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by Anonymoose
Sat May 09, 2020 4:26 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 133
Views: 33151

Re: Rituximab iv and intrathecal with valtrex

i imagine all readers who need to know, do. for whatever it might be worth: Infection Risks Among Patients With Multiple Sclerosis Treated With Fingolimod, Natalizumab, Rituximab, and Injectable Therapies (Oct 2019) https://jamanetwork.com/journals/jamaneurology/article-abstract/2752284 "...Conclus...
by Anonymoose
Mon Feb 17, 2020 5:46 pm
Forum: Drug Pipeline
Topic: Monash University researchers one step closer to finding treatment
Replies: 2
Views: 582

Re: Monash University researchers one step closer to finding treatment

https://actrims.confex.com/actrims/2016/mediafile/Manuscript/Paper1320/ACTRIMS%20DITPA%202016%20Jae%20young%20LEE.pdf There is a 2016 ACTRIMS poster about DITPA...so is this really a new breakthrough? Why so slow to human trial? Would it cause systemic mayhem in people who don’t need it for thyroid-...
by Anonymoose
Mon Dec 16, 2019 3:43 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 133
Views: 33151

Re: Rituximab iv and intrathecal with valtrex

I always worry that people who go silent online have developed significantly worse symptoms even though they could just as easily be doing better and are simply busy living life. So, I’m just posting to update for those considering cd20 mabs, I’m doing great (physically/mentally-no new mris) and hav...
by Anonymoose
Wed Dec 04, 2019 6:10 am
Forum: MS Etiology and Pathogenesis
Topic: MS linked to lipids dysregulation
Replies: 1
Views: 510

Re: MS linked to lipids dysregulation

This caught my interest as there are a couple of proresolving mediator supplements available on the market. The assumption is they will cross BBB as their precursors do (dha/epa). I thought I’d post for other supplement junkies. There are so many recently released studies on proresolving mediators b...
by Anonymoose
Wed Sep 11, 2019 7:36 am
Forum: General Discussion
Topic: has anybody heard about Bryostatin?
Replies: 6
Views: 1415

Re: has anybody heard about Bryostatin?

Doh! I automatically sighed and thought of old MS news and beating dead horses when I saw “statin.” I guess I’d better temper my cynicism w MS research or I might miss something good. Didn’t in this case though!
by Anonymoose
Tue Sep 10, 2019 6:41 am
Forum: General Discussion
Topic: has anybody heard about Bryostatin?
Replies: 6
Views: 1415

Re: has anybody heard about Bryostatin?

Noticed this conflict in contents of “55 ways...myelin” post yesterday. Statins negatively impact myelination?? Link to 2008 study abstract referenced in that blog post.

https://www.ncbi.nlm.nih.gov/m/pubmed/19074034/
by Anonymoose
Sun Jun 09, 2019 6:15 pm
Forum: Daily Life
Topic: Some of the reasons
Replies: 18
Views: 1737

Re: Some of the reasons

Hey Moose i didn't even think the ankle problem was part of ms but they just keep coming. I have had a sore jaw for months and the ach moved up the side of my head, for a time I thought it was a wisdom tooth but just for fun I googled jaw pain/ms and there it was, I laughed😊 some wouldn't no matter...
by Anonymoose
Sun Jun 09, 2019 5:30 am
Forum: Daily Life
Topic: Some of the reasons
Replies: 18
Views: 1737

Re: Some of the reasons

But it's not up to me Elliot theres a point that ms tips the scale in its favor and it's not up to you. I tried suggestions from tims, interferon , eat right , tested for CCSVI exercised regularly, had a pic line put in for 8 months of intravenous antibiotics. At times I really thought I was on to ...
by Anonymoose
Fri Jun 07, 2019 5:59 am
Forum: Daily Life
Topic: Living without a life,
Replies: 20
Views: 2141

Re: Living without a life,

Hey Robbie, I hope you’re in touch w people in a similar situation behind the scenes. There is clearly a need for some sort of easily found online interface designed specifically for the purpose of peer support at every stage of disease. I know what you’re talking about. I have my exit plan arranged...
by Anonymoose
Wed Jun 05, 2019 5:03 am
Forum: Daily Life
Topic: Living without a life,
Replies: 20
Views: 2141

Re: Living without a life,

Hi Moose I made a ceiling hoist from stuff a lot cheaper,couldnt afford the real thing. That was partly why the PSW didn't work out, no faith in my engineering skills. Makes it possible for my wife to move me around though. Disability is a rich person's game. Wow! I looked @ the link NHE posted. Ho...
by Anonymoose
Mon Jun 03, 2019 6:57 pm
Forum: Daily Life
Topic: Living without a life,
Replies: 20
Views: 2141

Re: Living without a life,

No problem Moose , got a hoist now Had PSW for 2 yrs didn't work out.just that last step Would something like a surehands system work or is that like the hoist you already have? https://www.surehands.com/ The stairway analogy isn’t corny at all. Sometimes I feel like a salmon...fighting the current...
by Anonymoose
Mon Jun 03, 2019 1:04 pm
Forum: Daily Life
Topic: Living without a life,
Replies: 20
Views: 2141

Re: Living without a life,

The last nail in the coffin for me was loosing the ability to transfer myself into the chair, that was a deal breaker. Forgive my ignorance. I’m sure I’ll put my foot in it... Have you researched transfer assist devices? Maybe you could get that independence back?? If $$$ is an issue, those online ...
by Anonymoose
Sun Jun 02, 2019 8:41 am
Forum: Daily Life
Topic: Living without a life,
Replies: 20
Views: 2141

Re: Living without a life,

Hey Robbie, I love being alone so I’ll prolly be a bit annoying here but I thought I’d share a few ideas for using up time while stuck in bed/chair. When I’m sick/exhausted, I crochet. (Guys do knit/crochet too so don’t get all huffy on me.) My son loves the blankets I make him just like I loved the...
by Anonymoose
Tue Oct 23, 2018 7:01 pm
Forum: Mavenclad (Cladribine)
Topic: cladribine / leustatin / mavenclad
Replies: 25
Views: 6331

Re: cladribine / leustatin / mavenclad

@jimmy

Fair enough and yeah, I feel that. Good thing we’ve got ourselves. ;)

Be well
by Anonymoose
Tue Oct 23, 2018 1:49 pm
Forum: Mavenclad (Cladribine)
Topic: cladribine / leustatin / mavenclad
Replies: 25
Views: 6331

Re: cladribine / leustatin / mavenclad

@Scott1 I guess my original intent was to reduce ebv load and I probably did that. But...ebv can hang out in non-b-cells so I doubt I totally killed it off. Part of the reason I did the beuhner protocol and worked w an out-there integrated medicine doctor was to maximize my immune system’s potentia...

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