Search found 8 matches
- Wed Oct 31, 2012 5:04 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
Helloooo! Sorry I haven't been on in ages, I saw the professor in London.. I have been diagnosed with EDS, POTS and Dysautonomia - when you put them together (as they commonly appear together!) you get what looks like a very MS-type symptom list, but...luckily (or not?!) it's all down to good old Eh...
- Wed Aug 22, 2012 5:11 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
I decided to ditch the NHS for now and pay out for a private consultation with a really good Rheumatologist after my GP broke the last straw by announcing that I've never been officially diagnosed with EDS even, and I couldn't possibly have it as it's 'too rare' - The doctor I'm paying to see is a l...
- Tue Aug 14, 2012 9:21 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
Dr was an idiot and thought nothing was connected on my list and refused to test me for anything at all but has sent me off to the Rheumatology department. So I have to wait for that appointment. Not really sure what they will do as I am ANA negative...but there you go! PS thank you for even more su...
- Sun Aug 12, 2012 4:33 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
Thanks for the reassurance guys! Soaking in the Epsom bath worked quite well - now I just feel tight up that side rather than agonised. I've been munching my way through tonnes of healthy, healthy food while I wait for some supplements to arrive :) Really interesting info about the sun allergy JL! I...
- Fri Aug 10, 2012 5:28 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
I have Epsom salts! I'll try them, thanks! I'll try anything, it's horrible. I'm allergic to the sun so I can't really get the vit D naturally...I have to wear factor 50-60 in the sun (which stops you absorbing vit D, right?), but tbh it barely ever shines here anyway lol... I'm looking at the healt...
- Thu Aug 09, 2012 9:00 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
Wow thanks, sorry for my delay in coming back I've been struggling with a severe cramp that's running up the entire side of my body :cry: I'm going to take my husband to the GP with me next week when he has time off, to help validate the whole thing and make sure they know I'm not mad.. I live in Li...
- Tue Aug 07, 2012 9:14 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Re: Hi - Need reassurance? I've tried every other disease! :
The diet and supplement regimen look really interesting. Do you think it's just deficiencies, or do you think deficiencies are part of MS? I was tested for iron, and they did some others too about a year ago. They don't let you see your results in the UK. Just tell you if you're ok/not... so that's ...
- Tue Aug 07, 2012 7:04 am
- Forum: Introductions
- Topic: Hi - Need reassurance? I've tried every other disease! :P
- Replies: 24
- Views: 5009
Hi - Need reassurance? I've tried every other disease! :P
Hi, I'm really at the end of my tether with my health - to be honest, for the past few months I've been avoiding the GP etc because it's just an endless mess....and some days I begin to think it must all be in my head :sad: I'm a 25 yr old mum of three..my doctors and I have run from early onset COP...