This Is MS Multiple Sclerosis Knowledge & Support Community

This was accurate, but things have changed; I spoke w/Carrie again June 18th and she indicated that they would be tackling SPMS in the winter now - SCREAM

Hi Bob,

I have increased and continued disability. My legs are weaker and now my right arm is on its way to useless. My balence is non-existant not to mention, bladder issues and swallowing problems.

It is very difficult to stay positive, but I'm trying.

I'm glad I was able to provide you with a little gleam of hope. At times, I am unable to do just that. Thank you for giving me hope. Off subject; Does anybody know anything about neurons and MS? My neuro mentioned this-as I presently do not have any active lesions, the continued disibility is caused...

Just wanted to say I spoke with Carrie yesterday and she indicated JHH won't be treating SPMS (me) until the fall.

However, I did find our conservation positive. She is very good at her job.

Keri,

I am anxiously awaiting to hear about your trip- You Go Girl! Susan

Thank you Hi-Cy for your advise.

They have my MRI civical and brain, but not the thoracic. Thank you for your input. I will try using your advise.


Susan

Hello- My name is Susan and I have been reading everyone's entries. I founde Revimmune myself (not thru my doctor, which really angers me) and am more than interested. my EDSS score is 6.5 and to quote Marie "I am out of wait". I have talked to Carrie at JHH and JHH has my file. From what ...