost a certai...

Ancap- Welcome. That's quite a history! Good for you for learning all you could about your own disease. Have you received a chiari diagnosis? I note you've had venoplasty for CCSVI. If you wouldn't mind sharing, who treated you and for what diagnosis? We've been discussing Dr. Schelling and his wor...

AnCap, Wow, what an incredible mind you have. What a memory. Thank you for posting on Tims. Have you had your veins to your brain checked for stenosis? I believe people on this forum need your help and can advise you. Rogan Thank you for the compliment. Piecing this detailed timeline together was r...

Hello forum members. I’ve lurked here for some time but I’m finally going to post my thoughts on MS to see if we can generate some ideas. I’m a 25 year old computer programmer and thus have no medical background whatsoever. I’ve had undiagnosed what looks like primary progressive MS for the last thr...