Search found 11 matches

by DeeDee
Sun Apr 10, 2005 7:10 am
Forum: Betaseron
Topic: Starting Betaseron
Replies: 10
Views: 23660

"Betaseron"

Had my first shot yesterday....1/4 the dose...no side effects...no site reactions or it might take longer than a day to get one of those I do not know. Your right after Tysabri I wanted the one that had been out the longest. A litte worried about liver enzymes. I am going to GP Tuesday and I will as...
by DeeDee
Fri Apr 08, 2005 2:28 pm
Forum: Betaseron
Topic: Starting Betaseron
Replies: 10
Views: 23660

Starting Betaseron

OK I am starting Betaseron tommorrow. I am a little nervous the only other thing I have taken was Tysabri...........enough said. I am interested to know how this stuff is going to make me feel. They are stepping up my dose so I am not going full dose to begin with. Will this help me feel better? I k...
by DeeDee
Sun Apr 03, 2005 1:29 pm
Forum: General Discussion
Topic: MS and Benzene Exposure
Replies: 13
Views: 6354

Maybe not to slim if we were all expose to the same common household detergent..............if you wash your clothes in it, it is in your clothes, if its in your clothes, its on your skin, on your skin in your body. I totally don't know what I am talking about and this is all speculation. Just a tho...
by DeeDee
Sat Apr 02, 2005 6:50 pm
Forum: General Discussion
Topic: MS and Benzene Exposure
Replies: 13
Views: 6354

I had not thought of that! Gene mutation........hum....thought to ponder.
by DeeDee
Sat Apr 02, 2005 10:00 am
Forum: General Discussion
Topic: MS walk/bike
Replies: 11
Views: 5254

My company has donated $200 for me. We are a company of 7 people so I thought that was awesome. Don't feel bad nobody in my family has showed in signs in walking either. You know what I really don't need them too this is my fight with or without them I have to do this. I walk for you guys and me. It...
by DeeDee
Sat Apr 02, 2005 9:49 am
Forum: General Discussion
Topic: MS and Benzene Exposure
Replies: 13
Views: 6354

Yea, I know. I have no doubt you have to have the gene to be predisposed to it. I have 4 cousins on my mothers side of the family including me that have MS. Also some 2nd cousins, they traced it this back to 1 common ansector. I periodically get her picture out and look at it. At least I know where ...
by DeeDee
Sat Apr 02, 2005 8:29 am
Forum: General Discussion
Topic: MS and Benzene Exposure
Replies: 13
Views: 6354

MS and Benzene Exposure

I am recently diagnose with MS. Since my diagnoses I have serveral friends that have been showing some signs. As a matter of a fact there once was a joke between us that if one found out what was wrong then we would all know. I have been doing my own research and this is what I have come up with so ...
by DeeDee
Fri Feb 18, 2005 5:21 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 30146

Finally had my first

Everything went well. I had a slight headache and felt somewhat tired afterwards. I do believe that was from being stressed from the whole procedure thing. So far so good. My next is schduled for March 18th I will let you all know how it goes.
by DeeDee
Sun Feb 13, 2005 2:17 pm
Forum: Introductions
Topic: Hi, Could We All Introduce Ourselves on this thread?
Replies: 316
Views: 110739

I have posted on the Tysabri link but I have failed to introduce myself. I am a 42 year old mother of 2 girls ages 17 and 4. I was diagnosed in Jan. of this year and awaiting my first Tysabri infusion. I have had symptoms since '96 but really excellerated after the birth of my second child at 38. I ...
by DeeDee
Tue Jan 25, 2005 5:09 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri - Covered Under Which Insurance
Replies: 18
Views: 11441

I am not on anything right now. I was just diagnosed 1/12/05 however my neuro had never seen a brain lesion as large as mine either. I ask to see the MRI and can't remember much after that. Thank God my husband was with me. I am talking huge. Just one but HUGE. Also my spinal tap only showed one imm...
by DeeDee
Mon Jan 24, 2005 5:36 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri - Covered Under Which Insurance
Replies: 18
Views: 11441

I will be taking my first treatment in the next 2 weeks. I don't know if this has happened to any of you already on Tysabri but I got a call from Biogen today and they have offered to help with me with the cost after my insurance pays their part. I have no idea how much that will be but they have to...

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