Search found 17 matches

by MrsMomTo6
Wed Jun 12, 2013 11:04 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9316

Re: JCV and BG-12

Testing Methodology for JC Virus per Quest Diagnostics http://www.questdiagnostics.com/testcenter/testguide.action?dc=TS_BK_JC_PCR BK and JC Virus DNA, Real-Time PCR Clinical Use Detect and monitor BK virus infection Detect and monitor JC virus infection Clinical Background BK virus (BKV) and JC vir...
by MrsMomTo6
Sun Jun 09, 2013 10:20 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9316

Re: JCV and BG-12

Being new to this forum...I think a reply is due? I am assuming ladymac is referring to my post, in the accusal of being an alarmist? I concur, there is 'erroneous crap on the internet.' I strive to avoid it. I am a Registered Nurse, and strive to read scholarly articles, research and other medical ...
by MrsMomTo6
Sat Jun 08, 2013 1:35 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9316

Re: JCV and BG-12

In the above article, entitled: "Who the Hell was John Cunningham" the following was eerily familiar with my health concerns at present, and phrase, in quotes, did concern me, and motivated me to research more about this JC Virus. Here is the quote from the article: " Cunningham had been diagnosed w...
by MrsMomTo6
Sat Jun 08, 2013 12:44 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9316

Re: JCV and BG-12

Article Discussing the origin of the name of the 'JC Virus' http://bmartinmd.com/2012/01/who-the-hell-was-john-cunningham.html Who the Hell Was John Cunningham? By bmartin on January 23, 2012 10:29 AM | Permalink Friday the FDA announced that it's permitting the marketing of the first test for antib...
by MrsMomTo6
Wed May 29, 2013 11:15 am
Forum: Betaseron
Topic: Betaseron & Cessation of Kidney Stones on Treatment!!
Replies: 3
Views: 4371

Re: Betaseron & Cessation of Kidney Stones on Treatment!!

That article is VERY interesting. I shared it with my endocrinologist's PA in hopes that a nurse will share it, being that docs have not, in my case. Having had stones since 1997, practically every 8 weeks for so many years, with all my doctors only saying to me the following: "If you are a stone ma...
by MrsMomTo6
Tue May 28, 2013 9:08 pm
Forum: Suggestions
Topic: undiagnosed forum????
Replies: 8
Views: 7829

MRI Reporting...

Wish we could all share what our MRI reports read, that led to our diagnosis of MS...
combined with
What symptoms were presenting at the time that MRI 'said MS'

No neuro that read my MRI's agreed on what they saw...it was such a discouraging time... :( for this mom of 6...
by MrsMomTo6
Tue May 28, 2013 9:01 pm
Forum: Betaseron
Topic: MS Interferon Drugs -- Brain Atrophy and Other Problems
Replies: 3
Views: 6138

Re: MS Interferon Drugs -- Brain Atrophy and Other Problems

What is the MOST discouraging about this is: 1-I never knew it, or found such research when I said 'yes' to taking betaseron. 2-No Neuro reads the MRI reports the same...so, I feel like I never really know the full extent of my MRI reports. 3-I KNOW I have had more issues in the year since I stopped...
by MrsMomTo6
Tue May 28, 2013 8:54 pm
Forum: Betaseron
Topic: Betaseron & Lupus Risk !!!! ???
Replies: 0
Views: 3648

Betaseron & Lupus Risk !!!! ???

I was on Betaseron from August 2011-June 2012. My new neuro has informed me that Betaseron use has a risk of producing Lupus!! But, a secondary 'advantage' of having Lupus, is that the meds used to treat Lupus, actually are better choices for treatment of MS?!?!?! BUT, MS drugs are bad for setting o...
by MrsMomTo6
Tue May 28, 2013 8:46 pm
Forum: Betaseron
Topic: Betaseron & Cessation of Kidney Stones on Treatment!!
Replies: 3
Views: 4371

Betaseron & Cessation of Kidney Stones on Treatment!!

I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do about stones, just get use to having them!' (yes, there are Jerk doctors out there!) Thankfully, patients READ!! and can become educated about their cond...
by MrsMomTo6
Tue May 28, 2013 8:36 pm
Forum: Copaxone
Topic: Copaxone side effects
Replies: 15
Views: 19990

Re: Copaxone side effects

:sad: hello The PIR of copaxone is horrible I have been on it on and off for a few years and this last time back on for 5 months ..the first PIR was so scary for me and the family, severe racing heartbeat, flushing , shortness of breath , chest pain, severe back and upper leg pain, nausea,vomiting ...
by MrsMomTo6
Tue May 28, 2013 8:21 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Cost Dimethyl fumarate (Techfiodra).
Replies: 6
Views: 4385

Re: Cost Dimethyl fumarate (Techfiodra).

I was recommended to start BG 12 upon it's release after Betaseron complications, and then Copaxone Complications. It was expected to come out in May 2013, and apparently, was released in April 2013. When I came in for a problem visit with my Neuro's PA, they were eager to start me on BG12, aka, Tec...
by MrsMomTo6
Tue May 28, 2013 8:20 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 9316

Re: JCV and BG-12

I was recommended to start BG 12 upon it's release after Betaseron complications, and then Copaxone Complications. It was expected to come out in May 2013, and apparently, was released in April 2013. When I came in for a problem visit with my Neuro's PA, they were eager to start me on BG12, aka, Tec...
by MrsMomTo6
Tue May 28, 2013 8:14 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Oral treatment for MS, Tecfidera, approved for use in Canada
Replies: 2
Views: 1959

Re: Oral treatment for MS, Tecfidera, approved for use in Ca

It is approved in the US effective April 2013. I was recommended to start BG 12 upon it's release after Betaseron complications, and then Copaxone Complications. It was expected to come out in May 2013, and apparently, was released in April 2013. When I came in for a problem visit with my Neuro's PA...
by MrsMomTo6
Tue May 28, 2013 10:35 am
Forum: Suggestions
Topic: Vitamin D Deficiency in MS
Replies: 1
Views: 6203

Vitamin D Deficiency in MS

Just wanted to post a comment about the Vitamin D research. My best understanding of the ''job' of Vitamin D is to transport calcium from the GI tract, into the bloodstream. Vitamin D levels are directly impacted by the level of Calcium in the blood stream. To maintain the proper, delicate, balance ...
by MrsMomTo6
Tue May 28, 2013 10:30 am
Forum: Introductions
Topic: New to MS ...and have questions
Replies: 12
Views: 1377

Re: New to MS ...and have questions

Just wanted to post a comment about the Vitamin D research. My best understanding of the ''job' of Vitamin D is to transport calcium from the GI tract, into the bloodstream. Vitamin D levels are directly impacted by the level of Calcium in the blood stream. To maintain the proper, delicate, balance ...