Search found 18 matches

by kaebean
Thu Jan 31, 2013 2:13 am
Forum: Diet
Topic: Turmeric (Curcumin) and MS
Replies: 3
Views: 2420

Re: Turmeric (Curcumin) and MS

I'm glad you've responded so well to it!

Cheers,
kaebean
by kaebean
Sun Jan 13, 2013 11:34 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

buygirl,

I'm so sorry about the leak. Take it easy, drink some caffeinated tea and eat some chocolate! You deserve it...and the caffeine should help with the headache.

-All the best.
by kaebean
Sun Jan 13, 2013 11:30 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

Zac, I'm glad you're staying optimistic! Being negative never does any good. I know that I was experiencing symptoms of MS 4 or 5 years before my diagnosis and it was so frustrating to not know what was wrong with me. I hope you start getting some of the answers you deserve. Have you thought about r...
by kaebean
Sat Jan 05, 2013 4:30 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

HappyPoet, If your neurologist is also heavily involved in MS research, he/she is more likely to have access to the labs that will run more of the newer CSF tests. It's definitely something to look into. Also, I know my practice in NYC (MS Research Center of NY and International MS Management Practi...
by kaebean
Sat Jan 05, 2013 4:22 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

Zac, I'm so sorry to hear that. Out of curiosity, has your neurologist thought at all about other possible neurological diagnoses? It sounds like you've been through the ringer,and I know you said he found you particularly difficult to diagnose with MS. Do you think you'll be starting another DMT; R...
by kaebean
Fri Jan 04, 2013 1:50 pm
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

I'm glad it went so well! He really knows what he's doing!
by kaebean
Wed Jan 02, 2013 5:59 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

I'm sorry I went off a bit. The last thing I want when I am trying to help others is to be misread or misquoted, and as a result, misunderstood. All I have said is that they believe they have found one factor of one cause of the disease. I never said that they found the cause, merely that they feel ...
by kaebean
Tue Jan 01, 2013 2:32 pm
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

Zac, while most patients with MS have permanent oligoclonal bands, something like 10-15% don't have them. I actually haven't met anyone yet who hasn't had the banding, but has a diagnosis, so I'm probably not the best person to ask about your case. Sorry about that. How has the Tysabri worked for yo...
by kaebean
Tue Jan 01, 2013 2:26 pm
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

MELVIRA, I had no headache with the most recent procedure. It was neither unnecessary, nor torturous. Is you had read any of what I've written clearly, you would have known that I had no issues with the procedure. My new doctor simply wished to run more tests than many other neurologists do and has ...
by kaebean
Sun Dec 30, 2012 2:24 pm
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

I've only had 2 taps. The first one I had was performed during my initial onset of symptoms in 2011 by a basic neurologist, not one who specialized in MS. And yes, I had about 8 different MRI scans done during that initial period, and now get one every 6 months. My new neurologist is the director of...
by kaebean
Sun Dec 30, 2012 7:34 am
Forum: General Discussion
Topic: Coconut oil for MS?
Replies: 7
Views: 5301

Re: Coconut oil for MS?

I've been taking Fish Oil and Coconut Oil capsules for about a year now and I certainly feel better on the days that I do take them than I do on the days that I forget to. I have also read and heard a lot about coconut oil being great for brain ailments - as long as you're not allergic to it, obviou...
by kaebean
Sun Dec 30, 2012 7:25 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

Well, I haven't gotten my results for this latest tap back yet as it's being run through many more tests at the MS Research Center of NY, including a test for one of the new genes that practice believes is one part of the cause of MS. However, most neurologists are looking for those oligoclonal band...
by kaebean
Sun Dec 30, 2012 3:21 am
Forum: Diet
Topic: Turmeric (Curcumin) and MS
Replies: 3
Views: 2420

Turmeric (Curcumin) and MS

The naturopathic doctor at my clinic is always suggesting that MS patients try to add more turmeric into their diet to help with inflammation. I did some more research and found a study done at Vanderbilt University's Neurology Department did on the subject. I wrote it up here, if anyone is interest...
by kaebean
Sun Dec 30, 2012 2:53 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Re: Spinal Tap Advice

Yes! Dr. Sadiq is my neurologist, but Dr. Williams usually does the spinal tap procedures. He does a wonderful job! Good luck!
by kaebean
Thu Dec 27, 2012 3:15 am
Forum: General Discussion
Topic: Spinal Tap Advice
Replies: 22
Views: 2019

Spinal Tap Advice

Hello everybody- I had my second spinal tap last weekend and have since written a post about the procedure and my advice for making it as painless and easy as possible! It's a bit on the long side, though, so here's the link to it if you're interested: http://bumpymsadventures.blogspot.com/2012/12/s...