Search found 15 matches

by Annette
Sun Jan 31, 2010 12:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Greece
Replies: 95
Views: 30482

Oh....OH! I'm sorry I'm skidding in late to your thread.

Just wanted to add my delight at your procedure going so smoothly.

You know how I feel about this.

Wishing you many MANY continued improvements.
by Annette
Mon Jan 25, 2010 2:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Greece
Replies: 95
Views: 30482

Καλή τύχη φίλε. Και να είσαι σίγουρος ότι προσεύχομαι για σένα. όλα θα πάνε πολύ καλά. Σπύρος. Yeah. Exactly what Spyro said. I'll be in Athens next week too. Let me know if you're still there, won't you? I'll pop round. Sending you hugs, good vibes and keeping fingers, toes + everything else cross...
by Annette
Wed Jan 13, 2010 5:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Greece
Replies: 95
Views: 30482

Hi Annette! But "Zamboni" translates like "the man who is a tin of ham". The man who is a tin of ham. Gee. Does sounds pretty bad, doesn't it? Also, the word 'ham' has so many negative connotations. I too am keeping everything crossed for you that this works and if it does then ...
by Annette
Wed Jan 13, 2010 2:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Greece
Replies: 95
Views: 30482

Σου?! ΣΟΥ?! Σου γράφω με το θάρρος οτι σε ξέρω καλά από πάλια με άλλο avatar. Εαν κάνω κάποιο λάθος και είσαι άλλος άνθρωπος μην με παρεξηγησεις!! ZAMBONI!!! HA HA. I am going to start shouting that to all the insensitive onlookers that stare at me as I walk by with my rollator. ''Hey! What are you ...
by Annette
Sun Sep 25, 2005 10:58 pm
Forum: General Discussion
Topic: CSF ingredients?
Replies: 6
Views: 3622

Hi Stavros, I find your ideas on the interplay of CSF acidity levels and MS theory very thought-provoking. As my brain has fallen into the lower range ph soup I am unable to help you with your enquiries. I shall, however, be most interested to follow what any of our less synaptically challenged frie...
by Annette
Thu Jul 21, 2005 2:55 pm
Forum: Low Dose Naltrexone
Topic: Pleased but puzzled
Replies: 8
Views: 5840

I loved what (and how) you wrote. So close to my heart and thus I feel compelled to reply despite admitting from the outset that I am unable to constructively help with your queries (many of which I have often considered myself). I too have experienced similar improvements. Over a year ago now I was...
by Annette
Mon Apr 25, 2005 1:35 am
Forum: General Discussion
Topic: breathing problems due to weakened muscles
Replies: 2
Views: 2736

Hi, Sorry to hear about your troubles. Although I have not had similar symptoms I have had similar experiences with doctors. It's vitally important that we find doctors who can really 'listen' to us. One of the greatest gifts a doctor has is to 'listen' .... 'really listen' to his patients. That's w...
by Annette
Sun Apr 10, 2005 9:58 am
Forum: Avonex
Topic: interferon side effects.
Replies: 3
Views: 4776

HI So sorry to hear of your daughter's situation. My experience was very similar but I've made an excellent recovery. I, like you, posted a query on a board last year 'Does anyone feel they're getting worse on interferon?' I was stunned at the number of responses but the one that sticks in my mind w...
by Annette
Fri Mar 04, 2005 2:45 pm
Forum: General Discussion
Topic: how long did your ms remain "mild"
Replies: 15
Views: 8458

even if you don't have ms you sould live every day like its your last I agree and as an aside I came across this which is worth a read: Imagine there is a bank that credits your account each morning with 86,400. It carries over no balance from day to day. Every evening deletes whatever part of the ...
by Annette
Fri Mar 04, 2005 12:55 pm
Forum: General Discussion
Topic: how long did your ms remain "mild"
Replies: 15
Views: 8458

Stavro, Your post could well have been one I could have written a year ago when things were particularly bad for me - I was having a really bad time on Rebif which actually worsenend my condition and left me pretty depressed. I guess the state of our condition defines very much how we currently feel...
by Annette
Thu Mar 03, 2005 1:31 pm
Forum: General Discussion
Topic: how long did your ms remain "mild"
Replies: 15
Views: 8458

I second what Jaycee suggested. I was left untreated for many years - having being diagnosed as 'Benign' then woke up one day a couple of years back Secondary Progressive. That's when my neuro's started taking me seriously and prescribe drugs for me. I wish I had the spare money to do more 'recreati...
by Annette
Tue Mar 01, 2005 1:20 am
Forum: Low Dose Naltrexone
Topic: Water-based LDN
Replies: 4
Views: 5310

Hi Dizzee Yes you can make a 'double order' at Skip's as long as you have a prescription for it. I did exactly the same on my second order and got a prescription for 90, 3mg pills and 90, 1.5mg pills, although Skip's botched my order and only sent me 30, 1.5mg pills for some strange reason. Anyway, ...
by Annette
Fri Feb 04, 2005 12:39 pm
Forum: Drug Pipeline
Topic: IgM Antibody question.
Replies: 5
Views: 4474

Thanks for the response. Not quite sure what I should be tested for now as to my rising levels. It just keeps going up!

Annette.
by Annette
Tue Feb 01, 2005 10:37 am
Forum: Drug Pipeline
Topic: IgM Antibody question.
Replies: 5
Views: 4474

Oh Gosh! My results don't include that detail. Guess I'll have to contact the lab now, right?

Annette
by Annette
Tue Feb 01, 2005 10:17 am
Forum: Drug Pipeline
Topic: IgM Antibody question.
Replies: 5
Views: 4474

IgM Antibody question.

Hi All, I'm new here so apologise if this has already been covered somewhere but I'd like to ask if anyone else has elevated IgM levels. Mine are way over the limit and keep rising. The neuro I saw seemed very concerned about it without being very forthcoming as to why. So I got to researching and f...

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