Search found 6 matches

by SpectrumFL
Thu Oct 18, 2012 6:05 am
Forum: General Discussion
Topic: pLEASE PLEASE Help I am desperate for advice with M.S
Replies: 9
Views: 2675

Re: pLEASE PLEASE Help I am desperate for advice with M.S

Can you call the first MRI place and ask what level MRI machine they used, and also the second MRI place and ask which one they used? Also ask if they did "MS Protocol" for both, or either of them. I apologize that this post isnt getting you closer to an answer, but I just want to be sure ...
by SpectrumFL
Wed Oct 17, 2012 5:03 am
Forum: Suggestions
Topic: Live Chatroom
Replies: 3
Views: 13605

Re: Live Chatroom

I can help set this up, and would be willing to pay for programmer time, even though that just means installing on your server. I would be happy to purchase the app as well, so its not cost to this site. I run a health information site and we use the same chat. Its just a matter of adding another pa...
by SpectrumFL
Tue Oct 16, 2012 3:42 pm
Forum: Introductions
Topic: waiting for confirmation dx with ms
Replies: 13
Views: 2156

Re: waiting for confirmation dx with ms

This is the line that threw me: "Then I had a spinal tap, the neurologist said I had Lymes disease and started me on doxycyline." If there were two, then I wonder why she went negative after being positive. Ill be honest, I went the Lyme route before the MS route (currently awaiting MS Dia...
by SpectrumFL
Tue Oct 16, 2012 3:34 pm
Forum: General Discussion
Topic: New Information
Replies: 141
Views: 35328

Re: New Information

Lets keep this thread alive. Where is Annesse ?
by SpectrumFL
Tue Oct 16, 2012 3:02 pm
Forum: Introductions
Topic: waiting for confirmation dx with ms
Replies: 13
Views: 2156

Re: waiting for confirmation dx with ms

He based her diagnosis on the spinal tap. They can detect lyme bacteria infecting spinal fluid using that method. The truly astounding nonsense is that the Infectious Disease doctor is basically saying the spinal tap test results are a false positive. Please be advised Jen - this is strangely common...
by SpectrumFL
Tue Oct 16, 2012 5:54 am
Forum: Introductions
Topic: I like this Forum because...
Replies: 0
Views: 1077

I like this Forum because...

I see a lot of researching, and asking questions, and getting answers. On supplements. Treatments. New drugs. Etc. I have run into some "poo poo" ing on other communities because I am heavily involved in this type of research for my own pending diagnosis. I enjoy learning and empowering my...

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