Search found 130 matches

by Jimpsull
Fri Nov 02, 2018 2:56 am
Forum: Ocrevus (Ocrelizumab)
Topic: Second Infusion two weeks away, I feel like death? Any other
Replies: 11
Views: 3112

Re: Second Infusion two weeks away, I feel like death? Any o

We have a Nuero-degenerative disorder. We’re expected to get worse. Evidence is that Ocrevus slows our decline. I feel like crap and am walking worse in spite of no new damage on MRI. Been on O about a year. Second full infusion next week. Patients who saw improvement saw it about 6-24 months into t...
by Jimpsull
Tue Apr 04, 2017 9:57 pm
Forum: Mental & Spiritual Health
Topic: Stress Management
Replies: 8
Views: 3715

Re: Stress Management

"A man's spirit sustains him in a time of sickness, but a crushed spirit who can bear?"

Somewhere in Proverbs
by Jimpsull
Tue Feb 14, 2017 9:35 am
Forum: Diet
Topic: Diet affects progression of autoimmune diseases
Replies: 4
Views: 11598

Re: Diet affects progression of autoimmune diseases

I've never agreed with those who tout coconut oil as acceptable (or beneficial) for those with MS. Roy Swank demonstrated that saturated fats lead to MS progression. He published dozens of articles on this topic during 50 years of research. Most of the fad MS diets have lots of nice theories with li...
by Jimpsull
Mon Feb 06, 2017 7:50 pm
Forum: Diet
Topic: Swank-Wahls hybrid
Replies: 11
Views: 3234

Re: Swank-Wahls hybrid

From the McDougall article: "During his remarkable career Dr. Swank published dozens of studies in major medical journals showing that a low-fat diet would essentially stop the progression of MS. Unfortunately, his work never caused an impact on the practice of neurology, primarily because there is ...
by Jimpsull
Mon Feb 06, 2017 12:30 am
Forum: Diet
Topic: Why is the Wahls diet making me much worse, is it possible?
Replies: 103
Views: 49227

Re: Why is the Wahls diet making me much worse, is it possib

I don't think starchy veggies are out - they just don't count toward the 9 cups. Beets, carrots, and sweet potatoes would all be good additions. It sounds like you're malnourished, so that's not helping your energy levels.
by Jimpsull
Mon Feb 06, 2017 12:12 am
Forum: Diet
Topic: Swank-Wahls hybrid
Replies: 11
Views: 3234

Re: Swank-Wahls hybrid

I am reading Wahls book. She has lots of great theory but not a lot of hard evidence, which Swank has. Why does the Wahls protocol exclude eggs? Because she's allergic to them. Turns out they should be avoided because of their high saturated fat content but that isn't exactly a good basis for a prot...
by Jimpsull
Fri Jan 20, 2017 12:33 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus (Ocrelizumab) - clear doubts about safety
Replies: 6
Views: 8316

Re: Ocrevus (Ocrelizumab) - clear doubts about safety

But I hope for something better to come up for us with ms, hopefully not immunosupressive, with good reasonably good efficacy Best wishes to you all C Cliff - your wish came true decades ago. Dr Roy Swank developed a diet / lifestyle that arrested progression of MS. He did over 50 years of research...
by Jimpsull
Fri Jan 20, 2017 12:09 am
Forum: Diet
Topic: Swank-Wahls hybrid
Replies: 11
Views: 3234

Swank-Wahls hybrid

Swank studied 200 patients for 34 years. Most of those who kept saturated fats below 15 grams per day were alive and walking after 34 years. Those who didn't were bedridden or dead. No drug or other lifestyle regimen can claim anything even close to this compelling. There are a lot of really good co...
by Jimpsull
Thu Jan 19, 2017 11:40 pm
Forum: General Discussion
Topic: Suicide
Replies: 46
Views: 6531

Re: Suicide

I am also a 43 year old man with MS. I was diagnosed in 2003 and it does suck. It isn't a long slide into hell though. As we lose function we shift focus into other areas of our lives. Think of a wise old joyful person. They may be plagued by various pains and limitations but their focus shifts to c...
by Jimpsull
Tue Jul 05, 2016 10:11 pm
Forum: General Discussion
Topic: Terrified
Replies: 3
Views: 783

Re: Terrified

It's scary, but by no means a death sentence. I am also 43, was diagnosed at 29, and am still living a full life. Copaxone is my favorite DMD, but diet plays a bigger role than any pharmaceutical in controlling long term prognosis. Read the research of Dr Roy Swank ( http://www.swankmsdiet.org/ ) an...
by Jimpsull
Sat Apr 23, 2016 10:20 pm
Forum: Copaxone
Topic: Thinking About Going Off Copaxone
Replies: 17
Views: 19066

Re: Thinking About Going Off Copaxone

I love Copaxone. Was on it from 2003 - 2013, switched to Tecfidera for ~15 months, back on Copaxone since 2015. Just switched to the 3x per week, which is great. The volume of liquid is the same (concentration just higher). I've lost about 60 pounds over the last fours years due to Swank diet, so it...
by Jimpsull
Sat Apr 23, 2016 10:10 pm
Forum: Introductions
Topic: Hi from Vicky in London, UK - any advice?
Replies: 5
Views: 1311

Re: Hi from Vicky in London, UK - any advice?

Be sure to research the Swank diet and the OvercomingMultipleSclerosis research of Dr Jelinek.
by Jimpsull
Sat Apr 23, 2016 10:05 pm
Forum: Drug Pipeline
Topic: Oral antioxidant - lipoic acid
Replies: 2
Views: 2293

Re: Oral antioxidant - lipoic acid

I take r-alpha lipoic acid daily but may consider upping my dose
by Jimpsull
Thu Dec 31, 2015 1:14 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: The Coimbra Protocol high dosing vitD **************
Replies: 16
Views: 4953

Re: The Coimbra Protocol high dosing vitD **************

"What is vitamin D toxicity, and should I worry about it since I take supplements?"

http://www.mayoclinic.org/healthy-lifes ... q-20058108

- be sure to exercise caution

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