Search found 67 matches

by trisca
Thu Jan 21, 2016 1:10 pm
Forum: General Discussion
Topic: How do I buy HSCT treatment?
Replies: 11
Views: 1515

Re: How do I buy HSCT treatment?

The stem cells are taken from your own blood, separated out via a machine, then chemo to kill off your immune system, then your stem cells are re-introduced.

The cost of the procedure is less than one year's worth of dmd.
by trisca
Thu Jan 21, 2016 8:38 am
Forum: General Discussion
Topic: How do I buy HSCT treatment?
Replies: 11
Views: 1515

Re: How do I buy HSCT treatment?

Thank you!
by trisca
Thu Jan 21, 2016 6:04 am
Forum: General Discussion
Topic: How do I buy HSCT treatment?
Replies: 11
Views: 1515

How do I buy HSCT treatment?

I've been googling for an hour. I found the irf website with a list of hospitals in the world that perform the procedure. But do they do it to anyone, as in not in a clinical trial? Is there a place I can just pay for it. (Presumably not in the us because I don't have an endless source of funds.) Ho...
by trisca
Tue Oct 21, 2014 9:28 am
Forum: General Discussion
Topic: Paralysed man a walks again after pioneering surgery
Replies: 8
Views: 1422

Re: Paralysed man a walks again after pioneering surgery

Just saw this on the nightly ews. The University College professor that pioneered it says 3-5 years for the treatment to get out of the trial phase. He took on of the two olfactory bulbs from the nose/brain and implanted in the break in the spine. The olfactory bulbs are the only part of the nervous...
by trisca
Tue Feb 25, 2014 1:01 am
Forum: General Discussion
Topic: Confused about gabapentin...
Replies: 6
Views: 1415

Re: Confused about gabapentin...

I'm on gabapentin for muscle spasms. I'm not convinced it's doing anything, I find massage is better at dealing with the spasms. The dr told me it would make me feel better over all, stronger and more "upright."
by trisca
Thu Jun 06, 2013 12:51 pm
Forum: General Discussion
Topic: Multiple Sclerosis: MS Treatment 'Breakthrough'
Replies: 16
Views: 3417

Re: Multiple Sclerosis: MS Treatment 'Breakthrough'

And if it is a real breakthrough and solves it, how long before all the studies are done and we can actually get the treatment?
by trisca
Mon Jun 03, 2013 6:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sun exposure promotes nitric oxide release
Replies: 41
Views: 6588

Re: Sun exposure promotes nitric oxide release

I went back and read the first post - and would tend to disagree with the author's assertion that "until now it was thought that sunlight's only benefit to human health was production of vitamin D, which rises after exposure to the sun." although it is tough to run a search on health benefits of su...
by trisca
Sat Jun 01, 2013 9:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sun exposure promotes nitric oxide release
Replies: 41
Views: 6588

Re: Sun exposure promotes nitric oxide release

Mark, I don't think any lamp exists that doesn't have the risk of skin cancer. I bought a narrow band uvb light because it minimises the chance of skin cancer. Apparently your skin only produces a limited amount of vitamin d, and that limit is reached before your skin changes colour. I don't think m...
by trisca
Fri May 31, 2013 9:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sun exposure promotes nitric oxide release
Replies: 41
Views: 6588

Re: Sun exposure promotes nitric oxide release

Narrow band UVb light bulbs do give the full spectrum of rays, I don't think they've created the technology yet to only do narrowband uvb. I've read what they do is to give the light in a greater ratio of narrowband uvb:uvb:ova. What this does is let your skin tolerate a greater dose of the artifici...
by trisca
Fri May 31, 2013 1:46 am
Forum: General Discussion
Topic: Non stop aching legs
Replies: 5
Views: 1547

Re: Non stop aching legs

Hi Carrie, I had exactly the deep aching legs you're talking about. Physio massage helped a lot.
by trisca
Fri May 31, 2013 1:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sun exposure promotes nitric oxide release
Replies: 41
Views: 6588

Re: Sun exposure promotes nitric oxide release

This is why I bought a giant narrow band UBV light. Remember my post a few months ago? You need narrow band UVB, not tanning beds, it's the type used to treat psoriasis and eczema. And you may also remember my post on whether or not the go to a neurologist. I did, and I was given a really great one....
by trisca
Mon May 20, 2013 5:15 am
Forum: General Discussion
Topic: fat and stress
Replies: 1
Views: 966

fat and stress

I was wondering about a connection between fat and stress and if there is a known relationship between them. From personal experience I know that I have more problems when stressed and that I respond well to a low fat diet. I did a tiny bit of digging on google scholar and found that elevated oxidat...
by trisca
Fri Apr 12, 2013 7:49 am
Forum: General Discussion
Topic: The equator
Replies: 0
Views: 849

The equator

I've just returned from a holiday in Kenya (right near the equator, I even stood on the equator.) After about 7-8 days my symptoms had improved dramatically. On our 2nd day my poor husband ended up having to carry me back to our room after I couldn't walk back from a walk around the hotel grounds. B...
by trisca
Fri Apr 12, 2013 7:39 am
Forum: General Discussion
Topic: does birth month matter ?
Replies: 13
Views: 1537

Re: does birth month matter ?

I was born in November. There are pictures of my mother, pregnant with me, camping out in the blazing sun.
by trisca
Sun Mar 10, 2013 12:37 pm
Forum: Under 25 with MS
Topic: Just diagnosed with MS recently/ frightened and curious.
Replies: 4
Views: 4846

Re: Just diagnosed with MS recently/ frightened and curious.

Hi Donovan, I was diagnosed when I was 19, after a few years of symptoms. So I know exactly what you're going through regarding just starting out your life and feeling like it is ripped from you and you've stepped into a perpetually uncertain state of planning for the future. That was 20 years ago. ...