This Is MS Multiple Sclerosis Knowledge & Support Community

This is probably way too late for you, but I do. Found out I am JVC + way after starting Gilenya. I was curious about my status as I knew I will most probably need to switch meds at one point. Not sure ow I feel about it. The risk of PML is quite low, especially if compared to Tysabri, but it's stil...

Hello Patrick, I just had to post! My MS too started after an ankle injury (tri malleolar fracture... ouch!). It actually started just a week after my second surgery which was performed to remove the lovely screws and plate that had been put in a year before. I too seem to have a mild case, although...

Hey!!! That is my doctor who wrote in the NEJM! I sure hope I never need his expertise in treating PML.

Hello Pballer 76 and welcome. Do I ever understand your complaint about bumps, lumps and itches related to Copaxone! As far as my experience goes, it took about a month to get everything done (blood tests, ECG, eye exam) and be ready to start Gilenya. After that, all that was needed was booking an a...

Hi Theresa, sorry I missed your post! No, I can't say I feel more tired than before the Gilenya. For me, the effects still are on my heart rate and blood pressure. Gilenya has elevated my blood pressure as it has always been very nice before, even quite low at times. This bugs me quite a bit and I w...

Hi tweets.

Not an easy thing to give away it seems!! Have not had one soul showing the slightest interest!!

Maybe we can repost: 2 boxes free!!

After debating it for what seemed forever, I finally decided to do it! Figured Gilenya is an acceptable option right now. Far from perfect, but still acceptable. Worrying about side effects (increased risk of cancer and liver problems, even PML) will probably never go away, but my mind is made up fo...

Thanks AZStevo.
I started Gilenya 3 weeks ago.
My blood pressure has also risen. Probably due to the decrease in my heart rate that is not yet gone.

Hello,

I have just about an extra box of Copaxone to give away. Been kept in the fridge. Could be shipped with icepack. Hate to see it thrown away.

Hello melsywooh, Yes, vit D appears to be a key element in MS. One of the most eloquent study I read recently simply concluded that vit D level is just about the best indicator for predicting if a patient having suffered a CIS will relapse. You will find many studies on the UK MS We site at the foll...

Ummm. Go figure!

I there, just have a minute or two, but I just went off Copax. I am switching med and in order to be included in a study need to be off previous DMD 30 days. Neuro just said to stop. Nothing special to do. Just a note, Copax is beleived to work after it has started accumulating in the body. No rresu...

Just love your way of thinking it over. I too, prefer an actual risk history as opposed to what the pharma HAD to report from the studies. That is one of the reasons I chose G over Tecfidera. Also, my stomach has trouble with most meds I try, so I figured Tec is probably not the best choice. As far ...

Your plan sounds very wise and probably a lot better than mine I guess. Clinically, I feel just fine except for residual numbness on the sole of my feet and neuropathic pain to match. Other than that, I sure don't feel like my brain is getting any sharper, but that probably has more to do with being...

This is much of a post on another forum. Please forgive me if you read it twice. I took Copaxone EOD for the past year or so. It was not what was recommended by the doc but I just decided that every day was just too much. Of course, if I had believed Copax would make a huge difference I would have f...