Search found 607 matches

by vesta
Tue Jun 18, 2019 1:53 am
Forum: General Discussion
Topic: MS SUCKS and it is time our Government KNOWS IT!!
Replies: 20
Views: 3631

Re: MS SUCKS and it is time our Government KNOWS IT!!

"Nearly 14 years old and Bromley's post could have been written last week..." While this thread goes back many years, frankly it appears nothing has changed that I know of since my dad was diagnosed about 50 years ago. He could have written the same letter back then... And perhaps we could go back ...
by vesta
Tue May 28, 2019 7:01 am
Forum: General Discussion
Topic: MS is a Clinically Defined Disease
Replies: 1
Views: 106

MS is a Clinically Defined Disease

A series of lab tests coupled with a physical neurologic exam have been developed to diagnose MS even though the MD doesn't know what causes it nor how to treat it. In my opinion the primary virtue of the exams is to diagnose other disorders which need to be treated - brain tumor for example -and in...
by vesta
Tue May 21, 2019 5:41 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Re: Accidental MS Treatment Discovery

I can find an idiot who claims feeling better with drinking lead... Please science, sources, data... First comes the IDEA based on an observation. Then the research. Do you think for a minute Fleming understood why the bacteria adjacent the fungus had disappeared? His reaction, "That's funny". Then...
by vesta
Tue May 21, 2019 1:34 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Re: Accidental MS Treatment Discovery

more clickbait as far as i can tell... related: https://www.thisisms.com/forum/viewtopic.php?p=256054#p256054 Greetings: After NHE expressed the fear of copyright infringement I wrote " "Sorry, I don't want to threaten your excellent site. In fact that is my article from my own site (so I obviously...
by vesta
Tue May 21, 2019 1:19 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Re: Accidental MS Treatment Discovery

This is far away from a discovery... Greetings: It would be a discovery if massage were recognized by Neurologists as the best first response to an MS attack before launching into steroids. I posted this because what happened cannot be dismissed as merely "anecdotal", the relief I experienced was r...
by vesta
Mon May 20, 2019 7:46 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Accidental MS Treatment Discovery

On reading a recent post on the ThisisMS forum website, I noticed that « Ambicat’s » MRI revealed « a signal change in my spinal cord ». I suggested having the area in question massaged with the aim of releasing the muscle spasms which I believed to be at the origin of the « attack ». I suggested th...
by vesta
Thu May 16, 2019 8:44 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1500

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

My neurologist wanted me to look more into what CIS is, after ruling out everything that could've caused my numerous symptoms and increasing disability over the past week (first time this has ever happened). My C-Spine MRI yesterday showed a signal change in my spinal cord, so today he started me o...
by vesta
Sun May 12, 2019 8:35 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1500

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

"he discusses the lack of efficacy of several of the DMDs in preventing long term progression of disability." Current DMDs typically do not prevent long term progression and are not advertised to do so. I have been taking Copaxone for almost 6 years and when presented info about it originally by my...
by vesta
Fri May 10, 2019 5:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dayton Interventional Radiology
Replies: 7
Views: 256

Re: Dayton Interventional Radiology

I know what you are saying but there are some on here that say that CCSVI has really helped them. If I could get help with the heat intolerance that would be a big help for me. The following was recently posted on the Vascular Connection Facebook page. I know nothing about the Dayton Clinic but I t...
by vesta
Wed May 08, 2019 1:33 pm
Forum: Introductions
Topic: Hello! New member with a question
Replies: 12
Views: 446

Re: Hello! New member with a question

Hello. Previously published on my site MSCureEnigmas.net https://www.mscureenigmas.net I would suggest you and your wife begin by finding the area which gave you relief when she massaged you and see how that corresponds to your skeletal structure and maybe find an osteopath or chiropractor for infor...
by vesta
Tue May 07, 2019 2:24 pm
Forum: Introductions
Topic: Hello! New member with a question
Replies: 12
Views: 446

Re: Hello! New member with a question

Hi again: Your massage experience suggests to me that you might have a skeletal obstruction to your blood flow and or cerebrospinal fluid flow since you got some relief but it was temporary. Did you work in a physically demanding field which could have injured your spine? Anyway, Ideally you could h...
by vesta
Tue May 07, 2019 7:12 am
Forum: Introductions
Topic: Hello! New member with a question
Replies: 12
Views: 446

Re: Hello! New member with a question

Hi Gary: Trail mix is a good idea. I keep a mixture of almonds and raisins always available to snack on. Best regards, Vesta MY SEVEN STEPS TO MULTIPLE SCLEROSIS HEALTH Hi Vesta, I agree with more or less everything you say. The more I learn about MS the more I believe this is caused by vascular, s...
by vesta
Tue May 07, 2019 6:57 am
Forum: Daily Life
Topic: Playing for Change - world unity through music
Replies: 3
Views: 243

Re: Playing for Change - world unity through music

"Chanda Mama" is a folk tune about the moon that originated in Chennai, India. We started the track in New Orleans and added musicians from the all over the world before finally delivering it the people of its origin. The result is an uplifting track that has a feeling of perseverance and joy. htt...
by vesta
Tue May 07, 2019 2:40 am
Forum: General Discussion
Topic: Retinal Tissue Perfusion reduced by 42% in MS !!!
Replies: 4
Views: 206

Re: Retinal Tissue Perfusion reduced by 42% in MS !!!

Maybe related to this (S1P is the kind of cells that fingolimod targets) Sphingosine 1-phosphate (S1P) and inflammation https://www.ncbi.nlm.nih.gov/pubmed/31049553 Abstract Sphingosine 1-phosphate (S1P) [...] provides a basis of immunomodulatory drugs targeting S1P1 receptor such as FTY720, an imm...
by vesta
Sun May 05, 2019 10:52 am
Forum: General Discussion
Topic: Retinal Tissue Perfusion reduced by 42% in MS !!!
Replies: 4
Views: 206

Re: Retinal Tissue Perfusion reduced by 42% in MS !!!

Interesting. Whatever MS is, it is clear that it has nothing to do with the standard autoimmune model In my opinion, MS is a CNS fluid circulation disorder caused by many factors. gristy56 has proposed an interesting treatment in this sense thinking that magnetite in the blood injures the myelin. W...