Search found 9 matches

by gallery23
Fri Mar 22, 2013 11:58 pm
Forum: Regimens
Topic: Steroids and HSCT?
Replies: 0
Views: 2366

Steroids and HSCT?

Does anybody know if a short treatment of steroids NOW, prior to HSCT treatment some months later can have a conflict/problem?
by gallery23
Wed Mar 13, 2013 1:43 am
Forum: General Discussion
Topic: help .primary progressive multiplescelrosis
Replies: 20
Views: 7270

Re: help .primary progressive multiplescelrosis

https://www.facebook.com/#!/groups/149103351840242/ The link above is to a Facebook group pertaining to stem cell transplants (HSCT) for MS and other auto-immune-mediated diseases. Many members, including myself, have had a stem cell transplant. I had mine during August '11 in Chicago. Many members...
by gallery23
Mon Mar 11, 2013 3:32 am
Forum: General Discussion
Topic: help .primary progressive multiplescelrosis
Replies: 20
Views: 7270

Re: help .primary progressive multiplescelrosis

There is one answer for you, it's not CCSVI, it's called HSCT. Hematopoetic stem cell transplant. It's a chemo and stem cell transplant procedure and it's your best bet. It's in phase 3 trials in the US and has been rigorously tested so far. It has a 65% ish success rate in progressive MS. That mig...
by gallery23
Sun Mar 10, 2013 8:07 pm
Forum: Introductions
Topic: Lucy a ballet dancer diagnosed with PPMS!!!
Replies: 7
Views: 3724

Re: Lucy a ballet dancer diagnosed with PPMS!!!

hi lucy, we have all been there, that frantic time when first diagnosed. it is terrible i feel for you. unfortunately everything takes time. very smart to start by reading, getting informed, making connections. i'm going to give you my 2c on the whole thing. ms drugs, ccsvi, stem cells are all reac...
by gallery23
Sun Mar 10, 2013 6:29 am
Forum: Introductions
Topic: Lucy a ballet dancer diagnosed with PPMS!!!
Replies: 7
Views: 3724

Lucy a ballet dancer diagnosed with PPMS!!!

:confused: HI My name is Lucy// Dancing has been my life.................. I was diagnosed on Wednesday with Primary Progressive MS.. I feel like I have been hit by a freight train!!!!!!!!!!!!!!!!! The doctor told me there is NO cure............! I have been hearing about Dr Zamboni and his CCSVI, a...
by gallery23
Sun Mar 10, 2013 5:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHAT EVIDENCE THAT CCSVI WORKS FOR PPMS????
Replies: 3
Views: 2241

WHAT EVIDENCE THAT CCSVI WORKS FOR PPMS????

recently diagnosed with PPMS. i WOULD LIKE TO ASK IF ANYBODY HAS had this treatment. if it has been successful for primary progressive MS SPECIFICALLY.?????? NEWS IF CCSVI CAN HELP WITH THIS PPMS. I live in Ireland but can travel. If there is any other procedure that can help with PPMS. Thanks.........
by gallery23
Sat Mar 09, 2013 8:17 am
Forum: General Discussion
Topic: help .primary progressive multiplescelrosis
Replies: 20
Views: 7270

Re: help .primary progressive multiplescelrosis

There is one answer for you, it's not CCSVI, it's called HSCT. Hematopoetic stem cell transplant. It's a chemo and stem cell transplant procedure and it's your best bet. It's in phase 3 trials in the US and has been rigorously tested so far. It has a 65% ish success rate in progressive MS. That mig...
by gallery23
Fri Mar 08, 2013 11:24 pm
Forum: Drug Pipeline
Topic: ccsvi
Replies: 4
Views: 3224

ccsvi

recently diagnosed with PPMS.
i WOULD LIKE TO ASK IF ANYBODY HAS NEWS IF CCSVI CAN HELP WITH THIS PPMS.
I live in Ireland but can travel. If there is any other procedure that can help with PPMS.
Thanks..................
by gallery23
Fri Mar 08, 2013 10:56 pm
Forum: General Discussion
Topic: help .primary progressive multiplescelrosis
Replies: 20
Views: 7270

help .primary progressive multiplescelrosis

I have recently been diagnosed with primary progressive ms. Devastated just finding out what this is all about..
Any advice for a cure ????????

I live in Ireland but can travel, can anybody advise on a procedure that can help close to Ireland, or anything else to help??? HELP!

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