Search found 19 matches

by aredmosquito
Tue Mar 25, 2014 2:01 pm
Forum: Rebif
Topic: What it the safe range of liver ALT number ??
Replies: 2
Views: 4744

Re: What it the safe range of liver ALT number ??

I read somewhere about 2 to 3 times the upper limit of normal, so 80-120ish. Definitely heed the advice of the above post, though.
by aredmosquito
Sun Sep 22, 2013 8:31 pm
Forum: General Medications
Topic: Experiences with Amantadine
Replies: 7
Views: 7115

Re: Experiences with Amantadine

I tried amantadine with no result. I switched to Provigil and it worked great!!
by aredmosquito
Sun Sep 22, 2013 8:16 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Oral MS drug Lemtrada approved by European Commission
Replies: 1
Views: 4041

Re: Oral MS drug Lemtrada approved by European Commission

This title is misleading. Lemtrada is an IV infusion, as the stomach would destroy the drug if taken orally.
by aredmosquito
Sun Sep 22, 2013 5:24 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Biogen Idec, Elan facing suits over MS drug side effects
Replies: 7
Views: 2339

Re: Biogen Idec, Elan facing suits over MS drug side effects

I was only DXed in March and my neuro tried to hawk Tysabri to me. My solution? Found a new neuro.

I refuse to use Ty until I have exhausted my other options. PML scares the crap outta me.
by aredmosquito
Thu Aug 15, 2013 4:08 pm
Forum: Introductions
Topic: New, DX, very confused about first time treatment options
Replies: 9
Views: 1365

Re: New, DX, very confused about first time treatment option

I am on Rebif, one of the interferons, and have had a smooth ride with it so far. When I was in the hospital for a week, at the time I was diagnosed, the attending neurologist told me to take as much time as I needed researching all possible treatment options. I did so much reading I thought my eyes...
by aredmosquito
Mon Aug 12, 2013 4:07 pm
Forum: Daily Life
Topic: Erectile Dysfunction?
Replies: 14
Views: 5737

Re: Erectile Dysfunction?

I second Anonymoose. The rings do help. I recommend a nice stretchy silicone one.
by aredmosquito
Thu Aug 01, 2013 1:00 pm
Forum: Undiagnosed
Topic: under investigation
Replies: 2
Views: 697

Re: under investigation

You almost exactly describe what I went through the past three years off and on, except I had no lopsided body, only face. I had vertigo, terrible loss of walking ability, and intense headache that prompted my DX. The vibration sensation is one of my MS symptoms too. It's called L'hermitte's sign. G...
by aredmosquito
Wed Jul 24, 2013 7:19 pm
Forum: Undiagnosed
Topic: My results...
Replies: 1
Views: 1021

Re: My results...

My first MRI was pretty close to what you described, and they recommended a spinal tap. It hurt like HELL. Mine was positive for bands, and then they did an MRI of the spine. That, combined with my past weird symptoms that never seemed to make sense, along with negative HIV/PML/Lyme tests, got me a ...
by aredmosquito
Sun Jul 14, 2013 6:59 pm
Forum: Exercise and Physical Therapy
Topic: type of exercise and diet
Replies: 1
Views: 3894

Re: type of exercise and diet

I know this post is a tad old, but wanted to comment. I use the MyFitnessPal app (you can also use it on PC) to record foods. I upped my produce intake greatly and cut meat intake to one meal once or twice a week. I don't eat any grains that are not whole grains. I eat six small meals a day rather t...
by aredmosquito
Mon Jul 08, 2013 10:28 pm
Forum: Undiagnosed
Topic: Think I have MS
Replies: 6
Views: 1945

Re: Think I have MS

If you can, ask for a Stricker CD57 panel to rule out Lyme disease as well. The usual tests they do for it, the Western Blot and ELISA, are known for false negatives. Lyme often mimics MS and leads to many a misdiagnosis.
by aredmosquito
Fri Jun 28, 2013 6:45 pm
Forum: Introductions
Topic: Gilenya???
Replies: 4
Views: 1041

Re: Gilenya???

I do not take Gilenya, but after reading a section of the official website (, it seems they have a copay assistance program (as long as he does not receive federal or state medical insurance). They will pay up to $12K a year towards the copay.
by aredmosquito
Fri Jun 21, 2013 5:03 pm
Forum: Friends and Family
Topic: Infidelity because of MS?
Replies: 19
Views: 12638

Re: Infidelity because of MS?

Please do not chalk up her complete lack of respect for your feelings or relationship to her MS. She chose to cheat, MS did not make her. My MS has never caused me to cheat, nor has it made me cold and hurtful.

You have a tough choice to make. Keep your head up.
by aredmosquito
Wed Jun 19, 2013 2:24 pm
Forum: Drug Pipeline
Topic: Pegylated Interferon
Replies: 2
Views: 1514

Re: Pegylated Interferon

I too wonder about flu like symptoms with the new peginterferon. I had none with my titration pack, only had them my first week of 44mcg Rebif shots.
by aredmosquito
Wed Jun 19, 2013 2:21 pm
Forum: Rebif
Topic: Rebif Rebidose?
Replies: 4
Views: 5297

Re: Rebif Rebidose?

Wanted to update. I did my 20th shot yesterday. I don't mind the Rebidose injectors too much. The first few times I had to put on headphones while I did it because the click noise made me jump and waste my first shot. I have a lot of body fat, so needle depth with the Rebidose isn't really an issue.
by aredmosquito
Fri May 10, 2013 7:16 pm
Forum: Under 25 with MS
Topic: My Whole Story - Diagnosed April 4th with MS
Replies: 3
Views: 5039

Re: My Whole Story - Diagnosed April 4th with MS

I have to keep this short (left hand is numb so typing is hard), but welcome! I am 25, was dx'd 3/16 with RRMS after a month's battle with vertigo, nausea, vomiting, and problems walking. I also take Rebif. As for your medical situation, I am underinsured and have racked up $90K in costs so far this...